Feeling useless in remission

I am 21 and in October was told I had beaten a Stage 4 head and neck cancer of the tongue and lymph nodes, but I constantly find myself unable to use my experience as a way of educating younger people of the importance of getting every little thing checked out, I left a lump on my tongue for 7 months and by the time the head and neck team took their biopsy it was too late to operate. I had 30 sessions of radiotherapy and 6 sessions of chemotherapy, as a 21 year old I found this difficult to cope with and pushed all of my friends away, I was 20 stone at diagnosis and due to illness and the problems I had with my Nasal gastric tube I now weigh 11 and a half stone, I know the pressures this can have on young women and men, and the difficulties I face daily now as an aftermath of the treatment however all I want to do is help others but whenever I've gontacted various charities and organisations I've been knocked back and I constantly feel like I should forget about the past year and a half. But it's had such a huge impact on my life and I feel like it would be a shame for people not to see that you CAN overcome these things, I don't know what more I can do, I just want to help others? 

  • Olivia

    welcome to the forum and well done you for getting through the treatment

    i to am a survivor of a head and neck cancer ... yep 30 sessions of Tomotherapy and 6 8 hour sessions of chemo.

    i too have also turned to helping others ... especially on here and someone as young as yourself is a great inspiration to others that face the same at a like age, so a great way to help others is to stick around on this site and watch for people starting their head and neck journeys.

    i also wrote a blog during my process and it's gone all over the world .... I now talk to many people who a going through or have friends or partners going through the same .... here is my blog gammaraygary.wordpress.com/.../

    i understand your frustrations with getting the word out there .... and you have a great story to tell ... so hang in there with it and just keep on banging that drum .... you will get there

    try also to celebrate the you ... we have been through enough and we are out the other side so we have earnt the right to live a little ..... we can come back to pass on that wealth of experience now and then

    look after yourself now and let us know how you get on

    vatch

  • Hi Olivia,

    I was 23 when I got tongue cancer, I did not even know you could get cancer in the tongue, and only went to get it checked because my mum made me go to the doctors, otherwise I might have left it longer.

    It sounds like you have been through the wars, I try to educate others face to face if they ask about my scars, but at the same time part of me wants to forget about the whole thing and move on. I am two and a half years since treatmement (which was operations only) and everyday I find myself thinking about it a lot less. I can't imagine what it's like with the other treatments on top. But you are right young people need to be made aware, it should be in the school teaching about cancer, they teach about everything else!

     

    Have you tried writing to your local MP, you never know they might raise a question in parliament. I might do the same myself.

    All the best to you!

  • Hi there olivia

    hows your remission going and you plan to educate the world ... all on corse I hope

    vatch