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Looking for support (breast cancer diagnosis)

8 Oct 2021 15:35

Hello everyone,

I just need to talk and I hope I can do it here. I've been reading your posts all morning and they've been a real comfort. 
in the space of one week I have gone from happy and carefree to having a breast cancer diagnosis. I think I'm still in shock.
 

I found a small lump last week, went to the doc, who wasn't hugely concerned but referred me to the breast clinic. Had a appointment this morning (a cancellation) and saw a consultant who had a feel and wasn't too concerned either and was sure it was benign. I had tears of relief in my eyes. Had mammogram and ultrasound then was told by the radiologist that I'd need a biopsy and the next thing I knew they were looking at me sympathetically and talking about cancer support nurses and saying what a shock this must be.
 

Went back to the consultant, who was very surprised but apologised for his earlier remarks and started talking about possible treatment and introducted me to a cancer support nurse. I can only assume that the radiologist is correct and I do indeed have BC even though I have 10 days to wait for the biopsy results. The tumour is small and my lymph nodes seem ok and a lumpectomy should suffice but I still feel in total shock and denial.

Please could I have a virtual hug and some words of reassurance? Everyone seems so supportive here.

JJ
 

Looking for support (breast cancer diagnosis)

8 Oct 2021 16:16 in response to JJ73

Diagnosis can take a while and the wait is aweful. When you go back they will have all the results they need to give you a fairly definitive treatment plan. They will also be able to give you a provisional date for surgery so you can start planning. 
The biopsy will give them a provisional diagnosis, the type of cancer, whether it is hormone and/or herc positive. The size of the lesion and what grade it is. They will be unable to stage it until you have the tumour removed. 
The biopsy may indicate a benign tumour, although radiologists are pretty good at spotting cancer using mammogram and US. 
Having just gone through the process I decided to prepare for the worst, anything else would be a bonus. This meant I was able to take in most of the information I was given and ask questions. 
I was diagnosed with a 28mm grade 2 ductal carcinoma which was ER+. It is treatable. They won't stage it until all the biopsies are back next week. I am a week on from surgery but it is no longer inside me, part of it is in California being oncotested the rest along with 4sentinal lymph nodes is 12 miles away in the path lab. There may be cells left but I will be having radiotherapy in a few weeks to blast them. Maybe chemo ahead of that if oncotest shows a high percentage of genes present in the tumour.

I know a lot of women who have had breast cancer, some with secondary cancer . The majority have survived and even those that have been given a terminal diagnosis have carried on living for far longer than they hoped. My sister is one of them, she will celebrate 20 yrs survival next year and has remained cancer free. Her cancer was more aggressive and triple negative so it gives me hope. I have also got to keep my boob, my sister didn't and chemo robbed her of the ability to have a family. 
I am a glass half full person so whatever the future brings what will be will be.

Hood luck with your next appointment, relax for now you cannot change things but you can carry on with life until then. 

Looking for support (breast cancer diagnosis)

8 Oct 2021 16:32 in response to Angrymum

Thank you so much for replying Angrymum and for your words of wisdom. I'm sorry you're going through this too, but glad it's treatable for you. I just want to get on with doing whatever needs done - it's hell waiting for the results, even though I pretty much know what they will be. I'm trying to remain positive and focus on good news stories. I have 2 kids and want to be there for them for as long as I possibly can! I hope you have a speedy recovery from your surgery and hope all goes well for you.

Looking for support (breast cancer diagnosis)

8 Oct 2021 23:42 in response to JJ73

Breast cancer is very survivable my friend is 24 yrs post mastectomy, she's fine. 
Take any questions you have  with you written down so you don't forget about them. 
The clinic are very good and able to help you come to terms with everything.  
 

Susie

Looking for support (breast cancer diagnosis)

9 Oct 2021 07:22 in response to Alfieisastar

Thank you so much Susie @Alfieisastar ‍ I really appreciate you taking the time to comment. This is the sort of thing I need to hear right now. The thought of possibly leaving my kids behind is the worst thing about this whole situation. Xx

Looking for support (breast cancer diagnosis)

9 Oct 2021 09:11 in response to JJ73

Morning JJ, I thought I'd replied to this, but I seem to have lost it.  I'm going to post the below on another feed, but wondered if it might help you - you're not alone. Mickey

So I’ve my initial diagnosis after speaking to the breast care nurse yesterday because it was all getting just too much.  She was lovely and is going to see me after my stereotactic biopsy on Tuesday morning (12/10). My lump is mucinous cancer (which I’d never heard of), but apparently is the least aggressive. But I also have a cluster of microcalcifications in a different area of my breast that are DCIS. Also there is a clear width of pre cancer behind it and sides of lump. I will need surgery, but they need the result of my stereotactic biopsy before they can look at my full treatment plan. I am oestrogen receptive positive (score 8/8), which I’m told is very positive. I don’t know if that’s different from HER+? I just know I’ll need anti oestrogen tablets and obviously need to stay off HRT. 

