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enlarged lymph nodes - worried!

16 Mar 2018 13:39

Hi all! Sorry if this is slightly long to read.

I'm 21, and female. In november, I noticed one of my lymph nodes in my neck was enlarged, without any other signs of illness. Shortly after my groin swelled up, and then I noticed another in my neck was enlarged too. The groin 'swelling' seemed to go down, I occasionally worried about the ones in my neck, but didn't do anything about it. Since november, I have been getting increasingly tired, however this comes and goes. Some days I am fine, other days I am exhausted, and it is completely unrelated to how much sleep i've got! One in particular on my neck seemed to be growing larger, and I then noticed I could actually still feel the one in my groin. I've also seemed to have slightly tender side of my breast, on one particular side, which comes and goes too. I don't know if this is related.

I finally went to my GP on monday, and she examined me and found some more  - another in my neck, one above my collar bone, and another in the other side of my groin. So in total I have 6, that I know of. I'm also convinced another one has swelled up in my armpit since I saw her, but I don't know if this is stress related? The day it felt swollen, the side of my breast on that side was also tender to touch (the opposite to where it has previously been sore). I've also seemed to have developed a 'tight chest' feeling and a chesty cough when I breathe in deeply since seeing her, after she pressed down on my stomach and told me to inhale/exhale, but then again, maybe its always been there/ is stress related? I'm just noticing it now?
I had a chest x-ray this morning, have a CT scan on my neck in just under 2 weeks, and blood tests in about 3 weeks. I feel a bit confused to be honest, I know they're testing 'to rule out' cancer, but what does this actually mean? a specific type of cancer? any cancer? I don't really understand the stages of diagnosis, and how likely really is this to be cancer? I don't think I've had any significant weight loss, and I definitely have not had night sweats to the point I've drenched the sheets, i've woken up hotter than usual some nights but that could be a whole range of things.

 I know lymphoma can cause enlarged lymph nodes - does anyone know if 6 palpable nodes is a bad sign? The one in my neck that I had originally noticed seems to feel quite hard and doesn't move, but my GP did say the ones in my groin area are movable and so that is more 'promising'. I'm trying to stay positive but the worry is really eating away at me, at a time where i'm trying to write my university dissertation too!

Any kind of insight/opinion would be really helpful/appreciated, its driving me crazy!

 

EDIT: I also had glandular fever 2 years ago, so we know it isn't this. 

 

enlarged lymph nodes - worried!

17 Mar 2018 11:41 in response to SunshineEm

Hi SunshineEm. Welcome to the forum.

I'm not a doctor and to the best of my knowledge no one else is here. 

Doctors have a massive tool box of tests backed up by years of training. The trouble is that there are few tests that can definitively say you've got such and such a disease. But rather the tests say that some level of a particular protein or hormone is higher or lower than normal, or there's a mass in this point in the body, or this nervous reaction isn't what we'd expect from a normal person. Indeed, any of these tests can return negative or normal results. Individually, one test result usually tells the doctor nothing; it's only when results from multiple tests are combined together that the doctor can hazard a diagnosis. 

So when faced with a patient whose diagnosis isn't obvious, the doctor reaches into the toolbag, and pulls out a whole set of tests. Which particular tests are dictated by guidelines and the doctor's own experience of which tests to run with the patient in front of her. And so you suddenly find yourself having multiple blood tests, and maybe imaging such as ultrasound, MRI or CT. Or maybe you're thrust on a scary two week urgent pathway.  

Now, often the first thought in your head is OMG, the doctor thinks I've got cancer! I'm going to be dead in a year's time!! If you then look up the tests on Google and find that they're used in cancer diagnostics then your anxiety level really ramps up a notch or two. That's only human, but the reality is that the doctor is simply running a series of obvious tests (obvious, if you're a doctor) and when the results come in, maybe there'll be enough information to figure what's wrong with you. Until then, you have an undiagnosed disease.

All the tests you've had so far seem reasonable for a patient presenting with your symptoms, but no one will know what it is until the results are in, but overwhelmingly the odds are that your body is fighting some infection. 

Please keep us updated with your results. Good luck. 

enlarged lymph nodes - worried!

17 Mar 2018 21:03 in response to telemando

Thank you for your reply, I really appreciate it.

Its funny because what you said about googling the tests and seeing they're used in cancer diagnostics and then anxiety ramping up... its exactly what i've been doing this week (haha). Not to mention googling my supravicular lymph node being enlarged and seeing a multitude of studies suggesting it "always" suggests malignancy - its silly really why we do this to ourselves! Only our doctors can find out, not google.

I will keep you updated. Thank you.

enlarged lymph nodes - worried!

17 Mar 2018 21:36 in response to SunshineEm

I've done it myself, and ended up frightening myself silly. 

I suggest you put Google back in its box for now. We're always here if you want (or need) to talk again. 

enlarged lymph nodes - worried!

23 Mar 2018 12:56 in response to SunshineEm
So I've just had my chest x -ray results, and they were clear! Obviously feeling extremely relieved and so so glad, although the worry hasn't completely left me. Does a clear chest x-ray rule out lymphoma or other cancers? or does it just mean I don't have it in this area? I know obviously its a good sign I don't have a mass or anything along those lines in my chest! My CT scan is on my neck, as my largest node is there and is the one shes most concerned about, and that is on Wednesday so now its just a matter of waiting again.

enlarged lymph nodes - worried!

