Hi everyone,
I was told yesterday that I have MDS which has a mutation which will cause leukaemia.
I'm terrified not for myself but for everyone around me and dealing with the fact that I may die.
I will be going to a transplant clinic soon to discuss my treatment going forward. At the moment all I know is is that I'm very high risk and I need a bone marrow transplant as soon as possible.
They also spoke about doing chemo but because my white bell cell level is so low they will only be doing a light form.
is there anyone that can give me advice on this