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How to psychologically recover

16 Aug 2022 18:10

I do feel a little indulgent posting about this, when so many are having a worse time of it ( for now , I always say that, not tempting fate)

Back story- husband diagnosed out of the blue, very few symptoms apart from a loving nagging wife (me), with Oesophageal cancer - July 2020. Nuclear chemo, major surgery , nuclear chemo, 'good' histology. disease free for 18 months ( finger crossed forever).

Now the indulgent bit- how on earth do recover mentally from the whole world wind. I am relatively okay- or at least at the moment I am.

Him- he says he's lost all the 'certainty' in life. Due to the whole thing he has retired from work. Then his mum pops off in February this year ('just' old age) He feels quite 'got at' , like all his life ballasts have been removed. He has done group stuff at maggies, but what we are trying to do I find a way through the psychological recovery. . We know time and adjustment, but like most humans we want it to happen right now!He has hobbies, friends etc. We are really trying to 'live' with mad holidays etc, BUT...
So, I guess what I'm after is 'tips' on what others have experienced AND how they got or are getting through it.

Hilts

How to psychologically recover

16 Aug 2022 19:20 in response to Hilts

Hi Hilts 

Sorry to hear about your husband and glad he is disease free.

I finished chemo and radiotherapy only a couple of months ago so maybe my perspective is still quite current but I would say everything changes once you have been told you have cancer.In some ways its like post traumatic stress.

I feel like I am not the same person anymore.Nothing is going to slot back into the old life , however long you wait for an adjustment.

I have found new hobbies and friends , still have some of the old friends but don't feel as close to them as I am not the same person I used to be.They maybe identified me by my job (I had my own sucsessful business) I now feel like a square peg trying to fit into round holes which were my life before.

Sorry if this sounds quite negative , there are some positive outcomes , I please myself more and don't stress the small things.

I guess what I'm saying is don't think of this as a temporary state, this is life now and given a second chance we have to embrace each day and hope it will be a good one x

How to psychologically recover

19 Aug 2022 09:22 in response to Minty69

Same I finished chemotherapy July 6th.  Finished radiotherapy this week. Now what still worn out I don't feel like me any more x

How to psychologically recover

19 Aug 2022 21:49 in response to lobelia

It's so hard to deal with the emotional impact , good luck xxx

How to psychologically recover

21 Aug 2022 00:38 in response to Hilts

Hi Hilts,

Sorry to hear that your husband had to go through this and that you have had the sad news of his mother passing away.

I was diagnosed with a small low grade breast cancer 6 months ago.  Apparently I'm told I should feel lucky that it was found so early and low grade and stage and I have a good prognosis.   I can categorically say I didn't and that the trauma of being told I had breast cancer absolutely floored me.  I've recently finished 6 sessions of counselling which helped via Macmillan.  It takes time to adjust and grieve I suppose for the carefree person you were pre diagnosis.  It's the feeling of never being safe again' that I found hard.  I can honestly say that 6 months on I am only just starting to come to terms with it all and enjoy life again, keeping things in more perspective I suppose.  I think you just have to give things time to adjust to the new 'normal', it's very much work in progress.   Everyone is different and I suppose it can take longer for some.  Go at your own pace.

All the best.

Mary

 

How to psychologically recover

21 Aug 2022 07:01 in response to Minty69

Thank you every day the same worn out x

How to psychologically recover

26 Aug 2022 12:49 in response to Hilts

Hi Hilts, 

I can relate to this a lot, my dad was diagnosed in August 2020, had surgery and told cancer free in April 2021. Now it is looking as though the cancer has returned.

My first thought was how is he going to even try and process this for a second time, we all thought we were done with the waiting for updates, more appointments, more scans, more worrying. Then in the next breath I remind myself I am lucky that he was able to get the all clear the first time and we've had more time with him than we thought we would have. Then some days I am angry at the world for making him go through this again!

I'm sorry I don't have any tips, but I certainly know what you mean.

Jade x

How to psychologically recover

4 Sep 2022 17:35 in response to MissBrightside19

For me it was about rebuilding a new life.  It's not the same as my old life but can be as good if not better.  It about starting a new and exciting chapter.  Thank God I have been fortunate to survive and start this new chapter, you owe it to yourself and others to find a new happy!