2 Apr 2018 19:00 in response to SunshineEm

Sorry I don't have any answers for you but I am going through the same thing.

I only have one hard swollen node above my collar bone that I have found anyway. I have been for an ultrasound and ct scan so hopefuly will get some kind of results tomorrow. 

I have also Googled and found nothing good so expecting the worst.

Hope you get some good news. 

All this worrying is awful 

enlarged lymph nodes - worried!

5 Apr 2018 15:37 in response to Summer88
The worry is the worst part - I just want to know! Did you get your results back? I was told a 2 week wait for my ct results... and only had my bloods taken yesterday so I wont have any further answers now until next week. I hope your results were normal and you can finally stop worrying and relax!

enlarged lymph nodes - worried!

23 Aug 2018 12:28 in response to SunshineEm

Hi SunshineEm, 

i am going through a similar thing! I’m 20 and soon to be going into my final year of uni so I deffo don’t need this stress!! I have had a swollen, painless lymph node under my neck for 3 weeks now, without any illness. Yesterday the lower part of my neck near my collar bone is feeling swollen and fat, and hurts a bit. I’m still waiting for an appointment with the ENT. 

Did you ever find out what yours was?? 

Thank you xx

enlarged lymph nodes - worried!

23 Aug 2018 13:22 in response to Ells2098

Hi Ells2098,

Sorry to hear this. I am still going through testing, so no unfortunately, but it looks like aggressive lymphomas are ruled out. My cough is still present, and I started to also get pain and actual swelling above my left collarbone within consuming a few sips of alcohol in april/may, so I convinced myself it was hodgkins. I was told by the drs in wales (I was at uni there) 'no evidence of lymphoma' at the end of June. I had swollen lymph nodes in my neck, above collarbone and under my armpit but with the use of ultrasound they didn't think they appeared suspicious. The largest one is 3cm x 1.4cm. 

The alcohol pain continued, and one in my neck appeared to grow, so I went for a 2nd opinion back here at home. I have had a pet scan, which showed some uptake in my right cervical and collarbone nodes, but no where else, so I am having a biopsy to rule out a low grade lymphoma (aggressive/hodgkins would have shown higher uptake or 'lit up' more on my scan). My uptake was scored at around 3.5, which could be a false positive caused by inflammation, which honestly is the most likely cause.

Anyone else here who may read this and have experience of brown fat, is it easy for the radiologist's to read through? I had uptake in axilla and mediastinum which was deemed consistant with brown fat, but it has been playing on my mind a little that it may have 'hidden' something.

My advice to you, ells2098, is DO NOT google. It drives you insane. Easier said than done, I know, but the chances it is not lymphoma is much greater than the chances it is. Google is a dangerous place. I was absolutely convinced I had hodgkins because of my alcohol reaction yet the lymph nodes on the side that hurts and swells (so much that a lump is visible) didn't even light up on my scan. It is my assumption that perhaps I have contracted a virus which is almost 'mimicking' lymphoma, as this can happen too. 3 weeks is not an awfully long time to have a swollen node, sometimes we contract viruses and infections which are not detectable because our immune system is working well and fighting them off. I understand you will be anxious, and you should absolutely push for the right tests, but don't make my mistake and convince yourself of something before there is clear evidence as all it will do is raise your stress levels - making you feel ill and possibly experience other symptoms. 

Hope it all goes well with ENT Xxxx

enlarged lymph nodes - worried!

23 Aug 2018 13:50 in response to SunshineEm

Also a quick thought, have you been tested for glandular fever? You probably have, but I had it just over 2 years ago and I didn't feel ill at all at first! It took quite a few weeks to come on but I looked 'puffy' with swollen glands and tonsils, didn't go to the dr because I didn't really think much of it until suddenly it almost erupted into action with my one tonsil ridiculously huge and I felt very ill then! 

enlarged lymph nodes - worried!

23 Aug 2018 15:34 in response to SunshineEm

Hi SunshineEm, 

Thank you so much for getting back to me so quick! I am so sorry to hear you haven't got a difinitive diagnosis yet, but thats positive that it is not an agressive lymphoma. I really hope that you don't have hodgkins or any form of lymphoma, and I hope they give you a simple and easily treatable answer! 

Thank you so much for your advice, I must admit I have been on google way to much and is has driven me mad, I have been soooo worried! Today it feels like someone is strangling the left side of my neck, and it feels like something is stuck in my throat, it is awful. I rang the doctors and it turns out they never sent off my referal to the ENT so that stressed me out even more so I have got to wait even longer. 

In regard to your glandular fever idea, that is something I hadn't thought of. I got tested for glandular fever last year after a horrendous case of tonsiltis but it came back negative, I may possibly have it now, as it is said to take 4-8 weeks for symptoms to show? I will mention that and get a blood test done (my worst nightmare lol). Just hoping it is nothing sinister. 

Thank you so so much for getting back to me. I wish you the best of luck with your biposy. If you can please keep me updated and I will too. xxxx

enlarged lymph nodes - worried!

24 Aug 2018 21:19 in response to SunshineEm

Hey!

im having the exact same problem! 2 in my neck and 3 in my groin since April  and all blood tests and Ultrasound scan came back fine. Now I’m being referred to the haematologist for further checks as more lumps came up. My lumps don’t change shape though, they grow to about less than 1cm and stay there, and moveable (ish). Tight chest, no other symptoms except some aching where the lumps are and some tiredness (but not exhaustion).

