'Fatigue' similar to 'Jet Lag' in Multiple Myeloma

Having, at the age of 78, been diagnosed approx. 1 year ago with advanced Stage 3 lymphoma / myeloma I  am now delighted to be in 'remission'. My treatment has included radiotherapy and 8 cycles of chemotherapy which I tolerated very well except for a profound fatigue and cognitive impairment. What is not clear is whether the fatigue experienced throughout treatment and is continuing is a symptom of the disease per se or an unwanted side effect of the various treatments received. During my professional career, I frequently experienced 'jet lag' as a result of long international flights across many time zones. It seems to me that the fatigue associated with my malignancy has much in common with jet lag, including daytime dreaming i.e.rapid eye movement (REM) sleep); even after good quality uninterupted night time sleep and other features ( e.g. impaired cognition, poor motivation) which distinguish fatigue from simple tiredness.

  • Hi,

    I've got myeloma, diagnosed in Oct 2016. 4 months CTD chemo, 2 weeks rad got me a complete response for 21-24 months. 8 months on VCD at relapse got me another complete response. However, I don't feel any better and feel continuously ill. Such is life.

    I too have had extreme fatigue since diagnosis, so I think it's partly the disease and partly the meds. Seems to be permanent. I've also got the cognitive impairment. No memory, long or short, can't think due to not having an internal dialogue, and now finding it difficult to read and respond. Basically an empty head, living in the moment.

    But I ent ded and I've got 7 grandkids - life is sweet.

     

    Best Regards

    Taff

  • Hi Taff,

    Thanks for replying.

    Agree that continuing adverse subjective feelings probably due to malignancy itself which never goes into complete remission even though haematology ( M protein, Calcium, renal function, etc) now normal. Nevertheless, still grateful for extension of life's pleasures ( another christmas with 5 grandchildren).

    Kind regards

    David