Just found out I have breast cancer

Hi all,

well today has been a shock to the system to say the least. Been having breast ache for a number of weeks so went to doctors who said she couldn’t feel anything and not to worry yet due to being breast they have to refer. So today I went with my mum ( im 38 yet still need mum) thinking worse case scenario it’s a cyst to be then scanned and had a mammogram then a biopsy in 5 areas and then went into Dr rooms and straight away knew wasn’t good as saw the McMillan nurse. I was told that I have a number of abnormal growths and 90% sure it’s cancer.. both mum and I broke down in tears but they couldn’t give me any more info until next Friday when the biopsy results come in. I am so scared and don’t know what to expect. I’m a single mum to a 5 year old and heads a shed! Any help or advice would be appreciated :-) 

  • Have a good look around the site you can find alot of members with the same problem some easily found some you have to search for, good luck. 

    Billy

    P.s try 'the good & the bad' discussion. 

     

  • I Hi 

    I was diagnosed with breast cancer a week ago. I’m 35 mum of two beautiful children who are my world. I took my mum along too even though I also thought it would just be a cyst. I just broke down hearing the news. I’m absolutely devastated and can’t handle this at all. My children need me and I can’t bear the thought of not watching them grow up. My son is 10 and the sweetest boy, he was distraught when I told him and he said if I die he’d kill himself. My heart is broken.

    Ive been told that chemo starts on Wednesday, I’m petrified of what’s coming. I don’t know who to talk to or how to function normally with this going on. I can’t think about anything else.

    sorry to waffle on about me but I saw your message and thought how similar we probably feel.

    ive never posted online before so not sure if this will even work.

    id tell you to think positively like everyone is telling me but it’s impossible at the moment.

    Cant believe this is real. I pray for successful outcomes for us both but right now I’m just so scared of what’s to come.

    lots of love 

    C xx

  • I was diagnosed this week... so feel the same, I have a 14 month old son and I am so scared.

    Have they given you any idea about grade/size  etc... and how curable it is? I am finding the more information I get, although a lot of it has been awful to hear the more I am feeling that I can work out what I’m dealing with?

    for example do you know why you are having chemo before any surgery? 

    I have a breast nurse I can speak to.. do you? She’s been so helpful and has literally answered any question I have however odd it’s been... the ask the nurses forum on here  is also really helpful 

    I know how you both feel....my husband said to me this morning we need to try and enjoy any moment of ‘normality’ we have before things like treatment start and in a way I guess he’s right?

    Stay strong ladies and let’s all keep in touch on this thread? Seems like we are similar ages ( I am 37)

    xx

     

  • Hi Jsy girl,

    thank you for ur reply and I’m so sorry to hear ur news. Did they tell you the level and what type it was? I have looked through all the different types and was just boggled. 

    Its good that ur treatment is starting so quickly though isn’t it, guessing chemo was the best option given to you?   I canDo the docs go through the options then and you can choose or did they recommend this as best option? Will you be able to go home straight after ? Just thinking least you can be around for your son albeit not 100% .

    And yes, that’s all I’m being told at the moment till results come in but easier said then done isn’t it. I can’t even think about house work and stuff yet know I need to get stuff done. Doesn’t help as I’ve woken if agony with all the biopsy’s yesterday and very little sleep.

    im scared too and guess we just need to be thankful that they have found them and now it’s just a case of getting rid.. 

    If you need to have a moan or just want a chat then I’m here to listen.

    Good luck on Wednesday, hope all goes as smoothly as possible and let me know if you can. 

    Big hugs,

    Claire xx 

  • Hi pepesmama

    oh my, this is more common then I thought tbh. So when you were diagnosed is that when you get told exactly what your dealing with? Think that’s my problem at mo as he said 90% it’s BC but now to wait till Friday for full info. With all the diff types and levels I’m just confusing myself even more. I have very little patience as you can tell ha ha 

    Have you got a plan of action now then ? What’s your plan? My head is just saying cut them both off right now and then be done with but apparently that’s the last option ?? 

    The McMillan nurse said they are there for support and she will be there for my results on Friday. Thankfully got my friend coming with me and she has already got a little book and questions put in ready along with her being my ears as I just know I’m not going t take it all in.. 6 days to go and counting then least I’ll have a plan of action. 