I feel your frustration being told everything is “normal” when lumps are still present! Have you had any results  back or anything to say what the causes are? I’ve been told it’s very rare but you can get a bacterial virus without actually being ill. 

I am going crazy with google and have diagnosed myself with every form of cancer. It is taking over my life. The anxiety is so bad and I’m getting so stressed about it!!!!

i really hope your results come back clear! Keep me updated Happy x

enlarged lymph nodes - worried!

25 Aug 2018 01:19 in response to Jasmine27

Oh no, sorry to hear that. Google is an absolute nightmare, I know the feeling soo well and it really is horrendous! But we do it to ourselves unfortunately... you just have to think, IF it is cancer, it will be found. IF it is lymphoma, it is extremely treatable. Don't let your head run away with you with fear as the chances are it isn't, the drs see so many people with swollen lymph nodes all the time and i think its something like 0.4%  turns out to be cancer!  But if it was, you would get through it and yes it wouldn't be pleasant but you are much stronger than you think.

No they don't know what, it might potentially be a low grade lymphoma but the biopsy will reveal that... I haven't had it yet. My bloodwork has been fine too, i've had so much taken for all sorts of autoimmune things etc. I was slightly folate deficient in april and still am now but other than that my blood is fine. Did have a very slightly raised ESR in april but the gp referred to this as a red herring at the time and all my blood tests since have been fine. Haemotology will give you all the right tests, they test you for literally everything under the sun, HIV, hepatitis, autoimmune etc. Aswell as checking kidney, liver, LDH levels and so on. They will probably give you a ct scan too. 

Try not to worry, less than 1cm isn't technically enlarged even if you can feel it - I don't mean to make it sound trivial but I wish I had someone telling me all the facts back in april! the drs consider my 3cm x 1.4cm one very small, which it really is compared to most lumps which turn out to be cancer! But to me it feels huge haha!! If you are slim you are more likely to be able to feel them under your skin too, especially in the groin, I can feel loads but they didn't light up on my pet scan so they are fine! Stay away from google, and try not to become worried unless the drs tell you to worry! A positive mindset makes all the difference - i'm only just learning this.

I will report back once I have biopsy results, i'm seeing ent for him to book excisional biopsy next week, have a FNA week after (don't know why i'm having 2) and then have an appointment with oncology again at the end of september to get the excisional biopsy results... so it will be a while unfortunately! X

 

enlarged lymph nodes - worried!

28 Aug 2018 14:40 in response to SunshineEm

Hi, During a moment of weakness I went back to google and found some information on a rare condition called 'Castlemans Disease". It has many of the symptoms we are describing particularly the swollen groin lymph nodes that you two have but I don't. It says that the disease is NOT cancer but mimics it. Ill insert the link here if you wanted a read, just thought maybe it was worth mentioning at your next appointment SunshineEm? https://www.cancer.org/cancer/castleman-disease/about/what-is-castleman-... I am still panicking, and it feels like I am being strangled, and feels weird in my me neck when I swallow, like something is stuck! 

Please let us know your biopsy results, and I couldn't agree more with you about the positive mindset, i've been forcing myself to try and remain positive. Hope is all okay for you both. 

 

E xxx

enlarged lymph nodes - worried!

30 Aug 2018 15:11 in response to Ells2098

Hey Ells2098

have you had any more info on your symptoms? I’ve just been referred to a haematologist today so just waiting for the appointment to come through. Will let you know how it goes. Woke up with night sweats last night! Was so annoying, had my window open too!!!!

im bad for googling too so please please try not to do it as it will increase your anxiety even more. I’ve learned the hard way and now all I have to do is think about the situations I’ve researched and then sends me into panic.

keep positive and keep going back to the docs to get more information. Are you allergic to anything? Do you smoke? Also anxiety makes the muscles tense and sometimes makes me feel like I can’t breathe and something is stuck in there.

i hope everything will be okay for you xx

enlarged lymph nodes - worried!

3 Sep 2018 21:21 in response to Jasmine27

Hi Jasmine27, 

Good luck with your new appointment, please let us know how it goes! In regards to the nights sweats that’s something you should deffo mention, I can understand that must have been scary for you! 

In regard to my symptoms, the swollen lymph node on the left side of my neck is still there, it’s been 4 weeks now since I noticed it. It’s still not painful, and I can move it under my finger and it hasn’t changed in size, it did shrink at one point. My left tonsil is STILL bigger than the right and I still have a red spot on the left tonsil with a vein going into it that hasn’t gone! But still..not ill!! 

Have had some horrendous neck pain on the left side that starts in my left upper back and goes up my neck and into the base of the left side of my skull. It made me feel so sick, painkillers did nothing. My boyfriend even massaged it with deep heat which did nothing. That lasted 3 days last weekend and then went, then came back for an hour or so this Saturday just gone. 

Neck tightness has gone a bit which is nice. Ears have been blocked and ringing for about 4 days (it’s driving me insane) so doctor gave me olive oil ear drops which haven’t done much so far, so have been feeling very dizzy due to balance being affected. Doctor said that I’m a “hypochondriac” and a “worrier” and I need to stop thinking it’s something sinister like cancer. It makes you feel so stupid when they say that..I can’t help having health anxiety, I wish I didn’t!! 

