Hi Zig, 

I'm sorry to see that since the last time I spoke to you your friend has been diagnosed with grade 4 glioblastoma.

I think you've tried to connect with some forum members in similar situations already but I'm just going to tag some in this post that you may not have spoken to yet - [@Lily40]‍, [@Stubo]‍, [@Walton]‍, [@Mrsjc]‍, [@Kat42]‍ - as their experiences may be able to help answer your questions.

Do feel free to chat with our cancer nurses about this as well if you think it may help. Their freephone number is 0808 800 4040 and lines are open Monday - Friday between 9a.m - 5p.m.

Kind regards, 

Steph, Cancer Chat Moderator

Hi, glioblastoma is complicated  Mum was told 2 years then 12 months, she died 4 weeks later(2days ago) The frustration since diagnosis was tormenting, never getting a clear answer, constantly watching for any sign of things slipping. We read up on the disease and 14 months is the average survival but it depends on all sorts of things. My advice, on reflection, is take each day as it comes and don't wait to have a good spell of health between treatments to do anything. We thought mum would have good days but they didn't come. We hoped to get through to next summer then she died 2 days ago,if only we knew what we were facing.

Not much help, but take it as it comes and see how it goes.xx

I'm so sorry to hear about your mum. My friend was diagnosed about a month ago and is in her 4th week of radio chemotherapy. Sometimes it hits me what's happening and I can't breathe for the panic that comes. It's like being hit by a tidal wave and the air is just knocked out of you.

Again I'm so sorry, I can't imagine how you must feel, this cancer is truly one of the most horrific diseases I've ever had the misfortune to come across. May I ask how old your mum was? My friend is 34 and as with you the doctors are very...guarded when it comes to answers. 

hi, dad was told he had 2 years by the specialist,    hes still with us at moment,    and had removal, radio, chemo,  had a good   well feeling,long spell after all that, and now hes got  new glios  and starts chemo again,  and they have said proton beam therapy then, . im so sorry for your loss, its a horrible disease and we were told clearly its, unstoppable.. all that can happen is extending life, and time with loved ones.

 im sorry to hear about your friend,   we are further down the treatment time line than your friend at the moment,  dad had this awfull  glio for short,   hes still here now,  for now... my advice to you is read read read, everything you can. the hard truth is, its unstoppable, and think its important for people to understand, that it always continues., but the health people like to break you into the realistion slowly that....time  is the only thing they can give.

Hi, mum was 66, perfectly fit and healthy before diagnosis.I understand the panic and inability to breathe when the situation hits you. I've spent many nights before mum died awake with such an overwhelming sense of helplessness. Ive heard of some people who manage to survive longer than expected and I guess we hoped that mum would be one of them but it wasn't to be. We've got the funeral in a weeks time and I can't even imagine standing there to say my final goodbye to mum.

Your friend is very young, when she has a good day do as much as you can with her and make memories,take photos and laugh. One day you will treasure these.

Mum was taken from us way before we expected, I don't take things a day at a time, it's an hour at a time. One foot in front of the other and a small step at a time  

Xx

Hi -so sorry to hear about your friend, my husband was diagnosed in Sept 2017 and he was told he would have a max of 12 months as his tumour was inoperable. He had a short course of radio and chemo then just took Lots of cannabis oil with CBD and THC -he also does the Care Oncology Clinic protocol. He started to lose mobility at Easter but a forward thinking oncologist has helped him get Avastin which he takes with Lomustine and here we are at 13 months and he has his mobility back -his tumour is stable. He has a few memory problems but is living a fairly normal life -take it one day at a time.