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Endometrial Stromal Sarcoma

8 Feb 2018 12:32

Hi Ladies,

I went into hospital for a hysterectomy to deal with fibroids and came out with ESS low grade stage 2. Very shocked.  Life stood still whilst I came to terms with it. Now facing another operation on Monday to remove my ovaries as they were not diseased but advised to remove them to prevent a spread. My tumour tested positive to hormones so wont be given HRT. Can you lovely ladies share any positivity with me around hormone therapy that may be given to me. Xx

Re: Endometrial Stromal Sarcoma

10 Feb 2018 08:36 in response to KazT

Welcome to our forum, KazT.

I'm sorry to hear about your news, what a worrying time this must be for you.

Hopefully, some of our members who have gone through the same experience will come along shortly to chat with you and offer support but in the meantime feel free to post as much as you need.

You mentioned you'll have surgery on Monday to remove your ovaries so if we don't hear from you before I just wanted to wish the best of luck. Come back if you find a moment after that to let us know how you are coping.

Wishing you the very best,

Renata, Cancer Chat Moderator

Re: Endometrial Stromal Sarcoma

19 Feb 2018 13:35 in response to Moderator Renata

Hi Renate, many thanks for your reply. Now out of surgery to remove my ovaries. Recovering well. No medication given on discharge. Meeting a specialist this week to discuss potential therapy and treatment plan. Wish me luck? How is everyone else doing out there? Having read any recent posts?

Re: Endometrial Stromal Sarcoma

19 Feb 2018 21:47 in response to KazT

Hi KazT, 

It's great to hear you're out of surgery and are recovering well Happy

Good luck for your meeting with the specialist this week Kaz. I hope it goes well and that you're happy with what's discussed treatment plan wise.

If you'd like to connect with others with the same diagnosis you could try making a new post or using our 'search forum' option in the blue bar above.

I look forward to seeing you chatting with other members on the forum soon.

All the best, 

Steph, Cancer Chat Moderator