Hard times just been diagnosed with high grade ewing sarcoma. Really scared anybody else had ewing sarcoma.back to see oncology next week for treatment plan. The sooner the better i say.
I just wanted to stop by and welcome you to Cancer Chat Sarah.m123 although I'm so sorry to hear you have been diagnosed with Ewing sarcoma.
Hopefully some of our members will soon be here to share their experiences and offer their support but until then feel free to browse our forum and join the conversation.
If you feel like talking to one of our cancer nurses might help please know they're available on this telephone number 0808 800 4040, Monday - Friday between 9a.m - 5p.m.
I'm was diagnosed recently with aggressive Myxofibrosarcoma, I'm 40, what's your age?. Still getting my head around it all, had surgery now waiting for Radiotherapy. How are you feeling? I'm lost, feel like a different person, It's weird
Hi sarah , I haven't got Ewing sarcoma but have recently been diagnosed with diffuse b cell lymphoma. It is very scary waiting and wondering what is going to happen. It is hard waiting but once they sort your treatment plan every thing will happen quickly, it has for me. I start chemo next week and been in and out for tests this week.It does seem to be a waiting game to start with and very scary so if you need to chat let me know. Hope all goes well for you and you have support from family and friends. JOANNE
Hi joanne,
Im going in for tests next week then starting chemo 1 june in christies manchester. Not looking forward the the travelling as will take 2 1/2 hrs each way to get there.dr says treatment will take a year. I just hope that im strong enough to fight this long way ahead. Take care keep in touch . sarah x
Hi im also 40 i have ewing sarcoma of the soft tissue. I also feel like my world has just ended.im having tests this week then starting chemo 1 june. We all have to stay strong together. Keep in touch long way ahead of us all. Sarah x
Hi Sarah Oow that's alot of travelling isn't it. I'm pretty lucky the furthest I go is 40min drive. I'm sure your strong enough, it's times like this that show us how strong we are. We're going to have bad times unfortunately but we must stay strong we will beat this!!! Good luck next week keep in touch as to how your going . Take care, joanne x
Hi Sarah I feel lucky really not having Chemo, caught mine early it was very localised. Had surgery, took Quad muscle away from inner thigh so Yeh, big op. I feel confused on how to feel really, I feel like numb and don't know myself. I'm a nurse, its even put me off going back to nursing as I don't want to be surrounded by ill people anymore. Stay strong its early days, take each day as it comes!. Keep in touch.
Emma
We never know what's around the corner do we but I just take each day as comes and try to be positive once my chemo starts might all change but I'm determined to get through this. Hope your ok and have lots of support
Hi Sarah, I'm really sorry to hear of your diagnosis. I had a Ewings Osteo-sarcoma of the right tibia at the age of 10, which resulted in an above knee amputation. I am now 37 by the way :) x
