Does anyone understand?

My husband of 51 years, who has never been ill or in hospital has been diagnosed with pancreatic cancer and I am watching him deteriorate - he is on morphine morning and night and is not eating much at all.   He has lost over two and a half stone, but I had managed to put him on a high calorie snack type diet and he had put three pounds back on.    He started palleative chemo some weeks ago, but couldn't have the second treatment as his liver count had shot up and they admitted him for five days and put a stent in his bile duct.   He was managing to eat a little more after, not much, but since restarting his chemo, he is hardly eating at all and sleeps a lot of the day.    I am frightened he will now start losing weight again.

I am so sad, and I am not coping well when I am on my own or in the night.    We got through me having stage 3 breast cancer last year.   He supported me through my mastectomy last July and my radiotherapy that finished in November last year.  I was lucky enough not to have to have chemotherapy.     I never thought that a year later he would have to have it.

We had planned to go away on a special holiday this year to celebrate our 50th wedding anniversary as we couldn't go last year, but we were unable to go.    We used to go out several times a week by car, even if it was only for lunch or a coffee, but he can no longer drive and I don't drive, and he can't eat much, so we can no longer go out for meals.    We feel that everything has been taken away.       I tell myself that I am lucky to have had him by my side for 53 years, and that I am getting a chance to say the things that people  who  lose people suddenly never get to say.    But it is so difficult to talk about what will happen.    I want to boost him up, give him hope and give him encouragement that the chemo will do some good.    So how do I then talk to him about practical things I need to discuss?   I keep disolving into tears, when listening to words to songs, articles I read, people being kind.   And people are kind, we have support from family and friends.   I cannot talk much to my children about how I feel,  as they will get upset, they are trying to do all they can.

So I have written this,  I find it difficult to talk to anyone, although the MacMillan nurse has offered counselling,  I can't bring myself to ask for help, as I am a trained counsellor myself and find myself anticipating what they are going to say.   

I think this will be our last Christmas together, although I live in hope that the chemo will do some good.

Is anyone else going through this?  I tried to be brave all last year, now I am falling apart.    

  • I was so sad reading your post. I have not been through this but have just been diagnosed with breast cancer. On bad days I just live for an hour at a time. 

    There isn’t much I can say as being a counsellor yourself you know all the platitudes already.

    i just wanted you to know I read your post.

    i wish you well xx

  • I am so sorry to read your post, if I could give you a big hug I would. How unfair life is that both of you have been struck by this horrible disease.  Has your husband seen a dietitian ? Is he able to take fortisip drinks to get his calories or even have a feeding tube fitted? I do hope you are able to build him up, chemo was hard for me, I was surprised how much weight can be dropped quickly but with fortisip and bland food I was able to manage a little on the bad days.

    Where are you based? If in UK do you have a local maggies Centre? They may have support groups you could access? I’ve found the most comfort I’ve had is talking to people who’ve been down this road. I’ve found it hard at times to talk to my mum and dad, I know it upsets them but it’s brought an even closer bond between us. I can understand you want to protect your children but I’m sure they’d rather you open up to them than keep your feelings bottled up, I hope you find someone to open up to family or not, please feel free to message me privately if you want someone to rant to, I may not be much practical help but will always listen.

     I’m 46, mum of 2 beautiful kids aged 9 and 16 and have stomach cancer, I’m being treated with a hope for a cure but the future scares me, I have a wonderful husband, we have a very strong relationship and he’s my rock, I think this is why your post resonates with me so much as the thought of leaving him alone hurts so much, we’ve been together for 15 glorious years. 

    Sending you a big hug, as I said please do message me if you think it can help.

    xx

     

  • I think you should accept the help of the Macmillan nurses.Yes it will be difficult as you are a counsellor yourself but is it the same field? I'm sure they will be experienced enough to accept your reservations.

    I think you will find them extremely supportive and it always helps to talk to someone.

    I was lucky that I had a 'go to' friend but would have undoubtably chatted to Macmillan if I'd needed to

    Sending hugs x

  • Hello dragonfly

    I understand completely how you feel. My husband is in exactly the same position. We have been married 54 years and he was told a few months left in September. He had a Whipples op last December but the cancer came back a few months after. 3lots of chemo with all the side effects but in September ythey could do no more. Like you I think it will be our last Christmas. It is hard to be positive for them when you are falling apart inside and everything you have to do is like climbing a mountain. Luckily we could talk about what needed to be done. Have sorted out lasting power of attorney, and pre paid for both our funerals and what we want. Our finances are also sorted now but in some ways it seems harder now it is all done. We don't go out much either now. The palliative nurse has arranged for a therapist to see me at home and help me cope with everything. Friends and family are all really good but can't know how you feel inside and we can all put onabraveface when we need

    Sendinghugs and love and understanding

    Sue

  • Sorry grandmother C mixed you up with one of your repliers My head is all over the place

    suenmags

  • Thank you so much.   I send you hope and love and healing.   xx

  • Thank you for replying to me Suenmags -  I wish you strength to cope.   It is so hard and so cruel.   Knowing I am not alone in what I am going through is comforting, but I wish you did not have to go through it either.   

    Please keep in touch if you would like to talk.

    Sending love and understanding to you too.

    GrandmotherC

     

  • Thank you so much for your kind reply.

    I am very grateful

    GrandmotherC

  • Thank you so much for replying.   I am so sorry to hear of your situation.  I pray that you will find the healing you need and will be able to love life again.    How cruel that you should have this at a time when you should be enjoying your family and looking to the future.  We have 2 daughters around your age, with families, who have both had very traumatic times themselves, leaving them mentally fragile, which is why I can't confide in them much.  I don't think our son who is the eldest would know how to deal with me sobbing on his shoulder.  But you took the time to respond to me and try to help.   You are so kind, what a lovely person you must be.  Thank you.

    Yes we have been given a diet sheet and he has Fortisip.   He just does not want to eat.  I thought last year that I might have to leave him.   But I never thought it would be the other way round so soon.

    I think you have enough to cope with, but I will remember I can talk to you.

    Sending enormous hugs.

    GrandmotherC

  • Thank you Irene70.

    I am so grateful for everyone's kind responses.

     

    GrandmotherC