Hi all.
my husband had a 10cm gist tumour removed over 9 weeks ago and we are waiting for ct results to see if spread to the liver. I am finding it hard to speak to his doctors and key worker. I feel there is no support. We were told he would have a pet scan and now been told there is no funding for this. We have not even seen oncologist yet and it's been weeks. I am loosing faith that things are not moving fast enough. He was told he is intermediate risk and that's all we have to go on.
i am doing my very best to support and be positive when he is around me. Different story when he is not.