Had a blood test today...let’s just say that is a massive deal for me. I’ve only ever had 3 in my life and I do not handle them well. My Doctors surgery always has to book me in for an extended time slot as it takes them soooo long to calm me down, I get in a right state. My mum came with me and tried to keep me calm but I was still having a crazy panic attack. However they managed to do it lol and are testing the following: 

-Glandular Fever

-full blood count

-signs of inflammation 

-thyroid 

-kidney and liver function 

 

I should get the results back at the end of the week. Obviously I will be relieved if it all comes back okay but then 1) it still isn’t answering why this lymph node is swollen and 2) blood tests aren’t ALWAYS accurate I’ve heard?

in regard to any allergies, no I don’t not that I’m aware of anyway..but I do get a blocked and runny nose randomly sometimes that lasts a few hours it’s really weird..not sure if it’s dust or hay fever. I also get hives on my hands sometimes that doctors can’t find he cause of as they are so random and adhoc. I also don’t smoke, I don’t take any drugs and I don’t drink that much.

 

Sorry this reply was so LONG but I wanna be able to help anyone who is panicking like me and detailed answers I find are a massive help! 

Remeber remain as positive as you can xx 

enlarged lymph nodes - worried!

11 Sep 2018 10:16 in response to Ells2098

 Hey,

You may have an  ear infection or glandula fever,  have you had any results back ?  I hear it takes awhile for it to make you feel ill but that could be very positive if it’s something simple as that .   I hope you’re feeling okay and you’re not as worried .

 

 last week on Tuesday I had eight blood test to test for absolutely everything then that evening I received a text saying I have to go in for a CT scan next week which is today .  I have to say it was the most strange and scariest thing ever and I don’t get my results back until next week or the week after .  I’ve basically had a full body MOT .

 

 Will let you know of results soon .  Remember remain positive and it will all be okay  X

 

enlarged lymph nodes - worried!

11 Sep 2018 12:29 in response to Jasmine27

Hi, 

They thought at one point it could be an ear infection but it hasn’t devloped into one, and the blocked ears has gone now, still sometimes rings. 

My blood test results came back “normal” for everything that they tested for that I mentioned above. So baffled!! The swollen lymph node is still there.. so I am still worried. On one hand it’s good my bloods come back good, but on the other it’s not because what is it not picking up?? Left tonsil is still swollen, and I keep getting tonsil stones come out for it. Just PRAYING it’s just a slight tonsil infection or something. 

I’m Doing work experience this week in a PR and Social media office and I was having such a nice time and then I remembered this forum and got so anxious and down again, but as you said just got to remain positive. 

8 blood tests!! How did you do it, I can’t even manged one! I hope the scan went okay!! That’s good that there are checking for everything. Last week I had some chest pain too. 

22 days and counting till my ENT appointment - it needs to hurry up!

Please let us know how it goes, sending positive thoughts your way lovely!! X x 

enlarged lymph nodes - worried!

22 Oct 2018 11:22 in response to Ells2098

Hi 

I have been reading your conversations in the hope it will make me feel more optimistic....which has alittle.But unfortunately I have googled myself stupid and totally convinced myself I have lymphoma ....I am petrified !! I have a swollen node on side / back of my neck for weeks ,finally got to see advanced nurse practitioner on Thurs and she checked other areas ...no more lumps.She seemed to think that as lump was moveable it wasn't sinister but when you read online (ooo which I have) it's so contradictory .She said come back in 4 weeks if its still there but it hasnt changed in last month so cant see it changing by then .Have booked  another appoint for Wednesday this time with a doctor for 2nd opinion the not knowing is driving me crazy .Hope all goes well for those waiting for results/appoints etc hope good news is posted soon .

enlarged lymph nodes - worried!

22 Oct 2018 13:07 in response to dmar

Hi dmar, 

I completely understand what youre going through with the axiety and convincing yourself that you have lymphoma, this is what I have been like for the past 3 months!! All my bloods came back fine and I saw an ENT who put a camera up my nose to see my throat which he said was all clear. He felt my swollen lymph node which is STILL swollen and said he is not worried as I have a "slender neck" so it is likely that Ill be able to feel them more, however he did agree and said it is swollen and a lot more promenant than the others, so therefore I am having an ultrasound scan on the 8th of Nov to see if they can further understand it. 

 

I have got to the point now where it is what it is and there is nothing I can do. I spent the whole of August and September worrying, having panic attacks and not enjoying my life so I am just going to start enjoying life and waiting till my ultrasound I guess. I know that is all easier said than done, but it does it get a lot easier I promise, just honestly stop googling things, it was the worst thing I did. 

 

Keep us updated! x 

enlarged lymph nodes - worried!

22 Oct 2018 14:53 in response to Ells2098

You are absolutely right X Have promised myself no more Google !!! Thank you for reply helps so much to hear from others going through same experience .Hope all goes well on the 8th .

enlarged lymph nodes - worried!

22 Oct 2018 20:55 in response to dmar

Hi Dmar, if it helps you to have any hope, mine turned out to be completely fine and its now coming up to 1 year on since I first noticed it... still hasn’t gone away, and is visible to the eye when i look up, but it isnt cancer!! Hooray! We can have enlarged nodes for a long time without it being sinister, as if they have once swollen from viral activity and never recovered - ‘scar tissue’. Hoping for the same outcome for you too. Keep strong x

enlarged lymph nodes - worried!

