Lost my mum and best friend

Lost my mum on the 10th aug to lung cancer she waa 76 years old but you would never have known it. She was so young for her age and never smoked for 50 years and ate healthy and still worked 3 days a week. She was told she had a tumour at the top of her lung where they could not operate as it was to close to her broncial branch but not to worry they had a plan to give her 4 intence weeks of chemo and radiotherapy and were going for a cure. We were so releived. My mum changed the day she found out she had cancer. It was like she got the biggesr fright of her life. But we kept trying to convince her she was going to beat it. Me and my husband went to every appointment and scan she had up to her treatment. My husband waa good at taking in all the medical jargon aa he worked in that industry and him and my mum had a special bond. She listened to him as he was very clever. So every app was 4 of us in the room with my husband asking all the questions. My dad was really quiet through it all as he was obviously scared. But my husband told it as it was that the outlook was good and they were going for a cure. We then had to come out and pass the news onto my big brother and then sister.

She did the 4 weeks intence treatment as l don't know how many times she said l just want to live. I had put another 15 years on both of them before l would think anything would go wrong as they were the perfect couple. Fit healthy and had no illness up to this point when my mum got a cough that neverwent away.

 I can't explain how l feel. Sad, alone, in pain, abandoned and guilty. I was brought up the youngest of 3 and am 44 years old now and my relationship with my mum and dad was brilliant. We even went holidays together. My sister was close to them to. And although me and my sister wwre close and we all met up on a saturday. My brother was not like us he had money and a house in Florida and posh friends so he was not really part of our life. But she was a huge part in our lifes. She was the head of the family she loved to laugh and was so social going on trips with her friends and shows with my sister but she was alway there laughing and if l was upset she waa there or if  l was ill my mum was always my go to. We would text or phone everynight where as my dad was quiet he was also a great dad. So gentle and would do anything for you.

But this happened and my brother soon became involved. We would take turns to drive mum in to the camcer hospital as it was far away and my dad was to nervous to drive outside the town he stayed in.  He would take her in on a monday. And l would pick her up a friday and we would each take a night visiting and my sister would do a night visiting. 

At that time l thought my sister waa not doing enough to help mum. I was angry that she was never there and had to be forced to go visit. But looking back it was my sisters way of coping pretending it waa not happening

The treatmemt passed and she has a scan and a few follow up appointments but was told all that waa left was scar tissue. Of course she was so ill from the treatment plus took a reaction to one of her anti sickness tablets. For weeks she drove us nuts saying her legs were sore she could not stop moving her legs it affectted us so much that at one point l though she had lost her mind. Again me my dad and husband ended up in a&e in the hospital to be sent away with nothing wrong. We new there was something she would not sleep or let my dad sleep and eventually this woman decided ot was a side affect from a tablet.. they were stopped and the leg thing stopped. So it was a case of her recovering now. But she was never the same. She was tired  all the time and hardly ate. She sat on the couch for about 4 months suffering anxiety she cried a lot and we always said why are you crying but she would just say l don't know l  scared. She developed a sore shoulder and kneck but we thought it was all in her head. She made dad's life so hard for months crying and being down. She was very needy. She constantly wanted me and my husband in. But when we did go in she would end up crying. My husband was convinced that she had bad anxiety  so we took her to doctors and they put her on anti depressants and gave her lorazipaine. Which my dad was reluctant to give her as they just knocked her out. She had a low tollerance to any benzo. Weeks passes and l actually got  angry at her aa it was going on and on and my dad waa at his wits end so l tried to scare her into being ok by saying you are gonna kill dad with this nonsence he will end up having a heart attack and my brother took the same approach. I threatened to stop coming in aa much but it never worked. We noticed she started forgeting things and was so caught up in her shoulder and kneck she could not think of anything else. Then she went to doctors because of this lump she had on her kneck and they said she had a blood clot and was sent straight down to hospital. The next doctor app me and my husband went to again and the doctor mentioned lymth nodes. I just looked at my husband and new right away she had cancer and it had went metestatic. In the weeks after that we found out it was everywhere and there was no cure it was just a matter of time. My mum must have new inside that she had it as for the year she got out of the treatment it was wasted with her sittting on couch filled with anxiety that she still had it and was right all along. 3 doctors told her she was fine but my mum.new herself she was not. I will never forgive them for not testing her more..

Now she has gone she spent her last 2 months in St Andrews hospice who l can't praise enough. .

But now l am lost. I want to phone her so much l can't take in the fact she is gone and what hurts more is how lonely and sad my dad is. And l cant bring myself to go to there house and he needs us so much but l am so consumed by grief l can't. I think l have went days without leaving the house or washing my hair. I am in a bubble or a dream that l am gonna wake from and mum will be back. I have lost all my strenth. I just don't know what l am meant to do anymore. I would do anything to get my mum back as my world is empty without her and l am hurting so much for my dad..

I never thought l would not cope without her but l am not and don't know what to do. My sister is much the same as me and my husband is great at trying to help but this is something l am going through in my own mind. I just want the hurt and pain to stop for us all

  • Welcome to our forum, Laura.

