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Don't know where to turn - breast lump referral

19 Nov 2019 12:45

Hi everyone,

I don't know where to start to be honest but I'm going out of my mind and really trying not to.

I found a lump in my right breast on the inner side inbetween the breast bone and nipple about 8 weeks ago now. I read up and decided to go through my cycle as I know some lumps can disappear. This hasn't and I'm fairly sure it's grown too.

It took me two weeks to get a gp appointment which was middle of last week and I've had a call today to say my breast screening appointment will be next Tuesday. I'm considering going private but can't really afford too, it's just that the worry is getting the better of me. 

I wouldn't feel so concerned but I've not really felt well for a few months in myself. I've had ongoing problems with my chest and a persistent pain in my right shoulder when I breathe in which is now in my breast too. I've had a chest x-rayast last week so atleast that's done but i am really struggling with the wait. I'm sure I'm not the only one though.

I hadn't told anyone about the lump either until the day I saw the gp when I thought I should tell my husband. We've also told his mum too. 

Have/did you all tell family and friends when you were just waiting and it could still be nothing?

I'm toying between telling people and not telling anyone. It's a total head messer isn't it x

No idea whether I'm posting this in the right place sorry. 

Don't know where to turn - breast lump referral

19 Nov 2019 21:32 in response to Oddsockmum

Hi I can totally related to everything you have said in your post. I am waiting my breast clinic appointment which is next Tuesday. I have told my husband but nobody else. we are trying to protect our loved ones from worry but it is hard. It's okay to be scared and be emotional about what's going on. I am distracting myself arts and crafts tv watching favourite tv programmes. Even getting lots of housework done. Not so bad when at work kept busy. I hope all goes well with your appointment.

Don't know where to turn - breast lump referral

19 Nov 2019 21:52 in response to Scottishwifie

Thank you so much for taking the time to reply. I'm sorry you're here too but thank you for sharing that you are feeling similar.

It's hard isn't it. I've had my son off school today so he's been a good distraction and I have plenty of housework. It's constantly in the back of my mind though. 

I hope your appointment goes well too x

Don't know where to turn - breast lump referral

19 Nov 2019 22:03 in response to Oddsockmum

I think writing down your feelings helps especially when we aren't talking about them to others. I have been listening to loud music and dancing to my favourite songs which is helping as well. Just have to wait and see. I hope all goes well. There are a lot of supportive,  strong amazing people on this chat group that have been through a lot and are willing to help. Take care.

Don't know where to turn - breast lump referral

19 Nov 2019 22:24 in response to Scottishwifie

Yes that's a good point about writing feelings down and great tip about dancing and music too.

I've been reading through some of the posts and it seems supportive which is nice. I have spent the last few days wanting to talk to people who don't know me, just for some understanding.

Is your appointment in the morning or afternoon on Tuesday? I was called today about mine so should receive a letter tomorrow confirming it all. Fingers crossed for you x

Don't know where to turn - breast lump referral

19 Nov 2019 22:51 in response to Oddsockmum

My appointment is early in the morning getting a lift in to hospital from my husband who managed to get a day off work  which is great saves getting a very early bus. Got to get mammogram first then go the breast clinic.Take care 

Don't know where to turn - breast lump referral

19 Nov 2019 23:37 in response to Scottishwifie

Hi

My appointment is next Tuesday too. It is always at the back of your mind, I too do crafts and anything to take my mind off the wait. It's scary isn't it.

Take care x

Don't know where to turn - breast lump referral

20 Nov 2019 07:05 in response to Scottishwifie

That's good that your appointment is early and your husband can be with you. Mine is in the morning too thankfully although I'm not sure what order they do anything in. My husband is coming, I did think I could go by myself but the more the days are going on the more anxious I'm getting. I've been up since 6am feeling like my chest is tighter than normal. The waiting for something like this is hard isn't it. Hope you're ok x

Don't know where to turn - breast lump referral

20 Nov 2019 07:09 in response to Vixy

Hi Vixy,

Thank you for replying, it is scary isn't it. I'm really trying not to think it will be bad news but I always prepare for the worst and hope for the best in every situation so finding myself going through all kinds of scenarios. 

Is your appointment early? I had a phonecall to book mine and should receive my letter confirming it today x

Don't know where to turn - breast lump referral

20 Nov 2019 11:30 in response to Oddsockmum

Hi

my appointment is 10:10am. I don't have anyone coming with me at the moment. My husbands says he can't get the time off and I'll be alright, doesn't understand. My family live far away, will have to be strong. 

Xx

Don't know where to turn - breast lump referral

20 Nov 2019 12:28 in response to Vixy

Sorry your hubby isn't being supportive. Do you have a close friend who might come along? 

My appointment is 10.15am so we'll be at them at the same time x

Don't know where to turn - breast lump referral

20 Nov 2019 12:31 in response to Oddsockmum

Hi There

Trust me the waiting is the worst.  I'm fine as long as I have something to focus on.  I had a biopsy on 13th August and was told I'd get the results 5 - 6 weeks later.  By the time we got the result on 19th Setpember, we'd almost forgotten about it as most people get a diagnosis within a couple of weeks so had convinced ourselves all was okay and just carrying on as normal. 

So we got a diagnosis of breast cancer on 19th Sept and it was then we told our Daughter, Son and my parents.  The reason for not telling them before was that we didn't want them to be worrying about something when there may not be anything to worry about.  To us it seemed best to keep it to ourselves and just carry on with life which is exactly what we did and now I'm really glad as otherwise that would have been another 6 weeks of stress they would have had.

Lumpectomy and lymph node removal on 1st October, then 30th October results day of operation success.  Unfortunately cancer had spread and I needed a mastectomy which they had pencilled in for 1st November but due to complications could't be done then.  I was given a further date of 20th November but that was cancelled due to ongoing complications.  Whilst I had dates to focus on I was fine but now I'm in limbo waiting for my blood situation to be sorted so that they can give me another date (hopefully not far away now)........  I've remained upbeat and positive throughout as I'm a true believe in PMA but the waiting is draining to say the least.

Good luck to all who are waiting for appointment dates (I hope they are not long coming through) and to those waiting for tests, I hope the results come back positive for you!!

Best wishes

Rosie 

Don't know where to turn - breast lump referral

20 Nov 2019 13:07 in response to Oddsockmum

Hi

Unfortunately my friends have moved away.  I'll find someone to go with I'm sure. Are you taking anyone?

X

Don't know where to turn - breast lump referral

20 Nov 2019 13:10 in response to Rosie80

Hi

 

I'm sorry it's not good news. How come the results were so long? On my letter it says 2 weeks for the results if they have to do biopsies. 

Take care

X

Don't know where to turn - breast lump referral

20 Nov 2019 15:27 in response to Vixy

Hi Vixy

Here it is 30+ days for biopsy results and 30 days for results from an operation.  I think as long as you set your mind for the end date and then just carry on as best you can, it makes it better.  It's not an easy ride at all no matter what stage you are at from the moment you feel a lump but the medical support system is truly amazing.

Wishing you luck

Rosie