How bad does it get?

Hi,

My partner has HPV cancer in the base of his tongue and lymph nodes in his neck. He completed his chemo/radiotherapy on Tuesday. The last few weeks have been awful, he's gradually distanced himself from me, he can barely speak and hasn't eaten for two weeks, he does have a RIG tube for feeds.
He just wants to be left alone to get on with it, he won't even let me hug him. I'm finding this incredibly difficult as it is only the two of us. I understand how ill he is, but he's also quite nasty and irrational. Is this normal at the end of treatment and during treatment. I understand he's at the worst stage for side effects, etc.

Any advice will be appreciated, I just want my lovely man back, but it's breaking me to see him like this.

Thank you

Shellb123

 

  • Hi 

    Sorry to read about your partner.

    I'm currently going through chemo for breast cancer and whilst my partner and I are closer than ever its still very difficult at times. The treatments our bodies have to go through are all consuming and its so very hard to be positive etc. This morning I really had had enough of the way I felt and just sobbed that I didn't want to continue this nightmare. 

    Whilst everyone around you is going about their daily life ours are on hold can't even plan a day out and when you need a change of scene it's rubbish.

    He knows you love him, you need to look after yourself too so can you go out with a friend for a while. 

    Hope this helps a bit from the other side. Wishing you all the best. 

    Xxx

  • Hi Shellb123,
     

    I agree with Belllouise, you need to ensure you are looking after yourself and your needs. Its a tough one I know as he probably fulfills a lot of those. My hubster was diagnosed just before xmas (I'd just lost my dad). He had a cancerous right tonsil and 47 lymph nodes removed followed by radiotherapy for 6 weeks (30 sessions). Its very lonely being the partner, even when you have people around, I haven't though as my sister is in Spain, Steve's day and my mum are elderly and Covid put pay to friends being able to pitch in. Also with anything thats to do with the mouth/throat they just can't talk so what are people going to do when they come over, ask you loads of questions. When Steve's not feeling too rough he'll sit with me and hold my hand while we watch something. I'm lucky I'm a very optimistic person but even I've struggled at times. 

    You have to replenish your energy to be able to cope. Think of something you can do for an hour a week thats all about you, also have another hour in the week with friends. If you can't do both in the week then do them alternatively. We have to take care of us, otherwise we can't take care of them. 

    I haven't been on here for a while as I've been bogged down but if you need to chat just keep adding to this. I'll watch out for the notifications x

  • Thank you so much for your replies.

    I took myself out today to do some shopping for me, the car broke down‍♀️
    Wish I could say it made me feel better, but in this heat it was awful!

    My sister rescued me and the car is in the garage. I'm supposed to be meeting friends tomorrow for lunch, I'll be going on the bus. It's been a few years since I did that! I feel an adventure coming on:laugh:

    my partner is pretty low at the moment, we had a little chat earlier and he apologised to me.

    thanks so much for your support xXx