So sorry what your going through and thank you for the advice. Must be so painful for you, but fulfilling that there are people out that making peoples lives that extra bit special, regardless of their situation.

Can I ask at what point did you get in couch with them? I'm feeling a bit lost at the moment. No clear information anywhere on navigating the services and I am exhausted from making endless phone calls. 

Hi, I phoned them the minute my mum was put on End of Life Care but I should have phoned them sooner. Probably as soon as my mum was on palliative care. They are good for advice also and the nurses knew all about the drugs etc to keep mum calm during her final week. 
 

It's easy to feel lost and alone but please phone them and Macmillion. They can support you also.