22 Oct 2018 21:42 in response to SunshineEm

Hi sunshineEm , That's great to know thank you.I don't think the fact I keep prodding it every hour is helping , I'm making an effort to stop googling and pokeing and stay optimistic .You guys have helped so much thank you x

enlarged lymph nodes - worried!

23 Oct 2018 22:38 in response to dmar

Hi all,

 

i have also had my CT results and 8 blood tests results and all came back normal!!! 

Makes me feel better that you’ve had yours for a year now. I’m hoping I’m in that situation. Going to ask the docs to take me through my results as the haematologist couldn’t do it today so I just got told by the receptionist

Woll let you know the update.

 

DONT GOOGLE I know it’s hard x

enlarged lymph nodes - worried!

24 Oct 2018 09:05 in response to Jasmine27

I'll just remind everyone that I don't have any medical qualifications.

From the research I've done, it's apparent that lymph nodes do not always return to normal after they've fought off an infection. Some people end up with a permanently swollen node, or tonsil, which they may discover at some future time, or may have concerns about if it doesn't subside after an infection.

If you find a swollen node or tonsil then the statistics are overwhelmingly in favour of this NOT being due to cancer. Of course, if it's swollen for more than four weeks then discuss with your GP, but the message should be not to panic. Just get it checked out and if the GP wants to refer you for more tests, accept that the GP is just being cautious. 

enlarged lymph nodes - worried!

9 Nov 2018 23:47 in response to dmar

Hi everyone, 

 

its so so nice to hear that you are all doing well, I bet it is such a relief! So happy for you Sunshineem and & Jasmine27..and I hope you get closure dmar!

i had my ultrasound scan yesterday on my neck, and the lady who did it saying that despite there being some swelling in my lymph node, it isn’t anything to worry about, and said it is normal and that it could stay that size forever. Obviously even though I was happy I still doubted how they could tell the mass wasn’t cancerous just by some shading on a screen and I asked for a biopsy but they said it wasn’t needed. 

The doctors have found some swollen bone cartilage in my chest though - costochondritis! But today but chest has hurt so much, to the point where I literally could not breathe. Laying in bed now still in so much pain - feel like it’s never ending. 

Hopefully everything gets positive from here. We just have to appreciate and enjoy every single day, even the crappy ones, I mean come on Christmas is nearly here!! 

Sending my best wishes to you all x

enlarged lymph nodes - worried!

18 Nov 2018 18:12 in response to Ells2098

Hi! 

I have just read your conversation and wanted to say I too am having the exact same problems! 

3 months ago I found swollen lymphnodes in my neck (2 of which were big). I then had blood tests done and an ultrasound. I was told that the scan showed they were reactive and was asked to go back 6 weeks later. In that 6 weeks I did nothing but worry and google and convince myself I had cancer. It made me so ill and then I felt like I had a lump in my neck. I was then referred to ENT and they put a camera up my nose (I fainted). He said my throat was normal but some of my throat muscles had tightened which is due to stress. So basically I had been worrying so much about my enlarged lymphnodes that I actually created another problem. 3 months later I feel like they are bigger now and the haematologist doesn’t seem very willing to pursue it further. Is it normal to have swollen nodes for this long ? They’ve been there for ages and it’s drivinf me mad! My bloods are normal but you still hear that blood don’t normally show anything anyway! 

 

Have you got to bottom of yours yet? Would be really interesting to know as sounds like your further down the timeline that I am! 

 

Georgina x

enlarged lymph nodes - worried!

18 Nov 2018 21:21 in response to georgina123

Hi Georgina. Welcome to the forum.  I'll remind you that I'm not a doctor.

As I said in my earlier post, reactive nodes don't always return to normal. Sometimes they stay swollen. So yes, it is normal for some nodes to remain swollen. 

What isn't normal is obsessing over something which is a natural part of your body's defenses. You've been checked out and given the all clear. Time to accept that, stop worrying, and get on with enjoying life. 

enlarged lymph nodes - worried!

30 Nov 2018 01:40 in response to SunshineEm

Hi there! 

I just got through reading your conversation, and I know you've heard this before but this has helped me out a lot! I have had three lymph nodes that have been on my neck for the last two months... It doesn't help that the right upper part of my abdomen has formed this lump on it! I keep freaking out and everyone keeps telling me I am fine even though I always feel weak and tired. I haven't been able to eat full meals in over a month and I keep losing weight. The sucky part is that I am on so many medications, that I cannot tell if it is just multiple side effects. I had a CBC and everything turned out fine, but I hate the fact that I can't even run without feeling light headed and like my heart is about to beat out my chest. It sucks! Google is too evil for me !!!!

enlarged lymph nodes - worried!