How to psychologically recover

4 Sep 2022 18:04 in response to Hilts

Hi alot of us call it the new normal, things change and alot don't get back to how things were before cancer came into our lives, we still do things the same just we've changed most becoming stronger more determined to do what we want in life. 

Billy 

 

 

How to psychologically recover

4 Sep 2022 19:44 in response to Billygoatt

Hi , 

Thanks to all of you that responded. 
Marywj- we took your suggestion of sessions at macmillian and He called them . That is in the process of being arranged- so thank you.

Billy- you are soo right when you say just doing what we like,  ergo- not doing stuff we don't want to with WHO we DONT want to, we are less inclined to please others and prefer to please ourselves (:

What all seem to be saying is that this is the new normal. Yes sure, but it is how to deal with 'bereavement' of your old life if that makes sense.?

We are certainly going on great holidays, making plans , laughing lots, BUT we are great over thinkers (: I suppose we are 'adjusting' and with that comes happy times and sad times.

Hopefully the sessions can train those thoughts into moving forward

thanks

Hilts

How to psychologically recover

12 Sep 2022 11:48 in response to Hilts

Hi Hilts, sent you a Friend Request so I can PM you my number and connect with your Hubby via WhatsApp and maybe help.

Had done the same with BFG last year and also in contact with a few others mentoring and supporting each other etc.

If it helps, add me and happy to connect with him !

How to psychologically recover

12 Sep 2022 12:52 in response to Redski

Hi Redski, 

Hope you are keeping well. 
I have just chatted with husband and yep, he's happy to link up, so I will respond to the Personal request (:

NOw , I might add at this point we are total tech slugs (: I am sort of okay, but him, well let's just say his Nokia 'traditional' phone does not do what's app (:.

I will now try and respond to personal message - bare with(:

Hilts

How to psychologically recover

3 Nov 2022 21:36 in response to Hilts

Hello Happy

 

Firstly I'm not sure if you remember but you commented on my post when I was struggling mentally post surgery. I wanted to say thank you, I think of your words even now almost 2 years later.

It's great news that your husband is cancer free for 18 months! I think the mental impacts of getting the all-clear are not really talked about, but definitely echo macmillan as they do support so much. I also struggle with feeling like I will get some bad news imminently/ like I've cheated death and I think it is actually more PTSD with going through everything and trying to just keep powering through.

It's not indulgent at all, you've been the supportive rock for your husband and you have been going through all the same experiences. I actually found the hospital appointments, surgeries, emergency admissions were more stressful on my family than me as I didn't have any other choice and they felt helpless. Give yourself time, support and love, it's not indulgent and you've been through a lot too xx

How to psychologically recover

4 Nov 2022 22:47 in response to ZollingerGirl

Awww, how lovely(:-

Thank you for that. I am the wrong age to remember what is said 5 mins ago, let alone on previous posts LOL- but I'm glad it helped- what you said now has just helped me.
onwards recovery goes. He is still disease free- as far as we know , for now. He has just finished 6 session with McMillan- which he found useful, but like he said , there is only so much talking you can do - but chunks and then a break seem to be the way to go. You are right, of course it is PTSD.

I think ultimately time is the only thing that moves on, there is no getting away from the fact it happened and will always be there, but I do feel we are moving on, but like you said, we too feel that 'bad news' is always around the corner- 10 yrs ago we wouldn't even be having this conversation!! Treatment has moved on sooooo much, so we are all having a few more throws of the dice and I must never lose sight of that.

I must be moving on too, as I don't think about it EVERY day now, just every few days , so again a good sign. But boy is it hard (:-

I'm also on here less and less- another good sign.

keep that faith

Hilts

How to psychologically recover

4 Nov 2022 22:52 in response to ZollingerGirl

Ps- I just re read me post to you. So good that you are disease free after the 'work'you had done- loads of clapping emoji's

Interesting to 'reflect' we were just of first chemo then, not even had surgery etc, so brain was full of  cracking on feelings- but of course when the dust settles that when the 'other'stuff creeps in

I guess in reality it is superhero costumes for us all

xx