How to help a child

So my beautiful niece is only 14, she has been back and forth to hospitals for two weeks now. She suffered facial paralysis whilst at school and then they found a lesion and a mass on her brain at the moment the cause and type is unknown. I just don't really know how to help her through this, school and gcses are all hard enough without this looming over her aswell. I just want to help her in anyway I can, we don't know what is exactly wrong with her she currently has no treatment plan just some more tests that we know are planned but they are currently not booked in. The specialists she saw recently just argued infront of her, if she should or shouldn't be on steroids and they didn't come to a conclusion, they left understandably very frustrated. She has questions that none of us can answer like if her face will get better, will the mass grow and start to hurt.

She is sleeping an aweful lot and gets fatigued easily since this started. She's being looked after by a combination of our local hospital and xxxxxx. Next week is half term and she can't be out with her friends as she needs adult supervision at all times at the moment, I will have her next week so she won't be alone but how can I best talk to her about all this when I have no answers to confort her. I spent an hour just laying with her a cuddling her last week as she didn't want to talk but didn't want to be alone either and it breaks my heart. If anyone has a starting point to all this I'll take any advice going. I'll also take any fun activitie ideas we can do for the week, she's a bit limited as all sports and exercise is out and whilst I wanted to take her to the cinema I have talked myself out of the idea incase she has a seizure, we have been told it's a possible risk factor for her. She also struggles with eating and drinking since the facial paralysis so I'm not certain she would like to go out for a meal but I will let her decide if that is something she would want to do. 

  • Hello BlueEmber,

    Just wanted to welcome you on Cancer Chat. I'm very sorry to hear about your niece.

    It sounds like you've been a great support to her, just about being there is so important. It can be difficult when you're unable to answer questions, but do encourage your niece to ask her specialists questions or take notes if she needs to. There's some advice on supporting people here, which I hope will be useful.

    With activities it's good to keep it simple, because the key thing isn't neccesarily the activity itself but spending time together. You could go for tea and cakes or maybe a nice walk in the park. I'm sure members of the forum can suggest other ideas.

    All the best to you both,

    Moderator Anastasia

  • I'm so sorry to hear about your niece and have no advice to give you on how to talk to her about what is happening to her at the moment and in the future, other than to continue just being there for her and supporting her at her pace.

    In terms of half term activities - perhaps look at arts and crafts projects  - there are plenty of kits aimed at older children - like sequin art, jewelled art or making jewellery with fimo clay, items to paint - perhaps link it to making something for her mum for mother's day while she has the time at half term. Or try out some baking if that would interest her - like cupcakes or cookies. Instead of the cinema have a movie afternoon at home. I wish you and your niece all the best and hope she is able to get answers soon