Lung with Brain mets

my mum was diagnosed with lung cancer 20 months ago. It was a total bolt out the blue as she had never smoked or worked In an environment where this could be explained. After doing well on hormone treatment and 4 rounds of IV chemo the decided to give her a break as her bloods had dipped. The last update we had was that her tumour was stable and the could afford the few months to let her body recover. Unfortunately she had to be admitted to hospital with what we thought was opiate toxicity. This was partly the problem however,  after a CT scan we have been told today she has brain mets. I am devestated. My mum is my rock and the person I tell everything to and it’s killing me that she is so confused and I can’t talk to her for her to make sense of this for me or tell me what to do. I don’t really have a question or advice but I just had to put this somewhere if that makes sense 

  • So sorry. I experienced similar with my dad - his lung cancer first presented as severe headaches. He was found to have brain mets. Every individual's experience is so different. If it gives you any hope, this was six years ago. My dad had surgery immediately to remove two big tumours. It started growing in his brain again a year later so he had chemo and radiotherapy to kill the mets. He could then resume targeted therapies. Against all odds he is still with us today though unfortunately the brain mets have recently returned fo a 3rd time so he is having more chemo and we're having to wait and see what else, if anything, they can do to manage it. Hopefully, something can be done to manage your mum's disease for a while yet too. Regardless, it's impossibly hard. The anxiety and emotional stress is debilitating sometimes. I empathise.

  • So sorry to hear about your mum and can fully appreciate your pain. My own mum had lung cancer with brain mets a few years ago and I found the confusion very difficult to deal with. The consultant spent time to explain where the Mets where in the brain, and the potential difficulties that having mets in these regions may present. This did help as I found it easier to make a little bit of sense of her confusion. All of this is difficult to process and i can understand your feeling of just needing to put this somewhere. I do hope it has helped and that you know people are always willing to listen.