    The nurse also said said they can support me when telling my daughter so she understands and doesn’t get scared. 

    Its going to be a tough time ahead for all 3 of us and defo keep in touch as speaking to friends and family is so hard as you feel like you need to reassure them even though it’s hapoening to you which is bizarre isn’t it!

    big hugs and hope to hear from you soon

    claire xx 

  • Hi Claire

    They told me at the biopsy what they know so far.. there are some further tests I need to have still such as a mammogram ( I had an ultrasound and biopsy) to see if it’s anywhere else in the breast. I am also waiting on the results of further her2 test as my tumour came back as borderline. The full way they described it is high nuclear grade dcis with a localised area of invasive grade 2... at the moment they said my lesion is 13mm but that’s a bit of a guess until they have a clearer image. 

    I have an idea of what treatment is likely but they need more results before they decide... if it’s only in one area I think it will be a lumpectomy, if it’s in more or in my Lymph’s then more than that. My tumour is oestrogen and progesterone receptor positive so I know I will at some point have hormone treatment.  IF you do have cancer You will be totally guided about what’s best for you and everyone is dieddene 

    In all of it all I have said is I don’t want Chemo but I think I will be reccomended it

    I know they have said to you they think it’s cancer.. but they can’t really know until they have the results of the biopsy.. there are a few ladies on here who have been told ‘highly suspicious’ and it’s come back as benign. 

    I know it’s hard and I have  not taken my own advice on this but stay off google. My nurse told me if I must look things up do not look at American sites.. 

    There are some great resources on social media such as Instagram of ladies our age who have been through this and come out the other side... I follow a lady called joandthetribe and she has been so nice to me!

    keep talking to us.. it’s best to get it all out I think 

    Emma 

    x

  • Hi Claire

    im sorry to hear tht you most likely have cancer. I’m in the same situation - I had my tests on Thursday and will get the results next Friday. I’ve also been told that it’s most likely to be cancer. It’s the most awful feeling, isn’t it? Fingers crossed for both of us , but even if it’s worse case scenario, we will get through it. 

    Andrea xxx

  • Hi Claire

    Thanls so much for coming back to me. Initially they thought it was 13mm but after more scans they think it’s 25mm and also in lymph nodes deep in my chest. They originally wanted to get the mastectomy done but they said these lymph nodes are too close to my vital organs to be removed so they’re starting straight away with chemo. They said they’d closely monitor me to see how I respond then might switch quickly back to surgery. Ithey said I’ve been given grade 3. I don’t really know what all this means but I think it’s bad. Everyone says I’ll beat this but the news just keeps getting worse. I can barely speak today and feel like my heart or mind (or both) are going to explode with the mental pain of all this. I can’t believe this is happening to me. I’m just a girl from Jersey, working mum of two with a simple little happy life, I don’t ask for much, can’t help feeling how unfair this all feels. I don’t like attention either and I feel like suddenly, it’s all on me.

    Again, sorry to waffle, just home after spending the day like a statue on my mums sofa watching my beautiful little family play in the garden, devastated that I probably won’t be here to watch them play in future.

    Im so down, I know there’ll be people on here who have managed to adjust and reach that positive place but I am nowhere near there and feel like I need serious psychological help or my body is just going to give up, this is complete torture.

    What grade are you? I’m confused by grade or stage?! I also don’t feel I understand this lymph node situation but doesn’t sound good. Oh god I’m petrified.

    All my love and best wishes

    Catherine xx

  • Hi everyone, 

    Sorry for your news :( 

    I am 37 and was told last week I have her-2 positive breast cancer, has been the most awful,strangest few weeks. Had the biopsies, mammogram and ultrasounds first then waited just over a week, waiting was just awful so know how you feel, all the waiting is the worst, I have a body and head scan on Monday to check if it has spread then start chemo in 2-3 weeks , so scared ! Also have two little children , don't know how to tell them and I feel I can't focus properly on them when all I want to do is enjoy thr time ! 

    Have any of you told schools, friends etc ! Don't know what to say xxxx

  • Catherine, 

    Feel the same as you and have similar diagnosis :((((((