Husband Diagnosed with Stae4 Pancreatic Cancer

I'm so thankful I came across this site.  On March 29th 2017 my husband was dx with stage 4 panreatic cancer with mets to his liver.  Our happy world was immediately turned upside down.  We've been together almost 19 years, but just celebrated our 6th wedding anniversary Labor Day.  We decided to renew our vows since we know it will be our last one.

We're coming around to the 1 year anniversary of his diagnosis and we're also coming around the home stretch.  My heart is so broken and I find it hard to articulate the feelings I have.  Although we've been realistic with everything, each day feels like the first time I'm hearing the news.

Mike's cancer markers started at 21,800.  He started with the 5FU (appropriately named).  His markers dropped to 1500 and the lesions on his liver became microscopic.  However, he got so sick and ended up in the hospital with a WBC of .48.  He was off chemo for 3 months because he was too weak to receive it.  It was the best 3 month ever.  We next tried the gem/abrx.  Although not as aggressive, his markers continued to decline, however the lesions grew again.

Each scan since alternates between the liver lesions tripling and then becoming microscopic.  However, for the first time, the markers are steadily incresing.  He feels his body dying and just wants the remainder of his life to be of quality.

At our last appointment the Dr. suggested trying the 5 FU agiain.  I was so aggrevated!!  His Dr. is great and has a wonderful reputation, however he's very pro treatment vs. hospice /palliative.

I questioned him as to what his goal is and at what point does he feel he's prolonging Mikes' death vs. life.   My husband is a fighter by nature and does not want to be seen as a quitter.  I know he wants to stop but won't unless the Dr. lets him know it's OK too.

He tells me what his wishes are and I'm so afraid of him dying feeling miserable rather than having the quality he wants.  Only a decision he can make though and I'll suport whatever he decides.

Im so grateful we're so open with each other about our feelings.  Sometimes I tell him I have a Groupon for a new pancreas and that am looking for one.

He's been leaving me messages on my cell phone so I'll always have his voice.  I'm so afraid of losing the messages that I bought one of those recordable teddy bears.  Now I have his messages in the bears belly and everytime I hug it, it plays his voice.  I bought 3 more for our grandchildren.

We made all of the funeral arrangment which I was grateful that he agreed to do as that was not something I wanted to do while I'm grieving.  I also wrote his eulogy.  He actually wanted to read it.  I thought for sure he would ask me to change this or that, but he just read and cried.  I thought it was very heartwarming that he got to hear his own eulogy, not something everyone gets to do.

I know I'm rambling on, but I have never felt pain like this before and can't imagine what all is said and done, how I go back to work and everyday life like things are normal.  My house will be so lonely and quiet!!!

  • Dear Lauren 61; what a lovely post you have given us.  I confess I giggled at the 5FU even though I had to look up what it was.  You are being so caring and organised but of course it cannot put off the fear and pain you must also be suffering.  As you say the decision on treatment has to be his alone and I know you will support him to the bitter end whatever he chooses.  Some people, both cancer patients and also partners of cancer patients, have started posting here regularly to tell us how things are going and how they are feeling.  I only mention this to you because you come across as being good at this and interesting to read.  But it is up to you.  Best wishes.  Annie

  • Hi there ... Having been on both sides, l can understand those feelings so well .... I prepaired an did and said everything or wrote it down ... Once l had everything in order, it was like a weight off my sholders ... then l could sit back and take every day as a bonus ... Wake up and say "well I'm here today" and instead of thinking of the future , l now live in the day ... 

    So if you can hold each other's hand on good and hard days ... And like finding the 5 F U funny , keep those little memories ... You still have a little time to make every day count ... And hopefully lots more days for all of us .... Big hug brave lass  xx