Five months post Chemotherapy - advice please

Good morning all

been a while since I posted as trying to just get on with life, work and pay the bills like others I guess, but do hope everyone is in the best of spirits and if not I'm sending you positive vibes and wish you well

So its been five months since I finished 6 months of chemo (Oxiplatan/Capecitabine combo) was very sensitive at the time and my feet and hands suffered the side effects a lot.  I thought it may take time for the symptoms to go but really this is now ridiculous!  The aches in my feet are terrible and they cold all over again (almost arthritic feel) my lower back and bum cheeks have a constant dull ache - hands not too bad but still also get the arthritic symptom :(  I feel 21 in my brain, still kind of look 21 hahaha maybe my opinion BUT feel 90!!!

Recently returned from two glorious sun filled weeks in the Algarve, Portugal where strangely enough my other than tired sore feet after a long day of walking - I hardly had any pain!  Sunshine anything to do with it?  I did have a bone test at the start of my chemo and was diagnoised as osteopenia - is that why I am feeling it more?

I am at a loss as to what to do and really don't want to take medicines for it.  Anyone else going through this and have advice or positive news that it will eventually GO

Best wishes and thanks in advance..... ps two bloods/scans post treatment and all clear so far

JB xx

  • Hi JB,

    That doesn't sound unusual - I came off EOX (Epirubicin/Oxalyplatin/Crappycitabine) in January 2014 and my feet still feel cold! Not sure which of the three caused it, but it still feels weird to have feet that feel cold, even when they feel hot to touch! 

    The other symptoms might be worth discussing with your GP, as they may have nothing to do with either the chemo or the cancer. 

    The Algrave experience sounds like the perfect excuse to go back to a nice warm climate - I recommend Goa or Kerala as a Winter destination ... For some strange reason all my aches and pains disappear when I'm there

     

    Cheers

    Dave

     

  • Hi Dave

    thanks for responding.  It is the strangest medicine.  The aching is more an issue and my Dr explained the sun has a great impact on your bones but I just feel I've gone backwards to where I was when on chemo.  Not so tired as I used to be which is a good thing.  I think you right I've got an appointment soon for further scans etc after my bloods came back good so might just ask the question again.

    algarve was just brilliant, did not want to come back lol wishful thinking Trying to upload pic for you.  Not sure I got it ..... I've booked Cuba for next year May can't wait

    hope you well

    JB