14 Dec 2018 18:45 in response to Ohboy99

Hi all,

im so relieved I found this post! I am another one in the same situation. I recently noticed an enlarged lymph node. On the right side under my jaw which was around 6 weeks ago. I went for my ultrasound and he said he could see some plus one lower down my neck that looked ‘reactive’ but told me not to go away and worry and to follow up in a month with another ultrasound and blood test (already had a normal blood test result). Ive since noticed one come up under my armpit and another couple of more tender nodes enlarged on the opposite side of my neck. I to am freaking out!! Im 27 years old with two little boys (2 years and a 5 month old). Im finding it so difficult to get on with day to day activities at the moment because I’ve convinced myself it must be lymphoma! I have no other symptoms apart from tiredness but I have a 5 month old who gets up 3 times a night so I’m assuming that is more likely to be the cause. Should I take the gps advice and not worry? If it was anything sinister would this likely have looked different to them on the ultrasound? Or does lymphoma just show up as reactive nodes? I’m driving my partner mad as I’ve gone into a state of sadness and especially around Christmas time with my two little ones it’s not great :(. I have honestly just convinced myself there could be no other reason for all these enlarged nodes to be appearing through the period of 6 weeks when I haven’t been sick ! 

 

Any words of reassurance would be really appreciated ! Am I totally over reacting? 

 

Katie x

enlarged lymph nodes - worried!

14 Dec 2018 20:51 in response to Kac17

Hi Kac17.

I should start out by saying I'm not a doctor. 

Please don't panic. Reactive nodes are good!  It means a node which has swollen to fight some infection, which is what they're supposed to do. You said yourself you don't have any other symptoms of lymphoma, plus your blood tests were normal. 

Lymphoma at your age is very rare, but infections are common. The overwhelming odds are that you've got a generalised viral infection which your body is fighting, hence the swollen nodes. Your GP is right to tell you not to worry. Enjoy Christmas with your kids and your partner. 

 

enlarged lymph nodes - worried!

21 Dec 2018 10:12 in response to Kac17

Hi all, 

4/5 month history of a swollen preauricular lymph node (next to my ear) which I ignored due to being a medic student stressed at University- no time. My colleague who is a medic palpated and gave a deferential of a cyst. 

Anywho, I saw the GP explained my symptoms (Had no influenza all year) he referred me for an ultrasound in the upcoming weeks. The GP stated it seems normal- either a lymph node or a cyst but the ultrasound is for diagnosis purpose. I'm ******** bricks tbh because let's face it, it's not normal to have a swollen lymph node with no infection.

I hope this helps and I will update you with the results. 

enlarged lymph nodes - worried!

21 Dec 2018 11:07 in response to shez1234

Hi shez1234.  Welcome to the forum.

I'm most definitely not a medic. All I can do is report that there have been many instances here of people who have swollen nodes with no recollection of an infection, who have had them checked out some months later, only to find that they're all clear and there's noting to worry about. 

We're not always consciously aware of having an infection.I know from personal experience that lymph nodes swell up, even though we feel otherwise well. I also know from reading other people's experiences that nodes that do swell for quite legitimate reasons, sometimes never go back to normal size. They stay as a permanent but quite benign reminder of what has happened to them.

So, please try not to panic, and try to get on with your life and studies.

However, as a future medic, you should maybe let this episode be a teaching experience, and remember the worrying effect that simply ordering a test might have on a patient. 

enlarged lymph nodes - worried!

3 Jan 2019 23:05 in response to Kac17

I am so glad that I am not alone in worrying about enlarged lymph nodes.  3 months ago I found a lump on the right side of my breast.  I had a scan and they said it was just a lymph node not cancerous and your able to feel it due to being slim (I've not really lost weight so don't understand why I can feel it now and haven't discovered it before).  Since been to the Doctors twice more as felt another lump near it, having pain in groin and back and also frequent colds with chesty cough.  Each time they have said nothing to worry about and pain is due knots in back so need to go to chiropractor (which I'm doing tomorrow).  I too have two kids and can't stop thinking that this would be my last Christmas, I won't see my toddler do his first nativity, etc.  I know it's ridiculous but I can't stop worrying after searching on the internet.  I'm driving my partner mad but can't stop.  

enlarged lymph nodes - worried!

3 Jan 2019 23:26 in response to Kay83

Hi Kay83. Welcome to the forum.

Unfortunately, most of us don't a lot about how our own body works; what's normal and what's not. Many people are hyper-aware of the possibility of cancer, and much of the time any information you find on the web is less than reassuring.  It makes for a worrying time.

The fact is that lymph nodes are an important part of the immune system. They are constantly fighting off infections, and most of the time they do it so quietly that we're not aware of the great job they're doing. Then sometimes one or more put up a stronger fight than normal; they swell up and maybe become painful - sometimes very painful - before (usually) settling down again.  But settling down and returning to normal can take a long time; often weeks or months, and now and again a node remains permanently but harmlessly swollen. And in winter, it's not unusual for the body to be fighting off serial infections, one after another, with the same nodes apparently swollen and not going down.

All this activity is quite normal - indeed, without it we'd all succomb to the first infection that came along.  And it's quite possible that swollen nodes are your bodies way of fighting the coughs and colds that you mention. So please try not to panic. 

 

enlarged lymph nodes - worried!

11 Jan 2019 01:20 in response to telemando

Hi,

ive had the exact same issues, enlarged lymph nodes in neck and groin. I’ve got no other symptoms like fever or chills or pain, however I’m constantly itchy. I’m a 20 year old male in my last year of university and I’ve got serious exams next week and this couldn’t have come at a worse time, I’ve had my bloods taken and am awaiting results. Like everyone else here I’ve googled every symptom and can’t sleep at night with worry, I’m sad and miserable all the time because of the worry and can’t study for my exams. 

enlarged lymph nodes - worried!

