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I think it's back !!!!!!

17 Sep 2014 22:58

Hi Everyone

Well I've not been on here for quite awhile

As I've been going though alot at the moment.

AnywAy the past month or so my pain level

Has got worse and mobility had decreased

In movement to walk so I've been gp a few times

And have increased meds.

This week had to go back to gp as the pain has not

Been under controll and has spread to my left hip

And into my lower back, yet again another increase

In meds and awaiting a ct scan as he thinks the cancer

May be back and has spread to other parts ,

I'm so scared just don't know when it's going to end.

Re: I think it's back !!!!!!

18 Sep 2014 01:01 in response to Mylittlesunshine

I have got cancer in my spine now it started in my thyroid then lungs I am having radiotherapy on my spine which is killing the pain in my hips

It's seems to be working up till now hope this helps I no what pain you must be going through chin-up keep taking those painkillers

All the very very best

Dave

Re: I think it's back !!!!!!

18 Sep 2014 07:36 in response to Mylittlesunshine

Hi Mylittlesunshine,

I am so sorry to read your latest post for you have been through so much over the past few months. As most of us on here agree, waiting for tests and results are always scary times. Sending kind thoughts and best wishes, take care and please let us know how you get on, hugs, Brian.

Re: I think it's back !!!!!!

18 Sep 2014 08:55 in response to woodworm

Sunshine ..... dont know what to say to you and understand that massive fear so much.  Hope and pray you are wrong.  Let us know when the scan will be.  Sending you all the love and hugs I can find x

Re: I think it's back !!!!!!

18 Sep 2014 21:48 in response to Dave1950

Hi dave, thankyou for you reply so sorry to her

Of your cancer diagnosis, so glad the radio therapy

Is helping your pain

Re: I think it's back !!!!!!

18 Sep 2014 21:51 in response to woodworm

Hi Brain thank you for your kind words as usual

I'm finding hard at the moment and knowing

My virtual friends are there helps.

Thank you for your support as always x

Re: I think it's back !!!!!!

18 Sep 2014 22:00 in response to max56

Max.... Thankyou Hun, even me i don't find words

Right now, I finding it hard to function it's the not

Knowing which is hard .

All I know is the pain I'm experiencing is like no other

Pain I've had in fact it's the worsed, I can't even weight bare

A bit now and for it to go in hip and lower back

Tell me there is something not right.

I was told as well mostly likely I will have to undergo

Another operation to fix my knee with new on no matter

What the outcome is as there is too much damage for it

To heel.as of now I'm without hospital, my local hospital

Have agreed to take my care but I need it in writing from tumour

Unit where I want to leave there happy with this, so that is

In the GPS hands at moment.

I've said if they won't agree I will take legal action against them

Or name and shame them for the wAy they treated me.

Better stop tears are flooding.

Thanks to everyone for there on going support.

MAx whens your scan Hun? Hope all turn out ok hunny

And thinking of you always xx

Re: I think it's back !!!!!!

21 Sep 2014 23:08 in response to Mylittlesunshine

Really hope n pray that I get a new hospital

Soon so I get my scan. Been in bed all weekend

In pain so much not able to move or go downstairs.

I feel so bad for my kids seeing me like this and

Wanting to spend time with me when I'm not able

To function due to pain and meds making you in another

Planet ....( Not sure if that's good or not ).

I had to call on call doctor out in the end to give me injection .

I thought when the operation was done that would be the

End of a horrible rollercoaster ride. Sorry for going on x

Re: I think it's back !!!!!!

22 Sep 2014 08:19 in response to Mylittlesunshine

Hi Mylittlesunshine,

Sorry to hear you have been in bed all weekend in pain.But your lovely sense of humour still shows re the comment about another planet.

Several months ago while out walking I slipped on some mud and ended up attempting the splits. Luckily I was quite near my house. I was in so much pain and after a visit to the hospital found I had broken a bone in my groin area. I had to spend two weeks confined to the upstairs of my house and hated every moment of it and it was so painful to move. Had great problems try to get comfortable in bed as well, so I appreciate what you must be going through.

I hope you get you scan soon and when you get your results find they are good. Take care sending kind thoughts and best wishes your way, Brian

Re: I think it's back !!!!!!

22 Sep 2014 09:55 in response to woodworm

MyLittleSunshine.  Just wanted to let you know that I am thinking about you.  I do not know why you are having to wait for a scan that, due to your pain, is an emergency.  Kathryn x

Re: I think it's back !!!!!!

