Just been diagnosed with cancer and scared

Hi all.  I don't normally post to forums but my family have all fallen asleep and I am feeling scared. I have one little boy aged 5 and have recently given birth to another gorgeous boy who is coming up to 5 months. After the birth of my second boy, I had trouble latching him onto my breasts for breastfeeding (he has posterior tongue tie). With much struggling I managed to get him feeding from my left side but he was always reluctant to feed from my right. I persevered but when he was 5 weeks I had mastisis in my right side. After antibiotics for 3 weeks and much going back and forth to the doctors, I was eventually referred to the  ready clinic for further tests. After an ultrasound they found nothing apart from a breastfeeding related abcess. I was kept in the antibiotics and told that it would eventually clear up. I was however booked in for a follow up appointment and thank God I was. I had another ultrasound and this again showed nothing but a normal breastfeeding abcess. The consultant however wanted to double check just to be sure and did a core biopsy. I was told that this was just as a precaution and that they were very confident that it wouldn't show anything nasty. They were wrong. I have invasive lobullar cancer. The consultants were surprised and myself and my husband devastated. I have had a mammogram and a biopsy of my lymph node from under my right armpit. I have been told they are looking to start chemotherapy straight away and it has been recommended that I have a double mastectomy. I don't know what grade it is, I don't know how advanced it is. I am just scared. Seriously scared. Do I tell my eldest boy? How do I mentally fight this? WI'll the treatment work? I thought I was scared of flying but now I have discovered real fear.

Kat

  • Hi,

    So sorry to hear your news.

    I am into the second week of my treatment for a cancer at the base of my tounge. My diagnosos came about a bit like yours. I had a persistant sore throat and nothing could be found for ages until a last MRI scan just in case.

    I decided to tell all my  kids, nieces and grandson ages from 7 upwards because they can give you great comfort and support, they are more knowing than we think. Try to put it language that your son will relate to, difficult but doable.

     

    What is working for me is the belief that my treatment is my friend and everyday my cancer gets weaker whle I grow stronger.

    Please allow your emotions a free rein, after your news it is perfectly ok to feel the way you do. Take advantage of the support networks out there. I contacted the MacMillan nurses and they were great. Most of all talk to people, don't bottle it up. Please fully involve your family, this is theirs too. 

    Many people will not know what to say to you when you tell them, this is not because they don't care its because they just don't know how to react.

    Best wishes

    I hope that helped a bit. You are not alone.

    Good Luck

     

    Nick

  • Thanks Nick.  

    I think I'll contact macmillan tomorrow. It's all a bit of an upheaval at the minute.  My parents live away and my dad is battling skin cancer at the minute. They're going to travel to come an stay with me for a bit which is comforting and also will be able to help out a bit with my eldest and my baby. I have taken your advice and am going to just keep talking about it. I think I've told most friends and family now. I'm still unsure of what to say to my eldest. He's 5years old. He knows that mummy has a "poorly booby" already but I don't know if I should tell him more than that just yet. 

    I hope your treatment is going well! What are you having? 

    Kind regards, 

    Kat

  • Hi KBomb, welcome to Cancer Chat. I'm really sorry to hear about your breast cancer diagnosis.

    I noticed you were talking to NickW60 about what to say to your 5-year-old, and wondered if you'd be interested in reading a kids' picture book with him called Mummy's Lump? It's produced by the charity Breast Cancer Care, and you can get a free copy online here, if you download the PDF: www.breastcancercare.org.uk/.../mummys-lump-bcc164 - you can also download a free version from the iTunes store. 

    Wishing you all the best with your upcoming treatment,

    Helen

    Cancer Chat Moderator 

  • Hi. I know how scary it feels and your first concern is your family. I was diagnosed 8 years with cancer in my throat and tonsils and left side lymph nodes. I had chemo radio and a radical neck dissection. 8 years have passed but been 're diagnosed with it now on my tongue.. So believe me I know it's scary. Last time and this time but I looked at it as a battle and stayed as positive as I could and will do again. It's not my time or your time to go. With your family around you it's all you need. Talk about it if you can with your Husband ...wife in my case. I wouldn't be here without them. It's a hard process but necessary. Keep pushing forward. My op is in a few weeks with part if my tongue being removed and reconstructed with muscle from arm veins arteries veins from my neck. 14 hours it takes so not looking forward to it but I will get through it. I have to. You will have your ok days and low days but keep going just keep going. I do it for my family and my granddaughter. Stay strong.

  • Oooh! Thanks for that Helen! Will defintely get a copy. He's an avid reader! Thank you for this! X
  • Thank you silverfox! I'm going to keep positive and I do like the idea of seeing it as fighting a battle! Or perhaps in your case it's fighting a war made up of several battles! We can do this right? Actually I'll rephrase that- WE WILL DO THIS!!!! X

  • Hi Kat

    Well done for the positive frame of mind.

    I am having daily RT and weekly Chemo. Starting to get a bit sore physically but I am so up for this mentally it seems a bit unreal.

    Every day  I start off by listening to " I made it through the Rain" by Manilo and read a letter I wrote to my Cancer which I posted on the Living with Cancer section titled "It wont beat me"

    Every day it gets weaker while I get stronger.

    Good Luck Kat

    God Bless

    Nick W