Hi Bodger,

Welcome to this friendly and supportive forum.

Sorry to read about your diagnosis and hopefully, after you've met the radiologist on Wednesday, you'll have more idea about what treatment is required.

Your sons sound helpful and supportive coming to appointments and dropping you off for your op, but if they are unable to give you lifts for any reason, there is usually a hospital transport facility available . . . maybe worth asking at your next appointment?

I don't have experience of your particular type of cancer, but I'm sure someone will post soon who can give you more information and support.

Or, If you have any specific questions, you could ring the nurses on this site Mon to Fri (their number is on the home page.)

Please let us know how you get on on Wednesday,

Take care, kind regards, Jo

Hi Bodger,

Have they told you what stage you're at?

You're right we do all have to go some time, but I'm buggered if I'm going to go quietly or a day before my time lol. Surgery and radio therapy isn't an option in my case, as the cancer has grown around my aorta,  but I am undergoing chemo.

I'm also relying on my son for lifts as I've been caring for my wife after she had a brain haemmorage if February and can't drive until she gets the all clear from the DVLA. She is due for another op in December - hopefully she'll be back on the road after that.

Good luck with your appointment - hope you get all the answers you need.

Cheers

Dave

Hi Bodger, welcome to this friendly forum, but I know you would rather be anywhere than here. We are so fortunate to have the support of others who are going through the journey of cancer also, the people on here know what its' like. I too, have bladder cancer. At present, I am being treated with BCG which is a TB serum that is injected directly into the bladder. I guess I will have these treatments for the rest of my life because from what I'm told, my cancer is also aggressive and can't be cured, it can only be treated and hopefully contained within the bladder. That is the goal, but I don't know what the future holds for me. It may come down to it that they will have to remove my bladder at some point, and I'll deal with that if and when I have to. In the meantime, as long as I am feeling okay in between the series of treatments, then life is good. Right now, I don't want to think beyond that.

Keep us posted on how things are going for you and as someone has already suggested, call or message the nurses and they will answer your questions, or direct you to somewhere on this site to read up on it. Take care of yourself and certainly your treatment team can share information with you, once they get a better idea of what they're dealing with.

I look forward to hearing more from you as you go through this process.

Hugs to you.

Lorraine

Hi Bodger - so sorry to hear of your diagnosis and welcome to the site. I am glad you got an idea of your treatment plan today and hope it all goes well for you and you receive the support you need with your wife, and yourself!  There is a lovely gentleman called George (Urostar) on the site who has had surgery for the same disease as you - he has a thread going at the moment called 'My Cancer' and I am sure he would be pleased to help you if he can. Good luck my friend.  Max x

Hi again - that sounds like a good start.

Just a thought - have you been referred to a MacMillan Nurse yet?

We met ours this week and she had some useful, practical, advice on services that were available locally.

Cheers

Dave :-)

HI BODGER .AS YOU KNOW MAX AS TOLD YOU ABOUT MY TIME` S , WELL I HAD THREE GOES WITH BCG AND IT DID NOT WORK FOR ME AFTER THE SECOND RUN I WAS PASSED ONTO THE TOP MAN .AFTER I HAD TWO GROUPS OF TUMORS REMOVED FROM MY BLADDER IT WAS THEN THAT THE TOP MAN TOOK OVER HE TOLD ME ALL ABOUT HAVING A UROSTOMY AND WE WENT FOR IT THAT WAS 6 YEARS AGO ALL OK SO FAR .

I HAVE A PROBLEM AT THIS TIME BUT IT IS NOT WITH BLADDER IT IS KIDNEY FAILURE AND THAT COULD BE MY OWN FAULT (BUT BCG DID NOT DO IT FOR ME )MOST MEN DO NOT LIKE TO LOSE  THEIR PROSTATE .BUT THERE COMES A TIME WHEN LIFE IS BETTER WITH OUT IT,  IT IS NOT ABOUT MANHOOD IT IS MORE ABOUT LIFE .I WISH YOU WELL MY FRIEND TAKE CARE .  REGARDS  GEORGE AKA   UROSTAR

Bodger - so sorry to hear about your experience with McMillan, I can't praise them enough in our area. Give them another ring or e-mail and tell them you feel let down at such a difficult time and you may be lucky this time. Awful we have to fight for what we need sometimes, but such is life. Good luck and glad George has found you! Max x

If you feel up to it, give them a call and ask them to come round asap and while you're on the phone ask them to confirm that you're details are correct on their computer system.

Ours provide 24/7 phone cover, I think that's a standard service for them in all areas.

Good Luck

Dave