In August 2014, I was diagnosed with myeloma (bone marrow cancer). That’s currently treatable but not curable. I hadn’t had any symptoms - I had been a blood donor, but an earlier donation was rejected because I was anaemic. I went for a blood test to be cleared to resume donating but the results were really pear-shaped, that’s when I got the myeloma diagnosis.
I’ve been having treatment & apart from the treatment & watching out for infections, I’ve been able to keep up with my normal life. Most people had no idea about my condition until very recently.
Then, in May this year I had an odd patch of skin on my right breast. The patch looked like eczema, but it didn’t respond to creams etc. After a referral, at the end of June, I was diagnosed with primary breast cancer which has also spread to my lymph nodes. The breast cancer isn't related to the myeloma - I'm just really lucky, I'm allowed 2 cancers, not just the 1!
I’m at the start of 18 weeks of chemo & then I’ll have a bilateral mastectomy & lymph nodes removal. That's Christmas sorted this year. After the treatment for breast cancer, I'll go back to "just" having myeloma! Until that gets worse & I'll need a stem cell transplant.
Before I started chemo I was told my hair would fall out – so I had it shaved off. My hair – my choice! I found a wig – “April” (which is quite bizarre because that’s my birth month), the label says the colour is mink. Not good if you’re anti-fur!
I am trying to keep my life as normal as possible. Apart from if normal means housework, because honestly, I should be able to find something better/ more fun to do!
I run every day – because I love running. I usually run about 10k each day & I can still run the sox off a lot of my buddies who are “healthy”. I swam 5k for the Marie Curie Swimathon in April & I ran a ½ marathon just before the breast cancer diagnosis.
My friends who now know about my situation tell me I’m “brave”. I think that’s a load of rubbish – brave is being a passenger on a train who intervenes when the gunman starts shooting.
What I’m doing is being completely stubborn. It’s quite simple really - it’s my life & I’ll make the decisions thanks very much!