11 Jan 2019 01:44 in response to Jakew98

 

Hi Jake,

I am so sorry that you are having these symptoms at such an important time in your life. Could it be due to the stress of your upcoming exams?

Instead of consulting Dr Google, continue with your revision. You will only suceed in scaring yoursel for no good reason on Google, as many of his sites are out of date or poorly researched.

I sincerely hope that your bloods don't show up anything untoward and that your symptoms settle down soon.

Please keep us updated and remember, that we are always here for you.

Best of luck with your exams!

Kind regards,

Jolamine

enlarged lymph nodes - worried!

11 Jan 2019 08:57 in response to Jolamine

Hi Everyone, 

It is so good to read everyones posts and share experiences here, I had my first appointment with the ENT this week, who found several inflamed lymph nodes on the ride side of my neck via ultrasound, they didnt offer me any advice or any indication of what it could be, but have refered me for a biopsy, my mind is now in overdrive and i am convinced since they didnt just discharge me they have found something dangerous, has anyone got any experience of this turning out to be nothing after the biopsy? i am driving myself slowly mad! xx

enlarged lymph nodes - worried!

11 Jan 2019 09:50 in response to mcaf789

Hi!

There's people here who have had their full tonsills removed and happened to be ok. So, I guess a looooot more have been in the same situation from node biopsy, since it is usually easier to do and is less invasive that a tonsillectomy. If it is a FNA you'll be totally fine the same day, while in a tonsillectomy... let's say you wouldn't be in your best shape for a couple of weeks. Your doctor might have got you through a biopsy just because it's easy to do and will tell you what's going on with more accuracy than just looking at them. So, try to stay calm, get those nodes checked and don't google too much.

Waiting time sucks, but at the end is what will put your mind at ease.

x

enlarged lymph nodes - worried!

11 Jan 2019 19:41 in response to mcaf789

 

Hi Mcaf,

I am so sorry to hear of your worry about being referred for a biopsy. They didn't offer any indication, because they didn't know.

A biopsy is the only way to be sure that you do not have cancer, so it is the normal test used for people who have enlarged lymph nodes. This does not mean that there is anything sinister - there are many less worrying reasons for enlarged lymph nodes. A biopsy is used as much to rule cancer out as to confirm it.

We all tend to worry at this stage, because there are so many unknowns. The best thing to do is to keep yourself busy and distract yourself from the wait.

Have you any idea when your biopsy is due? I hope that it comes up soon.

Please keep us updated. We are always here for you.

Kind regards,

Jolamine xx

enlarged lymph nodes - worried!

13 Jan 2019 23:45 in response to SunshineEm

I've had 2 small lumps in my neck for 20 years, since I had glandular fever and about 5 years later a couple in my groin so again that's been there 15 years! I've never had any investigation, just told by the doctor they were not sinister but still worried so much. I even remember at my graduation fiddling with my neck constantly rather than just enjoying it! To be honest even to this day i sometimes worry but let's face it, no change in 20 years so pretty sure it's nothing. Sometimes when i'm ill they can swell more but then go down again to just over 1cm, think this is just their normal size now. You've done the right thing by having it investigated but if all results are clear try to forget about them. I just think some of us are suseptable to enlarged glands that remain after some sort of infection and as long as they don't change and you have no other symptoms not to worry. 

enlarged lymph nodes - worried!

15 Jan 2019 23:18 in response to Sav84

Hi everyone! As a lot of you have said you're glad you've come across this forum and so am I.

I've had a swollen lymph node in my armpit for As long as I can remember and had it scanned a while back to be told it's all normal. Its larger but a normal shape so no cause for concern. However I now have noticed I've had another lymph nodes under my chin for years as I just thought it was a part of me that was like cartilage. I've also found another next to it.

So like you all I've googled and I am worrying about my two kids and partner. I feel so overcome with worry it's exhausting Sad 

enlarged lymph nodes - worried!

15 Jan 2019 23:33 in response to Abbeyr28

 

Hi Abbeyr,

Welcome to our forum.

If you've had these swollen nodes for quite some time without any symptoms and, the ones under your arm were clear when it was scanned, the chances are that these ones in your neck might be clear too, but why risk it, especially when you have a family?

Make an immediate appointment to see your GP. If he is at all concerned, he will refer you to see a specialist to get it checked out. Worrying can indeed get you down. I hope that all  turns out to be ok.

Please let us know how you get on. We are always here for you.

Kind regards,

Jolamine

enlarged lymph nodes - worried!

16 Jan 2019 21:57 in response to Abbeyr28

I can feel my saliva glands under my chin. once, about 10 years ago it was swollen on one side and tender. kept going back to doctors who gave me a course of antibiotics but when it didn't go down told me to go to the dentist thinking it was maybe an abscess but nothing was found, it was very obviously my saliva gland! He never sent me for a referal because I was only about 24years so they never think it's anything (even though I told him I was a smoker). In the end the whole side of my face swelled up and I went to A&E. They gave me intravenous antibiotics and that cleared it up, but no scans. I can still feel the glands under my chin (one on each side) but they are now the same size as each other and it feels ok. occasionally when I'm having to talk a lot (I am a secondary science teacher) and probably  haven't been drinking enough water, it used to swell a bit and feel slightly tender but other than that it has been fine. I have noticed since I've reduced my teaching over the last few years, it doesn't happen so probably linked to be over worked and run down plus I try not to shout at the class too much! like I said I do think some of us are just prone to swollen glands but it's nothing but harmless infections. if the glands had kept getting bigger or staying larger and tender it's worth getting it checked but don't worry. 10 years on and I'm still fine! 

enlarged lymph nodes - worried!

