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Incontinence following prostatectomy

7 May 2019 02:05

I had a prostatectomy 6 weeks ago , catheter removed 4 weeks ago ( 2 weeks after op)

i understand having read all about it , however I cannot see what’s the average for what’s normal , for instance if any of you are pad free? What was your experience after 6 weeks ? I cannot see me being paid free the amount I leak , what was your pad useage at 6 weeks ? What progress can I expect from where I am now ? I don’t allow pads to get really heavy and use approx 2 in the day and change to a fresh pad every night , I leak very little in the night and have never wet a sheet ! I awake twice nightly and go to the loo quite normally, when walking round in the day I am leaking a little constantly and go to the loo regularly to avoid wetting myself , is it possible ,at taking all above into account I will get much better ? Individual peoples experience would be most gratefully received as informative guides are not available only information I already know.

in every other way I feel great and fit , scars from robotic surgery hardly visible! Praying in 2 weeks this operation has got all the dreaded C .

in anticipation !!! 

Refards alan m 

 

Incontinence following prostatectomy

7 May 2019 07:30 in response to Cricket1

Hi cricket you could try telemando he had it done nine or ten years ago he should be able to help. 

Billy 

Incontinence following prostatectomy

7 May 2019 08:13 in response to Cricket1

Hi Cricket1. Welcome to the forum.

I went through this way back in 2010. Here is my timeline for continence recovery:

- For the first weeks following surgery, I was using 1-2 pads during the day, and one pad at night. I think this is similar to your usage.

- After 3 months I returned to work (I was in no hurry) and I was still wearing 1 pad during the day and another at night. 

- Between 3 to 6 months, I stopped using the full size Tena pads during the day and used instead the much smaller and cheaper Always Ultra.  I actually cut these in half and normally half a pad would last during the whole day.  I wore a full size pad at night.

- After 6 months I stopped wearing pads during the day, and after 8-9 months I went on a couple of day trips to London by train.  I still wore pads at night.  

- After a year I stopped wearing pads by day and night. I donated all the pads I had left to my local hospital's urology dept to pass on their patients. 

And some general observations:

- I stopped drinking caffeinated tea, coffee and cola for the first 6 months. 

- During all this time, I always made sure I had spare pads and underpants on me so I could change in case of accidents.  And I did have a couple of minor accidents - sneezing unexpectedly was always a bit hit and miss!  

- The whole process was one of gradual improvements, where I went from 90% continent, to 99.9%, 99.99%, to 99.999%.  I didn't wake up one day and find that I was 100% continent and all my problems were over.  

- Even a few years down the line I might get the feeling of a minor release, rush to the loo, and find that literally one drop had been released; often this was not enough to actually wet my undies. 

- I didn't begin to see any real progress until I had stopped peeing blood and clots, which took a couple of months. 

- During all this time, and for years afterwards, I did pelvic floor exercises several times a day.  I still do these exercises when I remember, but not on a daily basis. 

- Finally, there is no fixed schedule or timetable.  I believe my experiences are reasonably common but you might get there faster than me, or you might take a longer time.  Just keep doing the pelvic floor exercises and as long as you're seeing improvements, don't lose the faith. 

I see you're now six weeks in and you've probably had your first PSA blood test and are awaiting the pathology results.  Fingers crossed that your PSA is now

Incontinence following prostatectomy

7 May 2019 23:27 in response to Billygoat

thankyou

Incontinence following prostatectomy

7 May 2019 23:31 in response to telemando

extremely helpful and thanks for taking the time to reply ! I have my post psa test at my doctors next week , the results go back to my consultant and he will tie them up with the biopsy results of my removed prostate, and and that’s in 2 weeks! A nervy two weeks ,

ill let you know ! 

Regards alan 

Incontinence following prostatectomy

7 May 2019 23:55 in response to Cricket1

Yes, I remember nervously waiting for the first PSA result and then the pathology result when I saw the surgeon.  Good luck. Keep us posted. 

Incontinence following prostatectomy

8 May 2019 00:12 in response to telemando

Thanks  

Incontinence following prostatectomy

14 May 2019 23:51 in response to telemando

hi telemando I have been to the consultant today for my results! I was psa 0.03 and no signs other than they said , the results were excellent and the cancer has gone with the prostrate , I’ve not got to report back for  a further blood test for 6 months , alls good ! Only another 6 months anxiety now ha ha 

cheers alan ( cricket1) 

Incontinence following prostatectomy

15 May 2019 06:21 in response to Cricket1

That's great news.  I can't deny that we all worry when it gets near the time for a PSA test, but over time the anxiety reduces...