Lymphoma starting in groin?

So sorry you've been going through this.

Im sorry to hear about your pain. It sounds very similar to me when I had horrendous groin and low back pain. They originally put it down to a ruptured ovarian cyst but when that didn't heal my GP sent me for an ultrasound and they did my whole tummy. It was then they noticed my groin nodes were increased and also my spleen had shadowy areas. I was then referred to the lymphoma team who did my blood tests and a CT scan. My bloods came back fine but the CT showed my lymph nodes were raised all over so they did more investigations. Took them a while but they did a lymph node biopsy and it was only then that they diagnosed me with lymphoma, until that point theu weren't sure if it was.

So sorry you've been having these issues but please continue to see advice until the cause of your pains can be determined.

In answer to your questions ;

How long have people waited for an ultrasound? And how soon after would they do a biopsy?

For me I had my ultrasound, then got referred, then had a CT scan and a PET scan and then a bone marrow biopsy before they did a lymph node biopsy. So for me it was about 3 months. I've been told this isn't usually the norm in terms of length, but they usually will do atleast a CT scan after the ultrasound. Every medical team is different though and I have heard for other illnesses that they do the biopsy there and then with the ultrasound.

Can lymphoma still be an option of blood work is fine? 

It won't be the answer you want to hear but yes, in my case and the case of a few others I've spoken to our bloodwork indicated nothing about the lymphoma. 

Can lymphnodes just swell for no reason? 

Not usually no reason. But there's a whole host of other reasons why they would swell up including infections and viruses. When I was referred to the lymphoma team at first they tested me for all sorts, including blood disorders, STDs, issues with kidneys and glandular fever. Apparently if you've been exposed to glandular fever even once in your life it'll always show up on your bloodwork . Essentially there's a whole host of other reasons which they want to rule out.

My advice to you is keep persisting. I know it feels like a losing battle at times but until you know the root cause of why this is happening you're going to be going out your mind with worry and no knowing. It's every possibility it isn't cancer but regardless, if you know Something is up then don't let them dismiss you. I knew for a fact I wasn't well so pushed and pushed. Probably drove them mad but I can guarantee the docs who saw me at the start would be so surprised at my diagnosis of stage 3 lymphoma. Some shrugged me off just because of my age yet I've seen people younger than me with it so that just seems silly.

Wishing you all the best feel free to ask anything anytime

Kind regards

Rose

Hi 

i know now this has nothing to do with you asking for help or to answer your question I am young like you I am only 21 and I have a lump in my left groin and a couple of weeks before that I felt a lump under my jaw and I get really bad pain in my lower back as well and also get very itchy skin and I am scared about going to the doctors. 

And I wonder if it’s just my lymph nodes swelling or that and hope you get your results soon and fingers crossed everything is okayy for you 

i also take night sweats and fatigue symptoms 

Hi 

worried 515 

i think I will phone up Tomorrow as I have very sore skin around it and the lump is starting to get a little darker and my thigh is quite sore and a bit swollen and I need to get it sorted as I have a lot going on and think I need to get it checked and I will update you tomorrow when I speak to the doctor and hopefully you get your results soon 

kind regaurds 

Definitely ring up tomorrow, when you've got a lot on, your mind can make you easily prioritise things that aren't that important purely because you are scared. But those things can wait, your health is the most important thing. If you leave it too late you will always regret it! If you act now then if it is bad news you will thank yourself by getting it sorted as soon as you could, if it's good news then theres nothing to worry about but you will still thank yourself and you can go about your busy life without a worry then x

Hey there

My official diagnosis is stage 3AS

The A actually stands for no symptoms ; the typical symptoms people discuss e.g. fatigue and itching are called B symptoms. When someone is diagnosed through a biopsy but does not present the typical symptoms then they get A put on their diagnosis.

Whilst it's less common to have lymphoma without any symptoms it is something that does occur, and they have the grading system in place for it. 

It usually makes arguing your case much harder at the doctor's though as they expect to see B symptoms.

Good luck!

Rose

Completely sympathise with your issues of pain.

I hope they find a cause sooner rather than later so you can begin the road to recovery.

Best wishes

Rose

Hi Lulu28, sorry to hear about your situation. It seems a lot of us here are having the agony of a long diagnosis, how awful. I hope you are getting close to a diagnosis if you have not received one already, and hope it's all good news! I have requested another appointment and am going in at 2:30 where I hope they will at least tell me when my ultrasound will be as the lumps and symptoms are developing as I am waiting which really scares me. But thank you for your advice on the timings as it's made me at least just realise it will take a while and it's not just my doctors as I was considering moving doctors or going private.

best wishes 

x