21 Jan 2019 19:43 in response to SunshineEm

 

Hi 

just wondering if anyone has been through or is currently going through this, I have about 4 enlarged lymph nodes in my neck that I know of , from what I can feel the one on the left side of my neck Beneath my ear is around 2cm firm but not rock hard and not moveable , I have 2 pea sized moveable ones and one grape size moveable one . I have had them that I know of around about 2 years with no change is size, I went to the doctors a couple of months ago and she said it was because of my acne (which I have had untreated for 5 years) so she changed my pill and that has really cleared up my acne but the lymph nodes still persist with no change? I am going back to the doctors tomorrow as they are worrying and if you couldn't already tell I have severe health anxiety , is it true that lymph nodes can just stay permanently enlarged after infection ps. I have had no weight loss, night sweats or anything just a little tiredness as I have been iron deficient , overalls feel fine apart from this anxiety taking over my life

I would really appreciate and comments thank you xx

enlarged lymph nodes - worried!

21 Jan 2019 20:12 in response to Sav84

I have been reading through a lot of posts on here to try and put my mind at rest. 

I noticed a large lump under my jaw under my earlobe early December, it's around the size of a walnut. It's not painful, fairly firm and moves slightly, although I can feel pressure in my neck and ear some days and my tonsil looks larger on that side. No other issues with illness either. (Cold etc)  I made a doctor's appointment for the following Monday, they told me to go back in a week if it hadn't gone down. I also had a blood test which came back clear.  In the meantime, I did feel it was starting to shrink, but then it got bigger again so I returned to the Doctor's. She wasn't totally sure what it was and I had recently had a tooth out the month before due to an abscess so we decided to try Antibiotics. She checked my groin, underarm etc. No apparent issues there.

It appeared to shrink again for a couple of days but then returned to its previous size. (I'm not sure now if it does shrink or if it is just how I have my neck positioned or if it was wishful thinking) So I returned to the doctors. 

She has fast tracked me to the ENT, I went the other day and had a camera up my nose, he indicated there was no visible problems there. I have now been booked in for a biopsy and MRI scan. 

I'm now getting myself so worked up I can't sleep. My shoulders neck and back have suddenly become painful and I'm certain it's muscle tension, but my brain is now working overtime convincing me I'm riddled with cancer. I even feel daft for writing that!! But I think I just needed to put it in words. 

I know I have to wait, but I'm so scared. 

 

enlarged lymph nodes - worried!

22 Jan 2019 01:08 in response to Halfcent

 

Hi Halfcent,

I am glad to see that you are undergoing the tests needed to  rule out anything untoward. Do you have a date yet for your MRI and biopsy?

Most of us find waiting for tests and results one of the scariest parts of our cancer journey. There are so many unknowns attached to a diagnosis. For some strange reason, most of us manage to convince ourselves that our cancer is as bad as it can get, but fortunately, this is seldom the case.

I'm afraid that we all just have to be patient at this stage, whether we like it or not. Try to distract yourself from the wait by keeping as busy as you can. Do your best to avoid 'Dr Google' as much of his information is out of date, or poorly researched.

I sincerely hope that you get the all clear from your latest tests too.

Please keep us updated. We are always here for you.

 

Kind regards,


Jolamine xx

 

enlarged lymph nodes - worried!

22 Jan 2019 15:29 in response to Jolamine

Hi Jolamine,

 

Thank you for your reply. I have my scan and biopsy tomorrow (23rd) and then a follow up appointment on the 30th. I've calmed myself down a bit since I posted, sounds daft but I think just writing it down helped a bit, although the tense muscles are increasing rapidly. It's going to be a very long week me finks. 

I'm trying to stay away from Google and keep myself busy. 

 

I'll come back with an update when I have more news. This is a great site,  just reading posts on here gives reassurance, so thank you to all that have posted and the replies. 

enlarged lymph nodes - worried!

22 Jan 2019 19:31 in response to Halfcent

So glad I found this. I founds a lump last week on the back of my neck on the right side - it has been growing ever since and becoming increasingly tender. I haven’t been unwell at all .

I went to the doctors yesterday, she confirmed that it was a swollen node  and she could not find any signs of infection, but has put me on antibiotics anyway to see if this makes a difference, as well as booking me a follow up appointment for 2 weeks time.

She said that she couldn’t rule out cancer, but it is highly unlikely. 

So scared and can’t stop thinking about it. Would be interested to learn the outcome for everybody else.

I  worry because it is quickly getting bigger and bigger

enlarged lymph nodes - worried!

22 Jan 2019 23:40 in response to Halfcent

 

Hi Halfcent,

I hope that all goes well for you tomorrow and that your results on 30th are good. I'm afraid that you will have another anxious wait until then.

Many people find that writing down their concerns can be helpful.

I look forward to your updates.

Kind regards,

Jolamine xx