22 Sep 2014 11:58 in response to katielouie

Hi sweetheart.

I'm so sad for you. This is hard enough on you let alone having to wait. You must be going crazy.

I'm here for you 100% promise you'll call on me if you need an ear. We have this in common so can help each other.

I'm in hospital now, just started fluids, so that's me now, chained to a drip unable to move, going from bad to worse, dinners arrived. The food here is grim!

Love and hugs Dor xx

Re: I think it's back !!!!!!

22 Sep 2014 23:14 in response to Doreen

Hi all thank you for your kind words and messages

I spoke with the gp secetry who is lovely and she

Advised me that she has faxed RJAH hospital

Regarding getting the paper worki need and insisting

To deal with the matter of regency.

She also asked how I was I explained and have fitted

Me on to see my gp tomorrow to see what can be done

I can't carry on like this xx

Re: I think it's back !!!!!!

22 Sep 2014 23:16 in response to Doreen

Dor I really hope your chemo goes ok and you manage

To survive the food while in there,will have to get

Ya hubby to bring ya in supply's .xxxx

Re: I think it's back !!!!!!

23 Sep 2014 13:34 in response to Mylittlesunshine

Hey love

I had a curry today, I found out we have 4 different menus here!

I was really hot and tasty, almost yummy!

I pray your doing ok babe and your in my thoughts

Oh and chemo so far is ok. (Ish)

D xxx

Feel like giving up!!!

25 Sep 2014 22:53 in response to katielouie

Spent 24hrs in A&E being sent from doctor to doctor

To be only sent home .

This whole experience of having no hospital care and

No one wants to deal withe till I have proper paper work

From old hospital ....... Why is is it everything is all done to

Money not how much pain and suffering your in.

So was sent on my wAy after injection which was done

By the rudest doctor ever who thought she new it all but

Infact she had no clue.

Re: I think it's back !!!!!!

11 Oct 2014 21:01 in response to Mylittlesunshine

Hi all

Well it's been sometime since I updated you all

As many of you know I have been fighting my hospital

To change to new hospital, well finally I got to see my

New doctor on Thursday,

After 1 hour consultation ( unlike the 5 mins I used to get)

I'm being sent for some emergency scans, he said

That there is a big chance that the CANCER is returning

And that's why ive got so many problems with my leg,

My mobility has decreased, my leg now goes cold

Completely and turns blue/ purple and pain increased.

They are also going to scan my hip and lower back cos

I'm having pain there to. As you can imagine I'm worried

And scared of what the out come will be? Or am I gping

To be left like this for rest of my life.

I asked if he had a plan but he didn't want to go into

Detail till results are in, so now yes it's a waiting

Game and another roller coaster that never ends.

Re: I think it's back !!!!!!

11 Oct 2014 21:07 in response to Mylittlesunshine

MLS .....

I am sure you are worried and scared but thank goodness that at last someone is listening to you and being proactive to find out what is 'going on'.  Theres so little I can say to ease your fears, except that your friends here all love and admire you and we will be with you every step of the way!  Take care xxx

Re: I think it's back !!!!!!

12 Oct 2014 08:38 in response to Mylittlesunshine

MLS

Just like Max just wanted to say am hear to listen at any offloading/rant you need to have during the waiting period (always an anxious time).  Pleased that you have at least a new team who are listening and now pushing things along. Big virtual hugs Jules x 

Re: I think it's back !!!!!!

12 Oct 2014 08:49 in response to Mylittlesunshine

HI Mylittlesunshine,

So pleased that you have at last got your wish and that you are at last being listened to. But I am sorry to hear that it may have returned and that you have to wait for scans. One thing we all agree on, waiting is always a stressful time but as Max and Jules have both said your forum friends are always here for you anytime.

Sending best wishes and hugs, Brian.

Re: I think it's back !!!!!!

12 Oct 2014 13:49 in response to Mylittlesunshine

MLS, I have been reading up on your latest posts and my heart goes out to you. You are sure having a tough time of it and going through so much pain from your disease, but also having to deal with a health care system that doesn't always put the patient's needs first. As if you didn't have enough struggles, you needed to use your energy to try and get someone to help you. I hope now that finally, someone appears to be on track with getting things done, that you will get the services you need so that you will have some quality of life. As both Max and Jules have said, come on here as much as you need to, and you can rant and rave all you like; you have earned the right to do that. Let us know how you get along with your new doctor, and the results of your latest scans.

Take care and hugs to you from me.

Lorraine

Re: I think it's back !!!!!!

