Hi there, first of all I'm sorry to hear of your worries. You must feel that your world has turned upside down. My husband became unwell with paint fumes and after a visit to the doctor and MRI for the heart a shadow was found on the lung. This ended up being lung cancer. Previous to this he had no signs of illness at all. He ended up having half a lung removed and 'touch wood' we are jogging along fine. I feel that we have been lucky because it was caught early and operable because if had not been detected then the story could have been a lot different.

Hold on in there and take care of yourself. Come back on here and let us know how things are going.

Hi, my father collapsed at home in Jan, with stroke like symptoms. He was then told he had a mass in his lung and one in his brain. He spent nearly a month in hospital and after a week at home has been readmitted with what seems like a chest infection. He has since become very weak and frustrated at not being able to do anything. I have been told the prognosis is not good.

Thanks for your replies. he is back at home but for how long? We have been told he has 5 different tumours on the right side of his brain but not told how big they are... The corticoides are helping for now I suppose

Hi, very sorry to hear you news, I am in the same boat and its horrible. Feel permamantly numb. So I really feel for you all.

My dad was showing signs of dementia so we asked him to go to the Dr, he then had a morning of slight breathless, and with his past history (10 years ago) of prostate cancer, she sent him for blood tests. Found out he has very low soduim. Further tests revealed lesions on his lung. 

He then had an abdominal scan which revealed liver inflamation. followed by a liver biposy which came back with lung mets. Incurable. 

Hopefully he can start a treatment trial on Fri but only if his brain scan comes back clear on Thurs?

Have been given time scales of 10.5 - 11 months with treatment and no brain mets or 3 - 6 months with brain mets. 

Me, my mum, my brother, my husband and children, my brothers fiancee and her son, in a whirlwind, all happened so fast. dad is a very proud typical English Gentleman, loved by all wherever he goes. Head of the family. We are going to be left with a huge gaping hole and my poor mum left on her own for the first time in 50 years.  

Thanks Clare. I’m back in the UK and my dad is home seeming well as in he’s eating and even going for walks with mum and the dog. Apart from corticoïdes and anti epileptic tablets, we are not offered treatment for now hit my mum spoke to a specialist yesterday who mentionnés trying to shrink the tumour in the brain... we’ve not been given any timescale so I’m terrified to hear my dad will collapse anytime soon. We are going back in 3 weeks and I pray he keeps well until then.. 

stay strong and keep me updated 

Sonia 

update today. My dad will be having an operation in a about 10 days to remove tumours otherwise he will end up paralyased on one side. I suppose my question is has anyone had a similar operation? So I know what to expect...I am very scared as it seems like such heavy surgery

Hi all

the tumours have been removed and all if it according to the neurosurgeon. My dad is weak but doing fine. Now waiting for biopsy results from lung to know what to do next 

anyone who’s had similar experiences?

thanks 

hello all

9 weeks after diagnosis, dad is home but weak. He says he is not suffering but hes has lost weight and we can see decline. He is taking anti-epilespy tablets and corticoids daily. He is starting radiotherapy of the head first followed by raditherapy of the lung next week. they want to do a scan of his head first on Monday. Anyone who has lived similar experirences? doctors are not given us a prognosis so hard. 

Hello all

4 months after diagnosis and craniotomy to remove one big tumour and 10 sessions of radiotherapy to attack the smaller tumour, my dad is hemiplegic to the left side and is in palliative care and has been for 4 weeks. He’s sleeping a lot of the day and hardly eats and has morphine and other things pumped into him. He’s brrn down morally for a while but now he’s sleeping for a lot of the time. The doctors are not giving us an idea of how long but I guess it’s the end..: it’s very hard to watch, live through and I wish I could do more. Keep fighting everyone and take care