Help - dad lost appetite

Hi, 

My dad is 66 and was diagnosed with advanced prostrate cancer with a Gleason 9 back in August. Cancer spread to lymph nodes, spine, sternum and pelvis etc. Not much changed as he is retired and was still happily playing golf most days. In December we thought he had a trapped nerve and was in SEVERE pain. I had read up on advanced PC and saw similar symptoms to spinal cord compression. It was and he stayed in hospital over Xmas to have 5 courses of radiotherapy. He's returned home and is on morphine, still mobile and although he is in severe pain, he only lost feeling in his left hand and swears it's getting stronger. Neuro surgeon said in jan that he didn't need surgery on his spine which we took to be positive. Howver his formally HUGE appetite has really diminished. It disappeared before he was admitted to hospital but during his course of steroids, his appetite came back again but it's disappeared  in the 2 weeks of finishing the course. He's in so much pain he doesn't want to leave the house but won't admit it, says it's too cold etc. 

Tomorrow we have our first appointment with oncologist since the compression and my dads first question is whether or not he will be fit enough to play golf in the spring. 

Has anybody had experience of this and are there any questions I should ask tomorrow? 

Thanks 

  • Hi Beebee79, 

    I'm sorry to hear about your dad's diagnosis and the impact it is having on him physically at the moment. I see you mentioned that your dad had his first appointment with the oncologist yesterday since the compression. How did it go? I hope it went well and the oncologist was able to answer some of the questions you may have had playing on your mind.

    It can be tough knowing what to ask as there is so much information to take in but next time round maybe you could write down everything you want to ask and take it with you so you don't forget anything. Many of our members have found this to be quite useful and hopefully some of them will be along soon to share their advice and experiences with you.

    Kind Regards, 

    Steph, Cancer Chat Moderator

  • Thanks for the reply. Unfortunately his PSA levels have risen again and this means the hormone treatment is no longer working. He is declining  chemo as he doesn't want to make his quality of life worse. He was also offered aberiterone but since hearing it caused fatigue, he is declining this too. 

     

  • I'm sorry to hear that Beebee. If you would like to chat about this and the decisions in more detail do give our cancer nurses a call. They are available Monday - Friday between 9a.m - 5p.m on 0808 800 4040, which is free to call from a UK landline.

    Kind Regards, 

    Steph, Cancer Chat Moderator