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Just received diagnosis.

13 Aug 2019 19:51

  Help please just received diagnosis of ascites tap.  It's come back malignant but they still don't know where cancer is.  I've had MRIscans s on liver abdomen and pelvic area.  Also cut scans and ultasounds

 all have come back inconclusive... What now.its taken 2months of tests.  Ca125 is also high.  Is there anyone else who s had anything like this.  I'm shattered.  Please help


Just received diagnosis.

14 Aug 2019 15:22 in response to Beetle


I am sorry to read about the results of the ascites tap.  I can appreciate that this must be really worrying for you, and it must be especially difficult as they have not yet been able to identify what type of cancer it is.

I imagine the next steps will be to do some further investigations to try and find out where the cancer started.  However, if this continues to prove difficult they may be able to get enough information from the malignant cells in the ascites sample to be able to suggest treatment for you. 

I can appreciate what a difficult situation this must be.  Although it isn't a common occurrence it is not unheard of for cancer sometimes to be difficult to diagnose precisely, so although you may need to wait a little longer for treatment decisions to be made, the medical profession do have experience of dealing with situations like this and what to do for the best

I hope this has been helpful.


Just received diagnosis.

15 Aug 2019 17:29 in response to CRUK Nurse Martin

Thank you Martin.  I am fit and well and have read that there is no cure for malignant  ascites.  I am so frightened... Do you think they will be able to treat this in any way.   They have most of the ascites results in and had a mdt meeting today.  Please give me some words of comfort 

Just received diagnosis.

16 Aug 2019 11:55 in response to Beetle

Hello Beetle and thank you for your post,

Yes, hopefully it can be treated but you will have to wait for the multidisciplinary team (MDT) meeting to find out what the plan for you is.

When the primary cancer (where the cancer started) can be found or even if it can't be found, often treatment can be given. A common way to treat an advanced cancer is with chemotherapy. There may be other treatment options but I am afraid that no one can know what these could be until the decision to treat you has been made and discussed with you. So I hope you find out soon.

Please get back to us if you need any more information or support.  You may find it helpful to talk things through with one of the nurses on our helpline.  The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

Take care,