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Lobular Breast Cancer Diagnosis in 40s

19 May 2019 09:39

I feel utterly distraught. Have been diagnosed with Grade 2 Lobular Breast Cancer. Am terrified and feel all joy has gone from the world particularly as this cancer can (not will) have late recurrence in the future - eight, ten, twelve years into the future. This uncertainty does not suit my personality - I will obsess over it.

My daughter is only 4 and I am terrified of leaving her motherless. 

Next steps: MRI (they think it’s 3.5cm); then either chemo and mastectomy or vice versa - maybe radiotherapy and hormone therapy.

Sorry to be so negative - found out last Thursday. 

 

 

Lobular Breast Cancer Diagnosis in 40s

19 May 2019 09:57 in response to Lara75

Hi lara75 welcome this isn't best place to be, but you'll find lots of people with similar problems there's @Sandra123 ‍ & lots of others hope they will get in touch with you or you can get in touch with them soon, best wishes.

Billy 

Lobular Breast Cancer Diagnosis in 40s

19 May 2019 11:08 in response to Lara75

Hi Lara75

I was in your position towards the end of October last  year when I was diagnosed  with grade 3 triple negative  breast cancer which is one of the hardest types to treat, and a possible  3 year recurrence of it were to return.

When I found out I thought it was a death sentence  but there is so much they can do nowadays  to treat this  disease.

I had never  ending scans and tests and it was decided because of the size of my tumour to do chemotherapy  first.

It wasn't  a pleasant  experience  but it was doable, and I never gave up hope.

It was the thought of my 3 children 4, 5 and 12 that kept me going. The thought of leaving them motherless was unbearable  for  me to think of.

Anyway I had 6 rounds of chemotherapy  and then a few weeks ago I had a bilateral  lumpectomy  and full axillary  node clearance because I had 2 nodes affected and after my 3rd chemo when I had another MRI  a tiny lump was found in my other breast which the mammogram  didn't pick up.

Just try and live from day to day at the moment and be kind to yourself. Think positive and enjoy every day.

I had my follow up on Thursday  and my biopsy results showed that  I'm now cancer free with radiotherapy  just to go in a few weeks possibly  once my wounds have healed.

I suffer with severe  anxiety and so the journey  for me has been very hard and I just broke down  on hearing the words cancer  free. 

You will beat this, every positive thought your way.

Lobular Breast Cancer Diagnosis in 40s

19 May 2019 12:32 in response to Lara75

Hi

i also had lobular, any cancer can have a recurrence. The only problem with lobular is that it’s hard to detect, but yours has been detected and will be treated. You also have a safety net of having MRIs every year so less chance of any future tumours going unnoticed. Lobular tends to take longer to spread to lymph nodes than ductal. Yours is also ER+ so hormone therapy will reduce the chances of recurrence. So I wouldn’t get too hung up on it being lobular.

its only natural you will worry esp. with a young child - who wouldn’t be? 

As others have said, the treatment is doable and you’ll come out the other end, psychologically it may be an idea to ask for help now to manage your fears/anxiety. I know some hospitals run courses but these tend to be at the end of treatment - which, personally, I find is too late - the horse has already bolted and difficult to eradicate fears that have built up over months. Early intervention is key - but maybe that’s just me.

dont be shy in asking your GP for help either, I was given diazepam when I was struggling - it help reset my mind and gave me clarity of thought.

you also have this forum for support - there are superb people on here who are only too willing to help.

take care x

 

Lobular Breast Cancer Diagnosis in 40s

19 May 2019 18:08 in response to Lara75

Hi lara

of course you feel the way you do .... it’s scary news that needs time to accept. 

I too was diagnosed with lobular but also ducal both invasive. That was 1.5 yrs ago. The MRI you are having is standard. They need to get the full picture to ensure they give you the best possible treatment. 

If you have read other posts you will have noticed everyone saying it gets easier on the mind when you have your treatment plan..... it certainly did for me. 

Other pearls of wisdom I was given ( which for me were true)...stop the what ifs ... it’s nothing till it is. Live in the today and deal with the today only. All the angst in the world won’t change a thing it is what it is. I know these can sound flip an easy throw away but... gotta say (for me) they were all true and once I embraced them life became more manageable. 

Its early days for you so be easy on yourself. When you are ready... you can stare this down because you are stronger than you think. 

So... big hugs lass... you can do this ❤️

Lobular Breast Cancer Diagnosis in 40s

21 May 2019 05:32 in response to Billygoat

Thank you.

Lobular Breast Cancer Diagnosis in 40s

21 May 2019 05:34 in response to mumof3angels

Thank you. It was so kind of you to reply.

I hope the radiotherapy goes well!

Lobular Breast Cancer Diagnosis in 40s

21 May 2019 05:37 in response to Sandra123

Sandra 123,

Thank you for replying.

I do know I have inner strength really, I suppose I just need to ‘dig in.’

Lobular Breast Cancer Diagnosis in 40s

21 May 2019 05:41 in response to Magpiemaggie

MagpieMaggie,

A genuine heartfelt thanks for replying so quickly. I have been to the doctors who has currently prescribed me sleeping tablets, not SRIs. She said, “I am having a normal reaction to devastating news.” So...I think I’ll go back, if and when, necessary. Not scared to ask for help.

MRI today. Wish me luck. 

Lobular Breast Cancer Diagnosis in 40s

21 May 2019 10:18 in response to Lara75

Good luck for today. remember they are not doing this because they think something else is there they are just providing you the best of care by ensuring that there is not. ❤️

Lobular Breast Cancer Diagnosis in 40s

21 May 2019 11:48 in response to Lara75

Hi Lara

glad to be of some help. It’s good that you’re getting the MRI early, mine was only done after my operation as the invasive cancer came as a surprise to them- so at least they are getting the process right in your case.

good luck with the mri results - the waiting can be awful but helpful to keep yourself busy while waiting.

Would be great if you kept us informed

take care x

Lobular Breast Cancer Diagnosis in 40s

21 May 2019 19:46 in response to Sandra123

Well it was definitely a weird experience. I like the way you looked at it - we’ll soon see and then I can get my treatment plan.

Lobular Breast Cancer Diagnosis in 40s

21 May 2019 19:48 in response to Magpiemaggie

MaggieMagpie,

I will definitely keep you posted.

Lobular Breast Cancer Diagnosis in 40s

22 May 2019 13:48 in response to Lara75

Hopefully you’ve recovered from the noise of the mri - my ears were ringing for days Happy

Fingers crossed for you x

Lobular Breast Cancer Diagnosis in 40s

22 May 2019 20:24 in response to Magpiemaggie

Hi MaggieMagpie,

it goes down as one of the loudest and weirdest experience in my life. Click click click...