Hi lilyange

I had to see the oncologist (or someone from his team) before every chemo session. I had my treatment every 3 weeks so the day before went for blood tests and visit. They do keep a check on you throughout the treatment.

I used to write any questions down as soon as they came to me plus a diary of how I was feeling physically and mentally every day. Took this to my appointment so I had everything written down. It was a great help. Don't worry about asking things.

All the best River

River56

Thank you so much for your reply,ive had 4 chemo's before I saw mine,as I said it was good news last week that the chemo is shrinking the cancer,so I'm praying this meeting is about what treatment they going toward with,chemo or radiation, it's the having to wait untill next Tuesday to know anything,and I'm suffering more with my mental health since I was diagnosed, but there doesn't seem to be a lot of help with that,I'm going to write this down with any other questions I have as if I dont My brain will just go blank when immin there,do you think they will help or at least advise me where to go about how much stress and constant Fear I have,my own Gp is no help,tells me to just deal with it,it's a tough road this cancer as I'm sure you know,but I live alone and don't have anyone to talk to,

Sending you best wishes and thank you again,

Angie,x

Hi ange, lovely idea from river writing things down, i struggle a bit at home, the wife's there, but with her having Alzheimers I've got to be careful what i say to her or she gets really upset. So really I'm on my own. Hopefully they'll figure out why your bloods are going wrong, so you'll feel less stressed, i know treatment doesn't help, hopefully have a good rant on here does. And thares plenty of people going through similar things. Good luck at your meeting don't forget to give them hell if you don't like what they say, just keep fighting best wishes for the future...... Billy x hope you don't mind the x.

P.s don't forget oncologist is only human (hopefully) 

Thanks Billy,

Of course I don't mind the x,I'm so used to doing that myself I hope people don't get offended,

I really need help with how to cope with my mental health in all this,

I'm totally lost as what to do or why this fear has Gripped me so much,it doesn't even make sense to me considering they said the chemonis shrinking the cancer,so why am I so afraid??

I pray continually for my mind to stop all this nonsense, I can't even concentrate on the TV a book nothing is getting into my head only constant Anxiety, I need help badly,

Best wishes 

Angie,x

Hi angie ...

Don't worry, your not alone ... even us that have been old hands at this, still get really scared .. and the what ifs creep in ..unfortunately there's this wait for everything , and it doesn't get easier ... that's why we just keep as busy as possible... and try to fill that time ... I found u tube, on meditation helps .. anything to calm the old heartbeat ... but wer all there with you ...  

Sending you a vertual hug... Chrissie x

Hello Angie,

Does it matter Chemo or Radiation?

Dont loose sight of the good news. At the moment you are winning.

Try not to worry about the Specialist it is very normal and they want to dscuss the way forward in your case.

Try to take some one with you to the appointment and have some questions so you know fully about the situation.

i have had my rare cancer fore 15 years and i am still here but it is normal to be worried as it is only human.

All the best 

if you need anymore you where i am.

Andy dorro.

Thank you so much Chrissie,

It's cruel this mental torture I'm putting myself through, can't seem to shake it off, can't concentrate on TV or reading or anything,it's a constant from the time I wake up till I fall asleep with exhaustion,xx

Thank you Andydorro1 

No it doesn't matter which treatment to be honest,I suppose it's the unknown,

I know what chemo is like after having 4 treatments, I know nothing about radiation so a bit scared of that,and your right,I should be looking at the good news I got, I don't know where this overwhelming fear and anxiety is coming from but I can't shake it off, I'm very much alone on this journey,your story is brilliant and im so happy for you,well done and we'll done  onyour attitude towards it all, I wish I was as strong as you,I suppose it's still all very new to me,I was diagnosed 3 months ago,thank you for your kind words,

Angie,x

Hi Angie

everything you feeling is normal, I too have gone through the last five years on my own, when I first got cancer I was so sad for myself being 'alone' then I refocused and decided to accept that it's actually easier doing it on my own.... somehow mentally it made me stronger and somehow able to cope, I basically convinced myself that I didn't want to be a burden to anyone and weirdly that helped me.  Maybe it was reverse psychology lol  because we all know a comforting hug and/or support from a close loved one means everything.  There's no easy solution but wow the tumour is shrinking that's AWESOME so try focus on the positives like someone's already mentioned.  This forum also will give you the understanding and support you need because we have all experienced cancer one way or another, so come here whenever you feel the need xxx

I hate the appointments too because you have no idea if you going to be given good news or not, so I can totally relate.  Again you just have to take in a couple of deep slow breaths and zone your mind out releasing any fearful thoughts you have.  Have you tried meditation.... my concentration span is terrible so no good for me but maybe it's ok for you.  The other thing is listen to your body don't let it worry you what time of day you fall asleep.  I become a night owl, slept better at the unorthodox times but just went with the flow with it.

Good luck for Tuesday and hope today is a good day for you.

Sending virtual  

JBee xx

Thank you jbee for your lovely post,

I just need to get my mental health right with all this,I'm going through terrible stress,and anxiety it's cruel,

Can't seem to shake it off,I wish someone had a quick fix for me,WHY cant i focus on the good news I got??? Can not even make sense of it myself so I can't expect anyone else too,please keep me in your thoughts,

Angie!