Fears about chemotherapy

Hi all a quick explanation of my situation. I'm 19 years old and 3 months ago I was diagnosed with stage 4 rhabdomyosarcoma. A very rare and dangerous cancer. My treatment for this will involve at least 9 cycles of IVADo and radiotherapy in the future as well as maintenance therapy afterwards if everything goes well. My last cycle (cycle 4) was a very big struggle for me. I felt very exhausted and I felt quite sick for just under a week. This led to me having a very tough time with anxiety as when I’m feeling sick and tired I often worry about future treatment and how that’s going to make me feel. This led to me panicking quite a few times and struggling to control my breathing, having a high heart rate as well as being emotional and quite irritable. Now I'm going in for my 5th cycle today I'm terrified about feeling horrible again. They have removed one of my drugs doxorubicin becasue u can only have it for 4 cycles and also I've started sertralin an anti depressant to hopefully try keep my anxiety down. I'm praying this will make a difference but still I'm terrified about going in for chemotherapy again. Any words of advice would be appreciated

  • Hi sorry to read your going through such a rough time. Please contact your oncology team if you do experience any side effects or are feeling anxious that's what they are there for to help and support you they are the best equipped.

    I hope you get through this time easier.

    Louise xx

  • Bless you I know it is tough. I am to experience anxiety and am currently feeling sick and having stomach cramps. Try to just focus on one day at a time. It helps. Find something that brings you joy for me it is watching stuff on fashion. Distraction can really help. There are some excellent anti sickness meds now, if you are feeling sick you may need a higher dose, chat to your doctor or care nurse. Remember you can alway call your chemo unit for advice. What you eat can also help with sickness and energy. A good healthy diet with no additives (I find they make the sickness worse) fresh fish, chicken and veg, try snacking on dates. But if you need to treat yourself do it, my guilty pleasure is sour sweets. Snacking is great for sickness (little  and often is key) and also ginger biscuits or ginger cake helps me, but everyone is different. And don't ever forget you are amazing and you can do this .  Also you may wish to ask your doctor about Mirtazapine for the anxiety, it also can help with sickness, but please check with your doctor. All the best and let me know how you get on. You can do this! X