I’m glad I know, I knew it was cancer, but I wasn’t expecting to have a ‘greedy boob’ with more than one.  

Thanks for reading this. Mickey xx

Looking for support (breast cancer diagnosis)

9 Oct 2021 09:18 in response to JJ73

Morning JJ, I thought I'd replied to this, but I seem to have lost it.  I'm going to post the below on another feed, but wondered if it might help you - you're not alone. Mickey x  so I’ve my initial diagnosis after speaking to the breast care nurse yesterday because it was all getting just too much.  She was lovely and is going to see me after my stereotactic biopsy on Tuesday morning (12/10). My lump is mucinous cancer (which I’d never heard of), but apparently is the least aggressive. But I also have a cluster of microcalcifications in a different area of my breast that are DCIS. Also there is a clear width of pre cancer behind it and sides of lump. I will need surgery, but they need the result of my stereotactic biopsy before they can look at my full treatment plan. I am oestrogen receptive positive (score 8/8), which I’m told is very positive. I don’t know if that’s different from HER+? I just know I’ll need anti oestrogen tablets and obviously need to stay off HRT. 

 

I’m glad I know, I knew it was cancer, but I wasn’t expecting to have a ‘greedy boob’ with more than one.  

 

Thanks for reading this. Mickey x

Looking for support (breast cancer diagnosis)

9 Oct 2021 11:56 in response to MickeyM

Hi Mickey, thank you for sharing. I'm still a bit overwhelmed at all the different types and terminology - I had no idea! But I'm glad your cancer is non-aggressive and I really hope all goes well with your next biopsy and you can make a full recovery after surgery. It's scary isn't it, but good to hear from others going through it. Wishing you strength and luck xx

Looking for support (breast cancer diagnosis)

9 Oct 2021 13:14 in response to JJ73

Hi JJ, yes, it's very overwhelming and confusing. Thank you and I'm sending you that virtual hug. We will get through this  scarey time and come out the other side x thinking of you too and let's keep each other posted so those virtual hugs remain in place xx love n hugs Mickey x 

Looking for support (breast cancer diagnosis)

9 Oct 2021 14:13 in response to MickeyM

And hugs back at you! We will totally get through this! Yes, please keep in touch. My next appointment isn't until 19 October so just praying the time doesn't drag too much. Jenny x

Looking for support (breast cancer diagnosis)

9 Oct 2021 16:39 in response to JJ73

Hi Jenny, I won't get my results of Tuesdays biopsy for a few weeks and so we'll support each other through xx trying to keep busy is hard I know, I can't switch off from it - but we've got to try xx more love and virtual hugs Mickey x 

Looking for support (breast cancer diagnosis)

10 Oct 2021 11:08 in response to JJ73

Morning Jenny, just noticed you'd put a separate post on and so I wanted to re-send those virtual hugs xx I would suggest that as you have your BCN's name that you ring her tomorrow and tell her that you are confused and if you really do want to know now, ask her if she can confirm it's cancer as that's how you were led to believe it. Love n hugs Mickey xx 

Looking for support (breast cancer diagnosis)

10 Oct 2021 13:19 in response to MickeyM

Thanks Mickey! I'm freaking out more each day, I think maybe it's starting to sink in and I'm getting totally paranoid and anxious. Yes, I'll call her tomorrow and try to get some answers. Thank you for the virtual hugs, I really need them!
I hope you're doing ok! Xxxx

Looking for support (breast cancer diagnosis)

10 Oct 2021 13:22 in response to JJ73

I think that's a good plan Jenny, totally understandable how you feel. More virtual hugs, I'm going to try and take a nap now, got to try xx 

Looking for support (breast cancer diagnosis)

11 Oct 2021 15:22 in response to MickeyM

Hey Mickey, how are you feeling today? I thought it was days since you posted your last reply to me and it was only yesterday - omg time it's going soooo slowly!!! Just wanted to let you know that I finally got hold of my BCN today and while she couldn't give me much more info, she did confirm there's a 99% chance my lump is cancerous. So that's devastating but at least I'm prepared for the results next week. She also said it was treatable so I'm focusing on that - though with my levels of anxiety I'm already thinking, what if it's spread, what if they're wrong. It's so exhausting! I hope you're doing ok and your appointment goes well tomorrow. At least it's another step forward! I'll be thinking of you. Hugs xx