Hi there rich ... welcome to our little chat room ... I think the unknown is always scary so l just hope you have someone close who can help you through ... even the strongest of us get scared sometimes .. 

I can't help you with what to expect as I'm a breast cancer lady, so not much help I'm afraid ... but McMillan have a free phone help line you can ring and they are qualified in all cancers .. hopefully they can answer your question ... good luck on your next round of treatment .. Chrissie x

Welcome to Cancer Chat Rich.

I'm sorry to hear you've been diagnosed with AML but I'm glad to hear treatment is available to you and I hope your chemo has been going well so far.

I have included some general information we have on our website about AML for you to have a look at but I also wanted to let you know that we have a few members on the forum - [@Ibelieveinmiracles]‍, [@Cyash25]‍ and [@hippychick67]‍ - that have experience of AML due to friends or family having this diagnosis and now that I've tagged them in this post they will hopefully pop by when they can to offer their support and share their experiences with you.

Kind regards, 

Steph, Cancer Chat Moderator

I know am late to this post but my mom was also diagnosed with AML, shocking and traumatizing for me as a family member. She went through 3 Chemos and a Autogenous bone marow transplant. she is now in remission. Please tell me about your journey to treatment. Hold on to God, it helps spiritually

Hiya
My chemo is via having Azacitidine injections - 10 over 6/7 days plus thioguanine chemo tablets 3 times a week. I am not allowed to have bone-marrow or stem-cell transplants..I am now in remission, BUT I do take precautions. I carry hand gel all the time, wear a nose/mouth mask to protect from germs etc - as my haematologist said to myself and my wife, 'wherever I go, treat everyone as a germ carrier'

I live in Southern Spain and the treatment & after-care is first-class. We take each month as it comes...enjoying life. 

Best wishes
Richard

Wow is there a reason why you were not allowed to have a stemcell/bonemarow transplant.

My mom is 68 and she still went ahaead with the Autogenous Stemcell transplant (which is from her own stemcell, she was her own donor ) unfortunately after 9 months of remission she relapsed. So the doctor is advising for Chemo+another bonemarrow transplant but this time from a donor.

I just feel like Doctors still experement with these kind of things. Iam not comfortable with this idea

I am in a similar situation but have 28 days venetecax added to the 7 day injections monthly. I am well into the second month and start the new round of daily injections on 15january. I think everyone's experience is different I am 81 and the biggest side effect for me Is Diarrhoea and feeling sick and tiredness. The daily trips to hospital are probably more tiring for my 87 year old husband then for me as he drives and  I just sit and let things happen.I have had 2 bone marrow biopsies which are scary but not really painful.

Good luck with the treatment