Hi jen2

I hope you receive a response from someone who has experience of the same cancer soon.

You have done the right thing by putting a clear title on your post, so anyone looking to talk to others with LPC lymphoma will find you.

In the meantime, I wonder whether it would help to tell us a little bit about yourself and how you are getting on?

Welcome to Cancer Chat.

Best wishes

Jane

Hi Jane, I was hoping to find someone who has the same cancer as me. I think it's a rare one that usually affects people a bit older than me. I'm sixty. Getting tired easily, I understand that there is no cure, however it is treated as many times as necessary. Regards Jennifer

Hi Jennifer

I hope you are feeling okay today.

You have more luck on this site which also has a forum.

Best wishes to you,

Jane

Yes....I have LPC Lymphoma. Had it for over twenty years. Eleven years from diagnosis to treatment and  eleven to twelve years waiting for the next round of chemo'......don't need it yet.....might get away with it!

chrisroperdot.

Sorry, I only just found your message.....haven't been paying attention!

I'm 73, known about my LPC Lymphoma for about 22 years now, although it was, at first, misdiagnosed as chronic lymphocytic leukemia. It was 11 years before I needed chaemo' and its been 11 years since then. Twenty odd years ago I was told you can have LPC Lymphoma long enough to die of something else!! I found that amusing....but that's me.