12 Oct 2014 19:54 in response to LorraineD

I'm so sorry to hear that. As you well know, the waiting is always tough but I hope the doctor comes up with a treatment plan soon.

Debbie

X

Re: I think it's back !!!!!!

17 Oct 2014 22:45 in response to Mylittlesunshine

Hi Sunshine, I'm so very sorry to hear all the troubles you have been having.  I hope things turn out not to be your worst fear......hopefully the tests will help give the doctors a better idea of how to treat what's going on.  Sending you peace and strength.xxx

Re: I think it's back !!!!!!

18 Oct 2014 10:13 in response to max56

Hi max, jules, brain, Lorraine,Debbie beaker

Thank you so much for your kind messages

It means so much, I really don't know what I

Would of done if I hadn't have found the forum.

This forum is truely a speaical place with speaical

Kind and caring people.

I'm still waiting for my scan appointment if ive not

Heard by Wednesday will give them a reminder.

Re: I think it's back !!!!!!

18 Oct 2014 10:19 in response to Mylittlesunshine

Hi LMS

You are absolutely right about this forum being a help.  Hope you have your scan appointment through soon but you are right to give them a 'nudge' if you do not hear anything.  It will keep you in their sights.  Hope you have a peaceful weekend and take care of yourself. Sending hugs. Jules x  P.S.  Just read your reply to Lorraine and am so sorry you had such a long day at the hospital.  Am sure you are feeling pretty weary but let that beautiful family of yours give you some extra special TLC.  bigger hugs.Jules

Re: I think it's back !!!!!!

18 Oct 2014 10:19 in response to LorraineD

Unfortunately after a trip to gp yesterday

I spent the day at the hospital being accessed

As I had heart failure last year due to heart

Condition which I didn't know I had,

When I went gp cos I thought I had high bp

With symptoms I got a shock high it was

And spent 9hours in assessment unit

Untill I ended up leaving as there was no

Rush for them to see me after 9 hours of tests

Seeing just bio ur and waiting 5 hours to see

Consultant that never turned up.

Will see how things go, this CANCER has

Started to take its tole on my body .

Hope you are all well and have a lovely weekend.

I plan to spend quality time with my beautiful

Who I love so much.

Re: I think it's back !!!!!!

19 Oct 2014 10:39 in response to Mylittlesunshine

Dear MLS,

What a lot you have been going through.!!!

I am so sorry that not only have you suffered with so much pain and discomfort you have suffered with the negative side of the NHS.

I do hope you get some quality care from these people soon and as you say have a plan in place.

The weather here today is awful (strong wind and rain) but I hope it is better with you and that you are having a lovely weekend with your family.

Keeping fingers crossed for your improved  future care.

Hugs

Annabel. xx

Re: I think it's back !!!!!!

19 Oct 2014 18:06 in response to Annabel

Hi Annabel

It's so nice to hear from you, how are you doing?

Here is the same we had some sunshine but very

Very strong winds, so spent the day at home

Getting things ready for my children back at school

Tomorrow, my little girl had homework of reading

And writing, she is very good for her age and loves

To learn and discover new things.

Takecare Annabel hugs xx

Re: I think it's back !!!!!!

19 Oct 2014 18:24 in response to Mylittlesunshine

Hello MLS & all the others in the chat room.

I am new here but I have been reading all of your various posts.

I go to the hospital in the morning at 9.00 to see the consultant for the 1st time.

I am certain he will confirm I have lung cancer as the Macmillan nurse has already phoned me unofficially with the diagnosis.

God Bless You All & Let Us All Pray To Our God(s) For A Quick Cure!!!

Lots of love,

Loftyloo.

x x x x x

Re: I think it's back !!!!!!

19 Oct 2014 18:44 in response to Loftyloo

Hi loftyloo, welcome to this wonderful forum

It's so nice of you to respond on my thread.

I pray and hope that your Appointment goes

Well and you get some answers .

Takecare and will be thinkng ng of you tomorrow.

Hugsxxxx

Re: I think it's back !!!!!!

19 Oct 2014 21:33 in response to Mylittlesunshine

Thanks for asking MLS, I am well, just awaiting next  Checkup appointment in November.

Then appointments should go 6 monthly if all is ok.

Your little girl sounds just lke mine did at that age. They can be just like a sponge.

Mine could not wait to read and so I taught her at the age of 3 and we called her bookworm.

Still do ands she's nearly 32.!!!! LOL.

Keep us informed of how things go .

Hugs

Annabel xx