Hi 

Sorry to hear about your other half a condition, mine is fairly identical, diagnosed in July 2016 with a PSA of 893 and a Gleason score of 9 stage T4 nothing good there.

I volunteered for a trial called Stampede, I had doxcetaxel, hormone Prostap 3 and Radiotherapy, I monitored every three months. My last PSA six weeks ago was 0.04. I have mets in my shoulder and ribs, I had one session of radiotherapy on my shoulder which helped a lot.

Unfortunatly I have acid reflux, which is a devil, because it causes problems elsewhere with my throat which I see ENT for, plus stomach aches and pains, plus I have back and knee problems which I have physiotherapy for, oh and I have gout and borderline diabeties.

Some body this is  

To help keep my PSA low I changed my eating habits lots of fish, sardines cod, haddock, lots of fruit, chicken, and drinking lots of cranberry juice and water, odd treats being biscuits, pure orange ice lolly,buttered scone.

I also take and have been for a year now vitamin pomi-t and b12. Anything that keeps this dreadful desease at bay.

Everyone is different how this affects people I am hoping if my PSA ever starts to rise that either I have the opportunity to have any new drugs that are available being on a trial. I am told there are a few.

Has your husband not been offered a further treatment to lower his PSA ? 

Bit of a me thing going on there but if you want to chat now you know my condition all good for me, it's certainly a lonely place having PC,this and depression is very easy to happen but a positive attitude is important and as much excersise as possible it all helps.

Take care

Joe

Hello Joe & Wendy, hope you don't mind me joining in on your conversation.

My father in law was diagnosed 3 1/2years ago with an advanced prostate cancer, spread to bones & lymph nodes. He to is in a clinical trial, which I 100% believe have kept him living all this time. At our last visit the consultant told us the scans weren't at good as last year & so the cancer is in more of the bone & bigger in the lymph nodes, therefore the only option he has now is chemo. We have to make a decision and meet with the consultant this Tuesday with chemo starting next Friday if he decides to go ahead. Can I ask Joe what was the chemo like, side affects, did it help? I have spoke with the family and we are 100% behind him what ever he decides to do, he always said he wouldn't take it if offered but when you're faced with it or nothing it was a scary meeting. Any advice would be greatly appreciated 

Lisa 

Hi Lisa

I will try and give you the run down of what happened to me, remember everyone is different how chemo affects you. In my case I had some assorted effects, the first session after 2/3 days it kicks in , body felt like it was on fire for eight hours, all my bones ached, fatigue and tiredness some diahorrea loss of hair and taste, the odd headache and scratchy eyes, all of which you get Meds for.

One thing you must keep your eye on is Tempreture as after my third session I had neutrippenna and hospitalised for a few days as my Tempreture went up to 38.3.

You do get used to the side effects the further it goes but you have to be positive it can be very tiring.

Just remember your dad may not have any of these I am just not a lucky person. One question how come radiotherapy not given for his bones ? 

Hope this helps a little ask any questions and I will be more than happy to reply we have to stay together  and battle this awful desease.

Take care best wishes to your dad

Joe

Thank you for replying Joe. My father in law has had a course of radiotherapy to the prostate as part of the clinical trial. We thought he was doing ok until the scans showed otherwise. The doctor doesn't want to wait another 3 months he thinks now is the stage that chemo is needed. There will be 10 rounds given every 3 weeks, two appointments one on the Tuesday to see the doctor & chemo on the Friday which is 1 1/2hr but he said expect to be there for a good part of the day. Really don't know how things will go, my father in law likes to be always outside in the garden or looking after cows I don't know if he could take the unwell phase. We will all be there for him. It's very hard Joe, dreadful disease and scarily common. Take care Joe

Regards

Lisa 

This will be his first time ever having chemo Joe. We go down on Tuesday to hear all about what happens on Friday. He will be having the docetaxel Joe.

I will take a note pad with me. I am dreading this all to tell you the truth, so I can't imagine how he is feeling. 

Talk soon 

Lisa

Hello Lisa

It is very daunting going the first time, but you will meet people in a simuler position, people are very friendly, they all know what's going on.

my wife and either daughter or sister came every time I went, I knew what to expect as I googled the socks off everything connected with the desease.

obviously he will be apprehensive it's all new to him but after a few visits it will be fine, he sounds a strong person that helps.

Good luck next week

Joe

Joe over the weekend we've noticed a change in my father in law, I don't know if it's the worry or the cancer but he looks done out, no energy, tired. I really dread this, I don't want to see him go down but I don't know if he'll be fit for this chemo. We see the consultant tomorrow, I'm very nervous. Will keep in touch Joe & let you know

Kind regards

Lisa

Hello Lisa

Sorry to hear how he is doing, I hope the specialist has some ideas, there is always Arberaterone, and prednisone, there not as aggressive as chemo, there is also another drug when the desease gets into the bones that extends life for some time, I was reading about it many months ago but lost the link I will search and let you know it's name.

Hope they give him some good news.

Joe

Hello Joe, so we met with the doctor and nurse again today & listened to what happens on Friday. He's having the 60 not the 75? Does that make sense? Is that the strength of the chemo? So he takes steroids 12hrs before then 3 then 1hr before chemo starts. It's all very new, even though we have been attending hospital for the past 3 1/2years this feels like the real deal now Joe. We walked round the bays where patients were all hooked up to their machines. Frightening to think how many life's this disease is effecting