Hi Jo,

Welcome to the forum! 

Nervous? In your position I would be livid!

Have you made a formal complaint about the delays, miscommunication and the loss of your notes and lung function results? It would be useful if you did as the hospital can learn from what went wrong and take steps to stop this being repeated. 

Good luck with your treatment!

Dave

Hi Dave 

And thank you for replying, I am angry and my partner is encouraging me to make a complaint which I will be doing at some point but more concerned at the minute by waiting for results...it seems my mind is in constant overdrive with no or very little relief.

I have been told that no matter what the results are I will be having a lobectomy to remove the middle lobe of my right lung but my thinking is that they are only telling me it's benign at the minute to keep me happy because of all the screw ups so far if that makes sense. 

Jo

Hi Jo oh my god I've only been in the system since 11th January and it's been hard with tests and waiting for results ive been diagnosed with lung cancer in the right lung but mine is not operable at the moment I start my chemo this Tuesday. I do feel you should complain when your head is in the right place as I get you are all consumed with ifs what's and maybes god luck I'm sorry if this doesn't help but just wanted you to know your not alone xxx 

Hi Jo,

No-one will really know until the results come back, I don't blame you for being sceptical. I think the more experienced a cancer specialist is, the less likely they are to using phrases like "we think it is probably..."

I'm only basing this on my experience as a patient, but I've now had three Consultant oncologists and they have all been very careful in their wording to avoid giving me false hope or mixed messages. Even good news is qualified with "in all probability" or "for the time being we can assume that .... but this could easily change if your cancer becomes active again, which is a real possibility".

At least they've told you that surgery is planned, which will give you time to come to terms with that. 

Good luck with those results!

Dave

Hi Valerie

I'm sorry to hear of your diagnosis and really hope your treatment plan goes well.

I suppose I am lucky really that they are already making plans to remove mine no matter what the outcome hugs to you and good luck for Tuesday

Much love jo x

Hi Dave

I'm not sure what to believe in terms of what they say to me now...although I also am receiving copies of the mdt meetings now and it also says that they believe it to be a benign carcinoid tumour on those letters too. So after a much needed night out with friends last night that is what I'm holding on to until I hear any different....that and doing as much research as possible about recovery from my upcoming op

Many thanks jo x