Hi just wanted to say hello.  Not had any experience of what you are going through must be a  very difficult decision to make.   I did hear a talk by a genetics expert, who was of the opinion that prevention is better than regular checks. She was referring to Breast cancer gene while  talking at a prostate cancer support group meeting.   I've met a 30 year old who had a double mastecomy as her chance of getting  breast cancer was more that 50% and she needed to be their for children.

 I know from friends in less fortunate situations than mine that the earlier cancer is caught  the better the outcome.

I wish you well with your decisions, a difficult and scary time.

Take care, gardenlady.

Hi Tracy

I am currently going through genetic testing for lynch syndrome.  I was diagnosed with bowel cancer in August last year and am being tested due to my age  (50) and family history of other cancers.  

I guess i will wait to see if i have it and then make my decision about preventative surgery but agree with you that it is a scary thing.