My lovely elderly mum is dying of Pancreatic Cancer, was diagnosed in March and her care journey has been horrendous.
Mum spent some time in her local hospice in the summer for the first time she felt safe and cared for, her wish was to die at home or in the hospice. After a recent bad turn at home a nurse from the hospice visited and decided mum needed end of life care.
She has now been there for just over a week but within a few days they were discussing with Mum her wishes (news to us) to go to a nursing home. Mum has confusion and yet they continue to carry on talking to her without us present. Basically I feel they fear she won’t die within their two week allowance so have rushed through funding to get her out. Every visit we have now is marred by the ward sister pushing for meetings! There is no doubt Mum is deteriating and for us to move her to god knows where would be cruel. Mum had a truly dreadful experience in hospital with sepsis in the summer was fast tracked for funding and it withdrawn because we opted for rehabilitation at the hospice, however neither the hospital or hospice declared this at the time! Do we really have to move her for what is likely to be a week or so. Mum has diabetes which is very hard to control, sickness, pain and very low blood pressure.