Dry Mouth Issues - throat cancer

Hello i am a 57 year old female called Roisin and i was diagnosed in August last year with a small tumour on the right hand side of my neck,i was told it was small and needed only 7 weeks of radiation,i knew nothing about throat cancer and it really took me by suprise that it was what i had although i was lucky it wasnt much worse because i first went to my gp with the problems in my throat in june 2017 when i was sent for a camera test down my throat,i was told back then that i had a small benign tumour at base of my throat but they said that wasnt causing my symptoms but my docs didnt bother following through with it and tbh it wasnt a great annoyance at that stage .

I was due to flie to New York on 1st July last year and the week before we were going i took a sore ear which i went to the docs with to get the all clear for flying ,it was a locum and she looked insind my ear and down my throant and asked had i never been sent to ent,she was very suprised i hant after reading the notes and said i had to go asap and got me emergency consultant for 2 days timr,he knew as soon as he looked down my throat i had a problem and said i needed to come in for general anesthitc so he could see what was going on,i explained i was going away with my daughter to see family in NY that Friday and he said o jus go ahead and enjoy yourself and i will sort you out when u come back,so i did,great time lol then back to hos where got general done and he looked around and took biopsy,had to wait 3 weeks then they told me i had a tumour on my right hand side which extremely luckly had not went into my lymph nodes and spread,he said i truly was blessed that it was not in the nodes as it was in a area that generally did spread quickly but mine hadnt but he was still going to give me radiation on the nodes as well as the tumour just to be on safe side,i got 7 weeks with Matilda my mask (whom i have hanging on back garden fence in the hope that my daughter and friends who smoke mite just get afraid and give them up,hasnt worked ,wee birds nesting in it lol),anyway i am now 12 weeks post treartment and very slowly getting myself togather,can manage quite a lot of food now though most meat things stll a nono,what i am plagued with this last week is dry mouth,had had it slightly but not too bad but from Tuesday this week its been awful and my lips are nearly bleeding although i put lip balm on frequently,could anyone give me some tips on how to help it please,i would be very grateful xx

  • I'm glad Matilda helped you through your radiotherapy Dolly although I'm sorry you're having a few issues post treatment.

    There is a nice group of fellow throat cancer members on this discussion that you may like to get in touch with about this and we have some information on our website that may help with this as well. Just click here and here to find out more.

    I hope this helps but if you find you have more questions or would just like to chat to someone in person about this then do give our cancer nurses a call. They are available Monday - Friday between 9a.m - 5p.m on 0808 800 4040. 

    Kind regards, 

    Steph, Cancer Chat Moderator

  • Hi there dolly27 

    sorry to hear about ur diagnosis and glad u got to go on ur holiday and enjoy it stil must of been a worry for u while u were away 

    i thought I wud just say mine to seemed to start with sore ear which got worse over time then other problems crept in and eventually diagnosed with left side larynx/vocal chord cancer 

    I had surgery and radiotherapy 

    treatment ended last year but still suffering a dry mouth and lips  I try things like salt gargle or bicarbonate of soda gargles with salt sometimes helps and drink lots of water also ginger ale or pianapple think it’s spelt 

    I am 54 female like u the radiotherapy all of neck just incase they said was any bits they had missed in surgery the only thing I had bad mucus which was the worded effect and coughing and found very hard to swallow hence lost weight as cud not eat had protein drinks which I’m still on as well as trying foods soft 

    well it’s worth trying the above and seeing if helps ur dry mouth 

    Feel free any thing else u need to ask 

    Pauline 

     

  • If you have a dry mouth mention this to the Oncologist, they gave my husband Salivix pastilles which helped no end. There is also a saliva spray if you prefer

  • At night use xylimelts and humidifier make me sleep all night and makes it easier in the day as not waking up with a dry mouth you can order the melts online

  • Thank you,have ordered the xylimets online,does the humidifier work do you think?
  • Thank you so much,starting to really get me down now as i cant even swallow my tablets and making eating solid food very hard now :(

  • Thank you so much Pauline,i find the dry mouth really bad and i feel like my throat constantly swollen now,have to see my ENT consultant next week and am both glad i am seeing but also a bit afraid of what he will tell me,i also developed lymphadema from my treatment which i am trying to keep control off,find myself really depressed these days and cry at the drop of a hat which must be very distressing for my daughter as she feels helplessbut jus cant seem to control my emotions at all ,really appreciate the reply 

  • Yes the humidifier is a must and it needs to b 50-55 humidity and when it winter humidity is low I bought 1 of eday refurbished 1 for £50 good 1 that reads the air a well and shut of when humidity i's reached 

  • Try taking your tablet's with applesauce it might help 

  • You can get most tablets in liquid form so  I found out at the hospital