Diagnose with endometrial hyperplasia atypia at age 27

Hi everyone,

I've came across this forum as i've just been confirmed from my biopsy report that I have endometrial hyperplasia atypia and i'm kind of all over the place with this inofrmation and didnt know where to turn to.

A little background info:

I noticed a huge difference with my health about a year a go where i've put on a whole lot of weight (2-3 stones) and my periods were really irregular to a point where i wouldnt have my period for 2-3 months and then i'll be bleeding for a whole month straight. Originally i was told to have blood tests which i did in November 2017 but during the xmas break I had really severe pain in my lower abdomen to a point where I ended up throwing up. This lead to having ultrasounds and scans and to the biopsy report. Along with this I've also been diagnose with PCOS as well and been medication for diabetes, high blood pressure and cholesterol.

I'm 27 and moved into London beginning of last year. I never expected all this to happen all of a sudden, i live by myself so all this stuff is constantly in my head. I'm getting moved to a new consultant in gynaecology oncology and they want to put a mirena coil in me because of my age. I'm worried that taking all these medications and this hormone coil is going to mess up my body more as I already got menopause like symptoms like hot flushes, dizziness, tiredness etc. This is making my life really hard this year to a point where i don't socialise anymore and just stay in my flat. I never planned on gettig married and having kids, so i dont know if there are other options the doctors can reccommend than hormone medication?

Really sorry for the long post, I don't really have anyone to talk to about this stuff. My mum cried when i told her the results so i dont want to put more stuff on her because of her health.

 

T x

 

  • Hello and welcome.

    i don’t  know much about the  treatment you are being offered. I am not a medic so I can only give my opinion, I believe the only other alternative would be a hysterctomy which doctors would be trying to avoid because of your age. I know you’ve said that you don’t want children but sometimes people change their minds when they are older so doctors will try to preserve that option for you. However if you are really unhappy with their decision I think you need to discuss your options with them when you get your gynaecology appointment. Also if you’re worried about how their preferred treatment might affect your health you also need to raise this with them. You could start by writing down your questions and worries and getting straight in your head what you want to discuss at the appointment, This is all about you and your health and well being so you need to ask questions and express your concerns. Have you a friend or relative who would come to the appointment with you? It’s always a good idea to take someone if you can who is armed with the same questions to ask or write down the answers, I know from my experience that you remember very little on these occasions, if no one can come some doctors allow you to record the conversation or give you time to write the answers but you do need to ask them before you begin.

    On the subject of your other health issues.just a reassurance  that I have been a type 1 diabetic on insulin injections four times a day for 56 years and also take  meds for high blood pressure and cholesterol. I’ve had two major operations including a keyhole hysterectomy within fourteen weeks of one another, 92 lymph nodes removed and i am  just starting three sessions of internal radiotherapy and my diabetes control although on occasions a bit erratic is good. What I’m trying to say is that everything is doable with a bit of positivity and care. I was diagnosed with endometrial cancer so obviously the measures above were necessary but it’s amazing what your body and mind can cope with. 

    Please let us know how you get on. Try to stay strong. Take each day as it comes and stick up for yourself and ask the questions you want answers to. I hope everything goes well.

    Sundial

  • Hi there ...

    So sorry your dealing with so much on your own ... I'd just like to add,  every mother I know crys when their babies get a diagnosis or even symptoms ... They are always our babies no matter what age ... I totally lost it when my son was being tested ... I cryed for the whole day , really sobbing ... Yet never cryed over my cancer ... So please allow your mum a time to get her head round it, but you will need her and sharing tears are part of all this journey ... But as a mum , I would have been devisted to not be part of his journey through tests and results and lukily his were fine ... Then I sobbed again , but I would have got myself together and been there every step of the way ..

    Wer always here to offer support and a vertual hug ... But there's nothing like a mummies hug ...

    So take care ... Chrissie xx