Help- feel so scared

Hello,

My partner, who is 31, has recently been diagnosed with lymphoma that has spread to his bones and spleen.

He is going to begin chemotherapy next week.

I am really struggling to sleep and feel sick. I just wondered how others manage to sleep and what you felt and how you deal with things. I feel guilty that I’m asking for advice for myself too.

Im feeling very lost and very scared.

I can’t tell you how much I would appreciate a reply. Feel on my own and out my depth.

  • Hi, I'm newly diagnosed with lymphoma and also start my chemo next week. My husband has mental health issues and has also been worried sick about me. I told him to see his doctor, she had a talk with him and it did help him. We have also read all the books, leaflets the hospital gave me and he has been in on every consultation with me, this has helped him also knowing every path I'm taking. He will sit with me when I'm getting treatment which will be comforting for me as I am anxious because I don't know how my body will cope. All you can do is be there for him and I'm sure it will help. My diagnosis took 3 months to get to the final diagnosis of treatment etc which in a way enabled me to prepare myself, in my head anyway. It did get easier when the final tests were all done. Please keep in touch and let me know how you and your partner are coping. Take care

  • NEVER EVER FEEL GUILTY ASKING FOR ADVICE you may not have the disease but you will live every day with it just like your partner and youll only ever be able to guess how your partner feels.

    I have hodgkins lymphoma stage 4bse with it in my spleen stomach groin bone and a 2nd round my heart, and currently in the middle of cycle 3, it took 5 weeks from referral to start treatment. My wife like you is struggling to come to terms with it but you have really done the right thing by asking for help early, your partner will have all the help he needs at the end of a phone 24 hrs a day but do not be afraid to phone or see the same people they are there for you just as much as your partner some times more, if you think your partner should ring haematology for advice and won't, ring yourself I left one to a point that when I rang I was rushed in to hospital as I had sepsis. 

    we as I call us the victims know how we feel and can sometimes easily deal with issues as they make sense to us once I've got Advice, but then trying to explain it all to my wife can be very difficult to put it in words.

    Read through the information packs you are given use any support organisations that might be around, we use penny brohn and of course macmillan most of all.

    DO NOT USE ANY INTERNET SEARCH I really can not stress this enough my wife used it and it really made the whole thing worse. If you need to go to your GP and get help don't wait go, if they offer sleeping tablets use them 

    Beware of the mood swings that will come they really are down to the treatment and can be really bad my last one I couldn't even stand my own company. One rather erm smelly side effect can be referred to chemo farts you learn to live with them or invest in a gas mask. The fatigue will build over the treatment so it won't be bad on part a of cycle 1 but will steadily build personally now I will need a sleep most days at some point.

    Finally never feel guilty for the situation and always ask for advice if you think you need it, the people I have dealt with are brilliant no matter how small they will help.