    I'm so sorry to hear about your mum, on behalf of all the team at Cancer Chat, please accept our sincere condolences.

    There is not much I can say that will ease your pain but do know we are here for you whenever you need a chat. Also, once you feel ready, there is some information coping with grief (here) that I hope might help a little.

    We're thinking of you at this difficult time.

    Warm wishes,

    Renata, Cancer Chat Moderator

  • Hay Laura ... I felt the same when I lost my mum ... like you I'm the youngest of three ... and my sister was like your bro , as she didn't see mum much and has felt guilt by not going there ... but there's so many who think if they shut it out it will go away and they will always be there , then when they go , the ones who do that are left wth knowing they will never get the chance of ever seeing their mum / dad again and my sister will feel like that forever ... 

    my mum went suddenly with heart attack and l never got to day good bye ... you got time with your mum but it must have been harder for you to see her so scared ... mum was my best bud , like you she was my pillow when l cryed , laughed with me in good times and hugged me when sad ... she would phone me up just to sing "I just called to say I love you ". 

    What helped me was one day I imagined she was in the room and knew it would brake her heart to see me so sad ... she loved life and was full of laughter ... I knew if she saw me smile and having fun with my sons (whom she adored) she would look down and smile ...think your mum sounds a little like that too .. 

    so I wanted to make her proud ... found a little clipping in her things that said she would never leave , she'd just be waiting for us to be to gether again ... l feel her around me now , since my cancer journey started ,  if ever you want to chat more you can private message me and we can talk about our amazing mums ..

    feeling anry / sad / alone and lost is normal so I'm sending a big hug ... look after your heart ... big hug Chrisie x

  • Thanks so much l know l am not the only person to go through this and so many people feel like me. I had no idea how hard this would hit me or my sister who is suffering as much as l am. I went in to see my dad tonight and we ended up crying again as he said he gets up and just does things to fill the day. He feels so lost and said don't stop coming to see me as its so hard for him at night sitting there without her. And l think it helped a lot us going in and sitting with him just talking about old times. When l first went in l said to him l am so sorry l have not been here as much as l should have even though before she died l was there more than anyone as l felt l had a purpose to help her get better. I was always the one there at appointments and drove them to every hospital she needed to go to as they were trying to get a biopsy and the 1st never worked so they tried a diffrent approach still never found out what type of cancer it was but they were guessing non small cell lung cancer and thats what they treated her for it turns out it was that type as when it came back they managed to get a biopsy from her kneck bye then it was to late anyway and the week after she went into hospital and never came home. Her calcium levels were all over the place and they were treating her for that. In the local hospital. But a doctor told us it could be 2 weeks she had left and was not getting pallative care that she needed. So l did everything l could to get her into a hospice and within 3 days she had been moved. Felt so much better she was in a place that was for pallative care and everyone was so nice. We new that one lung had collapsed and the other was filling with fluid. By this point she had no appetite at all and they told us not to force her to eat. She could hardly swallow so her medicine went into a pump that saved her trying to swallow anything. The last few days were the hardest aa she lost her mind a lot and was talking a lot of nonsence. She sometimes l think could not see who was there but me and my sister always cleaned her eyes as they were stuck togetger and would always say love you and she would always say it back. Until we got the call to say she has got worse and it was almost time. Me and my husband were first there and she had changed position into the fetal position and she was totally gone. She kept putting her hand out but it was not to hold ours it was like she had took a stroke. We were all there for 2 days this lasted and at one point we went home for a break while my dad stayed and she died when we were all gone. She drowned in fluid. I am glad in a way l never saw it and my dad said he was glad none of us was there. My mums gone l have to realise that and my dad said l should not regret anything as l did my best. I just feel l should be there more for him. My brother went to america about 2 weeks after she died which left me and my sister to help dad and both of us are falling apart. My dad has a friend who goes in everyday and has been a godsend....a real friend and l thanked him by giving him a card with money to go a meal with his wife as if it was not for him l dont know how dad would have coped. I tried to explain to dad tonight that l felt empty and some days l could not leave the house. He said your mum would not want you to give up. Thats what keeps him going he said but he feels lost. They had been together more than 60 years. God this is so hard. I feel numb and dont know what l am meant to do. I would do anything for a message from mum to say she was ok. But that wont happen. I hope in time this feeling of darkness and missing part of my life gets better. I just want my family back the way it was but thats never gonna happen. 

    Thanks for the welcome

    Laura

  • To Chriss

    I have added you as a friend. I just stumbled across this forum last night so forgive me if l don't know what l am doing. I am so sorry you are going through the same as me and l just read your message again.  I just feel so down everytime l get out my bed. And to make matters worse l developed ostioarthritis 2 years ago and have been of my work as l.have had 2 new hips and a knee replacement and an ankle fusion. I have been needing my other knee done since mum got ill but it became not important l would just suffer the pain until everything with my mum was over. Now it is l jave to get it done or l will lose my job and the bupa l get as  a benifit. I go see the consultant next week. I don't know if its a good or bad thing as l have so much time on my hands to think about mum. I have no job to rush back to for a few months even then l can only manage 3 days because of it. But it became not important when mum was ill even though it took over my life pretty much. 

    Laura x