Hi
I had my kidney removed 3 months ago today 5.5cm tumour in the middle, no spread to lymph node... but the scan showed 3 nodules in my lung.. one of which looks of suspicious origin... the report before the operation suggested that the lymph node was 8 cm and suspicious and thankfully on the biopsy was not cancerous.
I am due another scan on my chest on the 2cnd of september results on the 9th... But the waiting this last 4 weeks has driven me insane, ive read every article on the internet some of them many times regarding the nodules, prognosis, diet exercise
you name it ive read it, and even now after all of the articles ive read I am no nearer being able to stop stressing.
my surgeon said by email there will be 3 outcomes . 1. no further treatment just moniter the nodules, 2 vats surgery to remove one nodule or all 3 , which in some cases can be curative and or extent life expectancy, or 3 start on medication sutent etc.
if its case 3 then my prognosisis is 3 to 4 years which is devastating ...
I go to sleep thinking, wake up thinking, all day thinking, it's the uncertainty of it all..
Being told I had kidney cancer was very matter of fact, and it was dealt with within 10 days , the operation went well and I had 2 nights n the hospital, it was removed by key hole, after 3 or 4 days at home I was able to get around well, walking each day
doing light housework, now I am walking, gardening , just went back to the gym recently to do light exercise. but that really knocked me sideways realising that I couldnt do what I did 3 months ago, my strenth is no where near what it was pre op
I emailed my surgeon 3 weeks ago to ask about the best diet that I should eat, but to date I have had no reply...
should i just eat a balanced diet, because you read on some sites its best to avoid dairy products, some say avoid grains, some say avoid bananas , how do I find out what to eat and what to avoid as the information is so conflicting.
I mentioned before that I have two friends , one with advanced melanoma to the lung, neck and brain he is 51 , and on radiation and chemo, and yet he is so up beat,hes been camping last week and this week of to poole campng again
he doesnt talk about his condition , I wish he would as I just want to chat with him. another freind has a bain tumour 90 per cent removed by surgery and she is having radiation thereapy, but at the moment its been delayed as her platelets are low.
again she doesnt say much .. but again she is so upbeat.
I am suffereing from the "poor me Syndrome" unable to talk to anyone, just reading stuff that isnt getting me anywhere at all.
Part of me says it will be what it will be, I have made all my plans, will etc etc sorted out a hospital near me
but its as though at present I feel my life is on "hold" hard to get through each day and counting down the time to the scan on the 2cnd september.
My doctor said its ok to take 2 mg of valium every night to sleeep, which I do, I sleep well, but feel a bit crap when I wake up,
shaky and stressed, I know its a combination of the stress and the valium, I want to sneak out and have a cigarette each morning, but that wears off after about 2 hours of feeling terrible
Its the waiting now thats the hardest and the uncertaintity of it all until the scan results.
It has helped to write down my feelings today and just wondered if anyone else is or has exoerienced these feelings of despair and worry
alanxxx
