My wife has got Neuroendocrine tumours and needs a total Gastrectomy to stop the tumor spreading, we live in west scotland and our hospital in inverness. Has any body got any Gastrectomy experience?
Hello freeflow and welcome. I should say straight away that I had never heard of the word Gastrectomy until I read your post and on looking it up on the CRUK website I could not find anyone who has posted about an experience of this. But someone may come along with their experience - I hope they do.
Anyway, I thought of taking a look at the MacMillan Cancer Support website and am attaching a post about the difficulties of swallowing food after this. There is useful advice and a link to a MacMillan booklet on the system. I realise you may have already looked at the MacMillan website already in which case my apologies for not helping you gain information.
hi 7 years this may since i had a total gastrectomy obviously to begin with it is a struggle starting to eat again and drink is not fun but do as the team tells you and i have wonderful wife for support you will eventually get near to eating and drinking as normal now and again i get some bad days such as bringing up liver bile and having dioreah sometimes i get a bit light headed but i think that is due to to much sugar but you must do as your medical team tells you.hope all was ok with your wife.
