Hi Matt

I'm sorry to hear about your diagnosis and that you've been given the news it's incurable. Hopefully, the radiotherapy that you're due to start next week will help. 

Sinus cancer is rare and unfortunately, I can't see that we've any other members who have had this same diagnosis. You might want to get in touch with Mouth Cancer Foundation. I can see that they have some information about sinus cancer on their website and have some support options. It may be that you're able to connect with someone else who has this diagnosis through their forum. It's also worth posting on the Macmillan forum if you haven't already. 

It's a really sensible plan to avoid searching Google! So much of the information is outdated or aimed at the spectacular. We find that often people are left feeling even more anxious than before they looked for reassurance. 

If you want to chat with one of our team of nurses at any point you're most welcome to give them a call. I'm sure they will be happy to offer any advice, information, and support that they can. They're available Monday to Friday 9 am to 5 pm on 0808 800 4040. 

Keep in touch Matt and let us know how you get on over the next few weeks with your radiotherapy. 

Best wishes, 
Jenn
Cancer Chat moderator 

Thank you for your reply. Spoke to the radio doctor yesterday to sign my consent. I'm happy with her plan. Radical radiotherapy is what it's called. Because of the proximity to my eye they're having to juggle the dosage in relation to how close it is to my eye. Further away it is, higher the dose, closer it is the lower. The aim is control though there is a small chance of a cure. I won't hang my hat on that though. 

Im also aware of the rarity of this. Just my luck really. I had a rare form of brain haemorrhage in 2008 so the odds seem stacked heavily against me.

As you say, staying off Google is the best way. No 2 people can have the same diagnosis so you either relax or panic, there's no inbetween. I shall use those links you provide and find others in my position to share stories with. Thanks again

Hi Matt, 

That's good news. Keep positive. I know from the many posts I've read here on the forum over the years that the unexpected can happen but that trying to maintain a positive mindset really does make a difference in people's lives. 

I wish you all the best. 

Jenn
Cancer Chat moderator 

Again, thanks. I have been complimented on my attitude numerous times throughout this. I was diagnosed in Feb, had 3 doses of chemo which didn't have the desired effect so moved straight to radio. My attitude is basically go to the appointment, do as I'm told, get up the next day. The alternative is to lay down and feel pity for myself. My kids don't want or need to see Daddy doing that. The family need me. They're the reason I'm putting myself through this.

Tough times don't last. Tough people do. 

Hi a was diagnosed with head and neck Cancer it's a rare cancer lost all the my right side of face trouble with sinuses due to a drop in my face    this happened after second vaccine. .2 weeks after vaccine a had a swelling on my cheek it turns out that people had reported lymph nodes in body after vaccine    after operation in October last year  ,I have asked about this  been told nothing to do with vaccine but am not totally convinced about that.   Anyone in similar situation or know anyone like this