How could my doctors have gotten it so wrong?

I am absolutely devastated. I am extremely unwell and after months of A and E visits doctors appointments private gastrointestinal appointments and a private abdominal and pelvic CT scan and a chest ct scan. Doctors have put together the jigsaw because that's what it became as no one listened and now I am on a 2 week pathway (well it's a week away) to see a colon surgeon. The findings of my scans have been a musorectal node, inguial nodes, a liver "cyst", an ovarian cyst and a lung node. Due to my symptoms my doctor is concerned about colon cancer which is what I said I was afraid I had eleven months ago he refused a colonoscopy and now I am in this mess. A recent a and e attendance had me resess sue to my heart rate and a high d dimer and they did a chest CT which found the lung nodule. I know where this is going I really hope it isn't metastatic cancer but from the way I am feeling I just can't see it being anything else. Note to doctors never ignore a young persons symptoms better to refer them for tests which cost money than dismissing them which may cost them lives. If only my doctor had listened. I even went to a private gastroenterologist who did a sigmoidoscopy and found nothing yet I now have a node in my rectum. I asked for a colonoscopy yet they said I didn't qualify for one. So my life wasn't worth a camera up my behind is what they said and now I am in this position. I wouldn't wish it on my worse enemy I am 31. 

  • No one should be refused a test - I hope you have complained to your GP practice? Yes. It could be what you fear but you have youth on your side and many people live for years even with metastatic cancer. It sounds promising that these sound like isolated nodules that may be able to be surgically removed. I can totally understand your anger, shock and upset but hopefully you will have answers and treatment options soon x

  • Oh my goodness , I too am in similar situation.My world has ended , I knew,all along wt was wrong but no.one believed me .how are you now?.I have Malt Lymphoma grade 4 .