Hospice care

My lovely elderly mum is dying of Pancreatic Cancer, was diagnosed in March and her care journey has been horrendous.

Mum spent some time in her local hospice in the summer for the first time she felt safe and cared for, her wish was to die at home or in the hospice. After a recent bad turn at home a nurse from the hospice visited and decided mum needed end of life care. 

She has now been there for just over a week but within a few days they were discussing with Mum her wishes (news to us) to go to a nursing home. Mum has confusion and yet they continue to carry on talking to her without us present. Basically I feel they fear she won’t die within their two week allowance so have rushed through funding to get her out. Every visit we have now is marred by the ward sister pushing for meetings! There is no doubt Mum is deteriating and for us to move her to god knows where would be cruel. Mum had a truly dreadful experience in hospital with sepsis in the summer was fast tracked for funding and it withdrawn because we opted for rehabilitation at the hospice, however neither the hospital or hospice declared this at the time! Do we really have to move her for what is likely to be a week or so. Mum has diabetes which is very hard to control, sickness, pain and very low blood pressure. 

  • Hello

    I'm so sorry to hear about your Mum. I hope she is being kept comfortable.

    I can relate to a little of what you're asking, here's my experience,

    My husband wanted to die at home and that's what we planned and talked about.  However, there was some discussion around whether we would be able to get a hospital bed upstairs and as Steve and I both agreed that him dying in a hospital bed in our front room was not something either of us wanted, we opted to go to a hospice when the time came.  There are 2 hospices in our area and both are quite a long way and I would have had to stay over, so our lovely GP suggested a local nursing home.  It was nearer and she had often referred end of life patients there rather than a hospice.  The nursing home had private rooms (the hospice had bays of 4 beds) and the nursing staff were of an equal number and standard.  We jumped at that option.  In the event, we did manage to get a hospital bed upstairs and Steve died peacefully at home.

    The sad fact is that hospices are a finite resource.  They are in huge demand and whilst it's shocking there are literally queues of people needing access to them.  I know it's not necessarily the response you want but your Mum may be better off in the nursing home, and certainly the pressure would be off you.  The funding is called fast track (I think) and we're so lucky to have it our NHS may be falling apart at the seams but my goodness me we're so lucky to have it.

    I hope that helps  (even if it's not what you want to hear)

    Take care

    Ruth