Sorry to hear this, Lynn. I dont have any experience of this sort of cancer but could not bear to think that you had not had a reply yet. Hopefully, someone will be along shortly to offer specific help. However, I would say that you need to contact a cancer nurse with your questions about the treatment delay. [and I know its the weekend]

When my partner was diagnosed in Newcastle with Lung cancer, we were given the numbers of the bronchial nurses to ring for any questions but it was just weekdays. We now have a 24 hour helpline from the chemo ward. Maybe you could find out if something similar operates where you are.

In terms of the pain, I would go back to the GP and get something stronger. 

Good luck xxx

Thank you.  He has got to go to hospital Monday to have a food tube fitted and there is a place in the hospital where you can go and talk  to cancer nurses so I will go ther. The problem is he is very negative at the moment and feels there is no hope but hopefully when he starts treatment he will feel a bit more confident although they have told him it is a very aggresive teatment of radiotherapy and chemo and it is going to knock him flat for a while.

Thank you again for replying

Lynn

Yes, the treatment plan will help. It must be so upsetting for you to see him so low. Hopefully, you'll feel better after having talked to the nurses. The ones I've met have been fantastic.

 Take advantage of any support that's offered as its so hard having to be the strong one in the tough times ahead. In my experience, you get your strength from somewhere, and you cope because you have to. However, you also need some place to let go of your own feelings.

Your lovely dogs will help a little too.

You will be on my mind over the weekend  Lynn -I do hope Monday brings some improvement for you both.

Good luck

xxx

Hi Lynn

am sorry to hear of your husbands diagnosis and pain levels currently experiencing.

I was diagnosed with throat cancer and have just finished 6 weeks of radiotherapy around 2 weeks ago and on recovery path.
As for being agressive, I had symtoms as far back as January but wanst diagnosed until late June, then some back teeth out then mask fitted then treatment. I too was concerned about treatment delay but was assured few weeks etc would not make any difference to treatment plan.
I have a thread under the heading Radiothapy for Throat Cancer if you wanted to read as I posted a weekly update of what went on each week and how felt.
I still update each week and as say consider myself on recovery path.

We are all different and husband may experience different amount of side effects, but Im afraid the side effects can kick in and be quite debiltating.

As for current pain, I would suggest that you speak with your contact person to see if anything can be prescibed to alleviate the pain just now.
While non of here can medically diagnose , its just a suggestion and you also have NHS24 if urgent. Either contact from treatment plan or GP might consider it beneficial to up the painkillers or perhaps start oral morphine.

I wish you both well and am here if you want to ask any questions or just to chat away about how it all progresses as treatment goes on.

I know its difficult, but this type of cancer is highly treatable with good statistics for success rates and Ive stayed positive from the getgo and has helped me staying focussed on the light at the end of the tunnel.

Kind regards

ian

Hi,know what your husband is going through as I too have/had tonsil tumour and finished treatment at the end of August.These tumours are called fast growing and aggressive but that should not be taken literally as it like mine might have been growing for 6 years so a few weeks wait won't make any difference to his outcome.Lets hope it's a HPV derived tumour as these appear to be highly treatable.

John.

Hi don’t give up I am 14 weeks post radiotherapy the treatment is hard but if I can do it anyone one.

i have written a blog honest and open 

www.radioactiveraz.wordpress.com

can your husband get warm salt water into his mouth gently swill it round and gargle.have yiu spoken to your consultant about your hubbys difficulties ,surely someone could suggest someyh8ng ask for a nebuliser from the hospital ? Don’t sit and suffer 

if yiunhave any questions just ask there are a few of us who haven’t unfortunatly joined  thus selective 

club

remeber ask for help

Hazel

Hi Lynn I am a 61 year old female tell your hubby if I can do it he can have sentbuna link to my blog I go through utbstep by step week by week there is also another one written 4 years ago it helped me in the begging try and remain positive it really does help

www.gammaraygary.wordpress.com

Hazel

Hi John have you has your scan yet ? Seem to think it’s soon ?

hazel

Hi Lynn 

Welcome to our small but supportive group of those having head and neck cancer diagnosis and their loved ones . Hopefully you’ll find support and some tips to help with your journey.

My husband was diagnosed with tonsil cancer - grade 3 that had spread to his lymph nodes in Dec 2015 . Like you we had a wait to start treatment due to the Christmas period and although he was initially diagnosed on Dec 8th he didn’t start treatment till Feb 9th. This was such an anxious time as like you we were worried about it spreading after being told it was an aggressive cancer. 

He had 5 cycles of Cistplatin chemotherapy and 6 weeks of radiotherapy concurrently. He also had a left sided neck dissection as the chemoradiation hadnt cleared the tumour in his neck lymph nodes.

Hang in there as the preparation before you start the treatment such as the PEG are so important to help him get through thus ardous treatment.

Hazels blog is great so give it a read and please come back with any questions you have.

Just to say my hubby has been in remission for 2 1/2 years and is cancer free so stay positive.

Best wishes and feel free to send me a friend request if youd like to chat.

good luck

Emma aka newly married 

Hi Hazel,had the scan last Monday 10th and went yesterday 20th and the verdict is excellent, no sign of any mass,told me I don't have to go back and all my follow up appointments will be back where I was first seen.A load off my mind even though they can't tell you you're cancer free but it's still given us all a lift.Still plagued by thrush which is a nightmare and I've had it almost constantly since beginning of November.Along with the lymphoedema and the constant blocking of sinuses it's getting me down but I have to look on the brightside.Hoping to be back at work mid to end of January.

Merry Xmas,John.