Feeling a bit lost now treatment has finished - anyone else?

I’m new to the forum, hi to everyone. I had breast cancer last year, mastectomy followed by axillart node clearance, then 6 rounds of chemo which I finished in late February. Now on tamoxifen!

I’m feeling a bit lost in life. Quite paranoid, upset and generally a bit lost. Anyone experienced this?

  • Hi Scotishlady

    It is a recognised fact that people often feel like you describe when you have finnished treatment. So what you are feeling is quite normal. You have been on a rollercoaster ride while undergoing treatment. Plus you say you are on Tamoxifan which being hormone based can cause mood swings. I had Zoladex for prostate cancer and this happened to me. Without warning when I heard good od bad news, I could suddenly have tears forming which I found very embarssing. 

    Try and keep busy or read a good book often helps. It will get better I promise

    I wish you good news when you get your next results, Brian

  • Hi most people on here are like that when treatment over some stay on trying to help newcomers as you know they can be very down to start with we all try to help give what information we can and try to help. Many here are still having treatment and nead a shoulder. If you want to join us and help others. 

    Billy 

  • Hi Scottish lady.

    I think many people can relate to how you are feeling after treatment ends.

    Your life is all about appointments and plenty of them when it ends you feel left out on a limb. This is especially true for folks that have had head & neck cancer treatment,as their treatment aftermath leaves its mark and is an awful lot to cope with, as is many cancers & treatments. Sometimes people around you tend to think as youve had your treatment your all fixed and cured,which of course is not the case.

    Billygoat made a good suggestion about keeping in touch on cancer chat. You are in a position to give advice and support to others who come here,and believe me it does make a huge difference to people who are in general worried and frightened of what is to come.

    Heres hoping we see you answering posts :-)

    Take care & wishing you well. From another Scottish woman.xx

  • Hi scottishlady

    I agree with you. I had my last chemo on 31 of March and since before that I have been feeling lost lonely scared. In the beginning I was feeling horrible for no reason. After that I started to Understand but understanding didn’t help. I thought I will be happy for finishing chemo I was crying from pain and loneliness.

    today I took appointment for therapy

    I hope the therapy will help me in expressing my feelings  

  • Hi Scottishlady, yes i have, it’s very strange. I want very much to put all the cancer talk and thoughts behind me and get on with my life, I couldn’t wait- but injections that cause pain, and bad reactions to my hormone tablets have left me feeling just as ill some days as I was on the chemotherapy. I’m on a ‘treatment holiday’ at the moment until they find something that doesn’t have such a bad reaction ( I could barely walk).

    However despite all that I am determined to keep going as on good days I can tell I am getting much  better, and there are more and more good days. 

    The main problem is that now I have more energy, more time and more zest for life- I can’t remember what I did before! What was my life like before? What did I do to socialise? where did I go? Some things are not even going any more!  (I also spent two years looking after my dad- the last six months of his life we actually moved in to his house caring for him full time, and I got very little help, I was utterly exhausted and extremely isolated and then shortly after he passed away last year I got this diagnosis!)

    I also feel a bit lost like you and although a couple of friends have been rock solid, most have drifted- unable to understand how tiring and depressing being sick from chemo really is. I’ve found the best thing for me is to make plans, just little things, it gives me something to focus on as I find looking into a diary with nothing in it but medical appointments is just awful. 

    Another factor is that I no longer want to waste any energy on things that don’t matter to me so a whole reassessment of life is going on, which is good but does leave me feeling a bit adrift. 

    I hope you feel better soon. Maggie 

     

     

     

  • Scottish lady 

    i am so relieved to read this as I thought it was just me feeling low and sorry for myself. I to had high risk stage 3 prostrate cancer and under went High Dose Brachatherapy and recently a. Course of Radium treatment with terrible after effect,  I have for some time been on medication including female hormone treatment which I will be on for some years.

    what I fell is not relief but somehow forgotten, this may seem bad but I went through the early morning treatments and still have severe hot spells sweating etc. I felt guilty when I saw some like yourself who underwent very intrusive surgery eve though I suffered with the side effects of the treatment.

    what I now feel is that I am simply dismissed it's all over get on with it and then comparisons that other relationships don't want to hear it. I don't know how to feel so seeing your comments in a way helps me as I know I am not alone.

    i do not know you but somehow have deep affection for your thoughts and views. Wishing you every happiness as your future goes forward