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Just been diagnosed, BC - triple negative

15 Aug 2019 21:32

Hi there,

I joined the group a couple of weeks ago after my scan and biopsy and found it useful and supportive reading what everyone is going through and their advice whilst we all face the C word!

I've now received my diagnosis and plucked up the courage to say 'HI!' Happy  I'm still reading up on all the booklets i've received. A strange feeling really counting the days down to your appointment like a holiday without the excited feeling and now coming home with loads of booklets and not holiday brochures.  i feel strange that i have a sense of relief but a strange relief as I do have cancer and not the all clear.  Does anyone else have these mixed feelings?

I've been diagnosed with stage 2, grade 3 and triple negative.  Well from my understanding, i'm waiting for the confirmations to all come in the post.  I remember them saying 18 weeks chemo, 5cm tumour, lymph nodes, masectomy, radiotherapy....

I still feel very detached and like they are talking about someone else as i dont feel ill.  I was hoping to be pregnant Sad so feel very sad tonight that is unlikely to happen now with my diagnosis and that i'm 42.

So mixed feelings all around tonight. 

Mich x

 

 

Just been diagnosed, BC - triple negative

16 Aug 2019 08:15 in response to Mich8

HI, yes I have all the same feelings and mixed emotions. I am having my first chemo session today and am terrified. I was supposed to be going in at 8.30am but I got a call yesterday putting my appointment back to 11.30am as they haven't got approval yet even though I have already signed the consent form. I am praying that my chemo doesn't get delayed. 

It is really hard to stay positive but I am really trying. Good luck with everything, have you got a start date for your treatment? I found that the hardest bit, waiting for my appointment and praying nothing gets any worse whilst waiting. 

Just been diagnosed, BC - triple negative

16 Aug 2019 08:47 in response to SueBea

Hi SueBea

 

Urgh I'm not very clever I've just typed a message to you and did something wrong when sending and lost it, doh! I'll blame movement of the train! 

 

Thanks for your reply a d good to know we all have these mixed emotions. At the moment it feels like it's not me a d was someone else they were talking about. As I don't feel ill and haven't had any letters etc. I was diagnosed on Tuesday so early days still. Think they said chemo in about 4 weeks. 

 

Aww sorry your appointment has been moved, I hope they don't keep you waiting too long. Good luck for today, I'll be there soon needing some encouragement.

 

Mich x

Just been diagnosed, BC - triple negative

16 Aug 2019 10:26 in response to Mich8

Hi, I'll let you know how I get on. I'm sure it won't be as bad as I fear. It is frightening feeling well but having cancer. Take care and I'll be back in touch soon

Sue

Just been diagnosed, BC - triple negative

16 Aug 2019 22:54 in response to SueBea

Hi Sue, 

How did it go today? Hope you feeling OK.

I had a nice day at work with colleagues, taking my mind off things. Felt a lot better than yesterday, so like everyone says one step at a time eh. 

Just been diagnosed, BC - triple negative

17 Aug 2019 08:25 in response to Mich8

Hi Mich,

Thank you for asking. Yesterday was a long day, my chemo didn't start until 3pm and I eventually got home at 8pm. Yesterday was ok but I had a bad night with neasea and severe headaches. I came home with loads of meds for sickness so hopefully that will sort out the problem. Having said that, I don't feel too bad otherwise and I have heard that the first week is the worsed and then things  improve.

Everyone in the chemo unit are really lovely and the other patients are really encouraging. You are also given emergency phone numbers so you are never on your own. Be warned, it is really boring being in the hospital for so long so take a book, music or i-pad.

let me know how you get on.

Sue x

Just been diagnosed, BC - triple negative

19 Aug 2019 21:34 in response to SueBea

Hi Sue 

Ah bet you are relieved day 1 is over. That is quite late you got back too! Hope your next episode will be earlier.

Thanks for the recommendations u she a couple of books I've been meaning to read. I've got a note book now too, so I'll make notes to help me get through. 

How was your weekend? Hope you are feeling better. I've got my ct scan on Saturday so one step closer, just waiting on my oncology appointment.

Were you offered clinical trial at all? I've made a note to ask. 

Hope you having a relaxing eve

X

Just been diagnosed, BC - triple negative

20 Aug 2019 10:09 in response to Mich8

Hi  Mich,

I am hoping the worsed is over as I am feeling a bit better today. The neasea and headaches have thankfully eased. 

I wansn't offered any clinical trials, first I've heard of it.

