Hello.

I understand how you feel. It is a huge shock and we and our children cried a lot when my husband was diagnosed in October. He has had four chemo infusions so far and we gave good days and bad days. The first two infusions gave him nausea, so that he couldn't eat or drink, and then ulcerated mouth and he spent five days in hospital after each. Then they reduced the chemo to 80% of the previous dose and he is coping much better now. We were given a very similar prognosis to your husband's.

Some days he is well enough to walk up to town for a coffee and others he dozes all day. We keep away from coughs and colds as much as possible but really enjoy seeing our family.

i cope by being in denial - just don't believe he has so little time but make the most of each day and week.

Good luck with the chemo - I hear that lots of people don't have much in the way of side effects.

Hi [@Ronnie46]‍ 

When was your husband diagnosed? Your post completely echoed what we are all going through

Yesterday he got his chemo tablets Lenvatinib. There is no cycle he takes it until he finds out whether it’s working or not 

It’s like a Palliative treatment to be honest, they’re trying this drug because it targets tumour cells.

Its so nice that you replied  

with love from Ann

Hello Ann

So your husband takes his chemo pills at home and doesn't have infusions at the hospital? How is he feeling so far? They all seem to have different side effects.

My husband's treatment started at the end of November but he had four weeks between each of the first two infusions due to low white blood cell count. Now he has two weekly infusions. He sleeps a lot in the first week.

I wish you lots of luck

Ronnie

Hi [@Ronnie46]‍ 

Thank you for sharing your husbands experience with me. I know the treatments may be different but it’s giid to know about side effects. 

My husband took his first dose of Lenvatinib yesterday and nothing side effects wise yet but it’s early days. 

He was originally diagnosed with Myeloma just after Christmas, they thought the lesion on his liver was a secondary, the same with his spine. 

He had a bone marrow biopsy and this showed conclusively that it wasn’t Myeloma but primary Liver Cancer, we knew about the small tumours on his vertebra and holes in his vertebrae where it had eaten through. They also diagnosed  bone marrow cancer. They said he’s probably had this for a very long time for it to have spread to the advanced stage it’s at. 

I asked if the bone marrow and stem cells  they’d removed for retransplantation as a Myeloma treatment. The consultant said no. It’s too advanced and wouldn’t work for the type of cancer that he has. 

The treatment is constant but three days before he collects the next months tablets he has to have a blood test. We have the Marie Curie nurses coming in on Friday  and he sees the Oncologist nurse the middle of Feb. He’s got an appointment with the dietician too. We are waiting for a radiotherapy appointment too. 

I feel for him. He’s up and down and all I can do is listen, reassure and support him. We all do. 

Strangely his appetites back a bit more today

love Ann 

Hello Ann

Wondering how things are going for your husband? Is he coping with the tablets?

My husband's chemo this week has been postponed as he has to have two units of blood transfusion first. It does explain why he has mostly dozed in his chair this week. Waiting to hear when he can go. So tomorrow I need to reschedule several of his appointments. It feels like we can't plan anything nowadays. Life is on hold.

Best wishes

Ronnie

Hi Ronnie

He was very sick, violently sick for two days. Anyway his Marie Curie nurse told him to up his anti sickness medication to three times a day. He’s a bit better in himself now. He’s not eating much but at least he’s eating something. 

I am so sorry to hear your husbands to have blood transfusions. This disease is dreadful. It’s cruel.  Mine has been warned that this may happen to him at some point.

Ronnie please feel free to chat anytime. This feels very daunting and lonely despite having family.  It’s like a horrible nightmare I can’t wake up from

please take care as best you can

Love Kuiper