Living with terminal Bile Duct cancer

hi everyone in dec2016 i was diagnosed with liver cancer 14 days later i had a resection where they removed 2/3 of my liver and gallbladder i was then told at my 6mths visit that they had removed it all and i was cancer free and so on then some 2mths after that i started with the sever itching on my skin where i would rub my feet and toes down to the bone (this did not hurt)as the itching was so intence everywhere else ...well to cut a long story short my mum broke her ankle i didnt like the care she was receiving in the hospital that she was at so i moved into her room to give her 24/7 care all the family did...I was get more unwell every day and  had talk with consultant at my wonderful hospital in oxford and we started on the road to trying to go for a whole liver transplant sadly my mum went into hospital with a broken foot and ended up dying of hospital related Infections IE; septic pneumonia you name it she got it Mum never made it :( by which point i was becoming more ill by the day so they held of till the day after my mums funeral on the 1st december2017 4 days later after loads of tests i was deemed to have terminal bile duct cancer (different from the liver cancer ) again a very rare one like the first one... and because i was so poorly they gave myself 2 weeks to 2 mths max to live...so anyway i came home to die as no chemo or radiotherapy effects the bile duck :( well as you can see i am well past those dates i am 16mths here after my maximum survival i dont know anyone who has this and i have been reading all about this cannabis oil does anyone have any knowledge of using this at all i have been asked by my doctors if I would like to be on the cannabis trials for my pain more so in the evening again anyone had any experience on this front ......even chatting would be helpful xxx

  • Hi there ...

    How lovely to hear someone pushing those boundaries we feel close in on us ... there's quite a few here doing that too ... I am breast cancer lass ... so hope you get someone who can relate to your cancer ... but although there's so many different cancers.. the one thing we have in common is wanting to kick cancers butt ...  so take every day you have as a gift ... do things, just because you can... don't think of it as terminal but that your going to fill every day and make as many memories for loved ones that you can fit it ... 

    On my cancer journey l have this outlook ... something to make me smile every day ... l love listening to mom by Donna taggart  on u tube ... I listen to it every other day ... I think your mum's put in a word for you with the man up there ... I know my mum must have done the same for me ... 

    Sending you a big hug ... Chrissie

  • Hi pjlady and welcome to Cancer Chat.

    I saw you were asking about cannabis oil so I just wanted to stop by to let you know that cannabis oil is not legal in the UK as it contains the mind-altering substance THC and although research is ongoing there is currently not enough reliable evidence to prove that cannabinoids can effectively or safely treat or cure cancer patients as detailed in a very interesting article on our science blog

    These products may be contaminated with harmful substances and can vary in strength. Taking it could potentially interfere with other cancer treatments given to you by a doctor, and carry other side effects and risks as well.

    Hemp, hempseed (or CBD) oil is available to buy in the UK because it has extremely low levels of THC in it so doesn’t have any mind-altering effects but we'd always recommend discussing anything you're thinking of taking with your GP first. 

    Kind regards, 

    Steph, Cancer Chat Moderator

  • Hi would love to chat have been diagnosed with terminal bile duct cancer  would be grateful for any info what did you mean that chemo does not treat bile duct cancer 

     

  • Hi there ...

    I noticed you've answered original thread here .. it was started on 3ed of June... so the original person, I don't think has been on since then ...

    If you start your own thread , you may get others with info answer .. but maybe someone else will pop by..  good luck ..

    Chrissie  ..... 

  • Hi Judith 

    My mum has terminal bile duct cancer too. I don't have much advice but I would love to stay in touch. It's been hard as it's so rare - it's isolating to have a cancer few have heard of. 

  • My mum diagnosed yesterday with bile duct cancer and bone they may as well dug her grave for mum in bits given up crying worrying about leaving us, her death can't sleep eat. What can we do I'm devastated. 

  • VeeTee83, I’ve signed up here just to reply to you as I was browsing through and saw your post and felt compelled to reply. Firstly I’m so so sorry for what you are going through. My own Mum has just be diagnosed with pancreatic cancer and every emotion you are going through I relate to. Secondly do NOT give up, I know it is extremely hard but there is hope. People have gone in to remmison from the worst possible prognosis. Is your Mum able to have surgery? Sending much love and support x

  • Hi, my husband was diagnosed with terminal bile duct cancer in November absolute devastating it’s been a roller coaster since March. He can’t have surgery or radiotherapy so starting chemotherapy in January we are trying to live as normal as possible. I’m trying to be strong and positive we will try anything to keep it at bay, shrink it would be a miracle. Our children have been amazing although they was devastated and we’ve all cried buckets. When we saw the oncologist we asked loads of questions and they was very truthful, I’m not sure I agree with giving someone a time that someone is going to live because it’s like waiting till it happens. I want to spend as much time as possible reaching one goal to another he uses cbd to help with pain and family and friends are very supportive. Hope someone finds a cure for this cancer thoughts are with you x

  • Hello  to, everyone.   The first Post from Allan in the U.K.   Was given the awfull news, Nov.17. Surgery no good, Chemo no good. Go home make the best of things, get your paperwork up to date.  We have done all this, keep busy, keep eating, kept active, good sleep...most of all  be as happy as possible., and don't give up.  I came on to have a moan, blame everyone.However , I have developed  a. severe case of Yellow Jaundice ...My cancer is inoperable, Chemo totally ineffective, however  the Consultant has not    Given up, he is doing a Bile duct Stent on the damaged duct.  If these  guys can keep trying...surely we owe it to them to keep going. I know that I am trying the stiff upper lip, and defiant folded arms. I am 76 on 24Jan and will not submit  easily.    Good Luck to every one of you.    God Bless.  ALLAN.

  • Hi my father in law has this too he was diagnosed last month. How is your. I'm doing?