Let me know about your CT scan and oncology appointment. I felt much better once the Chemo started as I felt I was in limbo before not knowing if the cancer was growing. It's not easy but it is doable.   

Look after youeself and just take each day as it comes.

 

Sue x     

 

Just been diagnosed, BC - triple negative

22 Aug 2019 17:45 in response to SueBea

Hi Sue, 

 

How's it going? Are your headaches better? I'm a migraine sufferer and on preventative medication each day to help, so little worried they may get worse with treatment.

My oncology appointment hasn't come through yet but have the scan on Saturday and now I have a bone density scan on Tuesday. Guess I'll hear after these. 

I've heard about clinical trials, so I'll ask. Are you TN too?

Hope u enjoying some of the sunshine ☀ 

Mich x

 

 

Just been diagnosed, BC - triple negative

23 Aug 2019 08:47 in response to Mich8

Hi Mich,

Yep, I am TN too. Over the shock and ready to fight now! You are in the best hands, it's not easy but it is doable. Let me know how you get on at the scan and Oncology appointment.

The headaches have gone, just slight nausea now and I feel drunk all the time even though I haven't had a drink since treatment started.

Sue xx

Just been diagnosed, BC - triple negative

24 Aug 2019 09:44 in response to Mich8

Hi Mich,

Good luck today xx

Just been diagnosed, BC - triple negative

25 Aug 2019 20:56 in response to SueBea

Hi Mitch,

Sorry to hear you are feeling sad with mixed emotions. I too was diagnosed earlier this year with triple negative grade 3 and I’m 35 so fertility was a potential issue also as I have no children yet. I felt very mixed because I was feeling in peak physical fitness at the time of diagnosis and like nothing was wrong with me, yet every time I had to tell someone my news, or someone found out I got really deep messages of concern and it just felt like they were talking about someone else! Even though I’m TN I’ve been taking the zoladex injection every month which shuts your ovaries down. Essentially it’s meant to minimise the impact of damage to your ovaries. I now have 2 weeks of chemo left. The first one was the worst and after 8 weeks it got a lot easier and side effects lessened. Wishing you all the best for your op and treatment ahead x

Just been diagnosed, BC - triple negative

27 Aug 2019 13:27 in response to SueBea

Ah thanks Sue Scan went alright, a lot of sitting around in the lovely dressing gown lol! I'm at hospital now waiting for my bone scan. I've had the radioactive injection now just a couple of hours wait for me to light up ☢️ I'm definitely going to be reading more! 

How you feeling now? It sure is warm eh, I don't usually struggle with the heat but finding I have no energy and tired all the time. I haven't started a treatment yet...

I don't have my oncology appointment, so hopefully hear this week. Been 2 weeks today since I was diagnosed. Strange how these 2 weeks have flown and the 2 before really dragged whilst waiting for results. 

Is your chemo for 18 weeks?

Xx

Just been diagnosed, BC - triple negative

27 Aug 2019 13:36 in response to Rozza

Hey Rozza 

Ah thank you for your advice, yeah sure is a mixed bag of emotions. I said to my husband I feel like a bearer of bad news, as had to tell my great aunt so could find out about family history and she was very sad as she had just lost her friend of 30 years. I know it's better to tell people so they can support you, just feels odd as like you I don't  feel ill just tired.

I'm working still as want to keep going until I know my treatment dates and they have been very good and flexible which helps. 

Ah thanks, I'll ask about that as I was seeing the fertility clinic, so maybe one of the recommendations. 

Glad to hear your chemo is almost over bet you can't wait! Did you also have the bone and ct scans?

Feels strange I'm going to have this long Road ahead of me, but them you hear about so many people like on here that are going through the same then you realise you are not alone

Hope you are well today and enjoying the lovely weather ☀ 

Xx

Just been diagnosed, BC - triple negative

27 Aug 2019 13:51 in response to Mich8

Hi Mich,

I'm having 4 sessions of EC 3 weeks apart and then 4 Paclitaxel sessions 2 weeks apart. I feel a lot better mentally now that the chemo has started. The first week after the tratment I was feeling very sick and had headaches but the second week, I feel loads better. 

My chemo started 5 weeks after being diagnosed and the wait seemed never ending!

Let me know how you get on today, hopefully you won't be kept waiting too long.

Drink loads of water, I was advised to, and it really helps.

We've been dealt a **** hand but we will beat it.

Take care,

 

Sue xx